Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Do I Get The Help I Need
0

8 posts in this topic

I came across an article the other day regarding celiac disease and I have many of the symptoms and factors. BUT right now I have no insurance and financially not in a good situation so my family doctor is just passing it off as nothing.

I went in to his office with chest pains and he told me that it was stress. I then emailed him and asked into getting testing for celiac and he said it was too expensive. Period.

Does anyone know where I can get help to get tested for this around the Charlotte, North Carolina area? I know I'm not supposed to, but I put myself on a diet the other day thinking I have no other options but to figure this out on my own?

Thanks for any help!

Pat

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Pat. I feel for you and feeling like you have to fight with doctors to get them to test you for Celiac. If you really think you have Celiac Disease you could do one of two things:

1. You could try a gluten-free diet for a month or so to see if you improve. If you do chances are you have Celiac.

2. You could order a stool panel test from Enterolab Dr. Fine says it is more sensitive than blood. The test to check for gluten sensitivity is around $100.00. This way you will know for sure what is wrong with you and have a doctors diagnosis.

I hope you begin to feel better soon. :)

0

Share this post


Link to post
Share on other sites

My doctor was able to tell with a simple blood test checking for the antigliaden antibodies. The first doctor wouldn't check it, but the 2nd one finally did and it came back positive. I don't know how much it would cost without health insurance though.

You'll be in my prayers.

Lily

0

Share this post


Link to post
Share on other sites
My doctor was able to tell with a simple blood test checking for the antigliaden antibodies. The first doctor wouldn't check it, but the 2nd one finally did and it came back positive. I don't know how much it would cost without health insurance though.

You'll be in my prayers.

Lily

I figured these was a simple blood test for this but he won't do it. Maybe I should find a clinic that has a sliding fee scale that might do it.

Thanks for your response. I am trying the CF diet on my own right now but it's only been a couple of days. How long before I would see results?

Pat

0

Share this post


Link to post
Share on other sites
Hi Pat. I feel for you and feeling like you have to fight with doctors to get them to test you for Celiac. If you really think you have Celiac Disease you could do one of two things:

1. You could try a gluten-free diet for a month or so to see if you improve. If you do chances are you have Celiac.

2. You could order a stool panel test from Enterolab Dr. Fine says it is more sensitive than blood. The test to check for gluten sensitivity is around $100.00. This way you will know for sure what is wrong with you and have a doctors diagnosis.

I hope you begin to feel better soon. :)

I have put myself on the gluten-free diet but it's only been a couple of days. I may also try to find a clinic that can take low-income people on a sliding fee basis just to get the blood test.

Thanks!!!!

Pat

0

Share this post


Link to post
Share on other sites




Pat,

I was gluten free (mostly) for 2-3 months and my blood test still showed a weak positive. They put me back on wheat for 3 weeks and tested me again and it was a strong positive. You still have enough in your system to show if you are sensitive. Having the positive blood tests will be proof enough I think to help you stay gluten free. Once I was off the gluten and then put back on it made me sicker than ever - I became more sensitive to it.

Could the health department help you?

My best to you,

Lily

0

Share this post


Link to post
Share on other sites

Lily,

I'm hoping that either a low-income clinic or a free clinic can help soon, or my husband and I get jobs where we have some insurance!!!!! Thanks for your reply - I really appreciate any help.

Pat

0

Share this post


Link to post
Share on other sites

You asked how long before you can see/feel results - I began feeling better within a few days, not great, but better. I've had a few blunders in the past two months but not many - I feel much better physically, and it's difficult to describe but mentally things are much more calm.

What I found:

The gluten-free flours/breads do take a little adjusting to

I think I OD'd on corn the first 10 ndays

Taste buds do adjust

Watch out for sweet things, dairy

I found a gluten-free food list @

http://homepage.mac.com/sholland/celiac/GFfoodlist903.1

good luck

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,757
  • Topics

  • Posts

    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,691
    • Most Online
      3,093

    Newest Member
    EllianaEthan
    Joined