[sweeet_pea]

Does anyone else have this problem? I feel as though I am the only one! I'm about 60 pounds overweight!!!

[darlindeb25]

Sweeet Pea, yes, many of us are overweight. It's not true that most celiac's are thin, wasting away. Just as many of us have weight problems. Our bodies react differently to the malnourishment we were living in. When I first went gluten free, I lost weight. Eventually losing 60#. Then my other intolerances kicked in and I gained maybe 15# back and I want it gone. Exercise is what it takes and I hate that word. I am very limited on what I can eat now and I know the food is not the problem. When I went gluten-free, I was wearing very tight size 26 jeans and I had gotten down to some 16 and mostly 18. That was great for me and as Scarlett O'Hara says, "With God as my witness, I will get back to them!"

[ianm]

I was about 100lbs overweight and lost it all. Nini is the weight loss champion but I haven't seen her around lately.

[Judyin Philly]

ianm, on Feb 4 2007, 10:09 AM, said:

I was about 100lbs overweight and lost it all. Nini is the weight loss champion but I haven't seen her around lately.

No your not the only one..trust me...
Yes Nini is the the champion on this subject. She left this forum and joined the Daily Strength forum where she is much appreciated and continues to help many of us. She was not able (as i understand it) to post her web site on this forum.
I am able to do so (as I understand it) so will post it for you.
This website is packed full of OUTSTANDING information and also has some pictures on it.

Enjoy---http://magickhand.googlepages.com/

feel free to PM me if you need more help. I too lost weight..50# when first going gluten-free and then other issues, dairy and soy etc so haven't found the best stable health yet but still looking...
hugs
Judy in Philly

[Christy_Latchford]

Believe me I am in the same boat as you! I have not yet been diagnosed with celiacs, but I am awaiting the appointment for my biopsy....I am currently 40lbs overweight and have tried EVERYTHING to loose weight (besides going gluten free, but I can't do that until after my biopsy). So just to let you know, you are most definatly not alone....One forum user reccomended the Atkins diet to me, she said it is the only thing that helped her....the basis for this diet is carb free, which in turn eliminates most of the gluten in your diet.....hope this helps

[tiffjake]

sweeet_pea, on Feb 4 2007, 04:27 AM, said:

Does anyone else have this problem? I feel as though I am the only one! I'm about 60 pounds overweight!!!

Not at all! I am about 100 pounds over weight. Low car/sugar free now to lose weight. Lost 18 lbs in the last 6 weeks!!

[jacqui]

sweeet_pea, on Feb 4 2007, 02:27 AM, said:

Does anyone else have this problem? I feel as though I am the only one! I'm about 60 pounds overweight!!!

My gastro, Dr. Gray at the Stanford Celiac Management Clinic told me I was one of his obese patients and that he is seeing more and more overweight patients with celiac.

I started to gain weight ~2 years before diagnosis. I kept telling my PCP and he kept blaming it on my age (at the time 36!!), my thyroid (kept in low-mid norm range by my endocrinologist), I need to exercise more...I did the no/low carb diet b/c my sister lost like 10 lbs instantly. NOT me if anything I gained weight. I bought an exercise bike (I have ataxia so I need to sit to exercise), but at this time I had a lot of fatigue going on so I couldn't even stay up to just sit forget about peddling a bike. In January I joined Weight Watchers. After ~2 months on it I lost 18lbs. I was 153.1 (I'm 5') and I am now 110lbs. I went in the begginning just to learn what to eat...Again this was before diagnosis, so I cut out most carbs and ate very "naked" food. Even on gluten-free I do not eat too much breads or pasta.

Also, I read that (I can't remember if this related to kids with celiac or all) someone with celiac is used to eating keep eating the same.absorba lot b/c of the malabsorption. They continue to eat the same amount but now they are healed or healing and absorbing more --> they start to gain weight. Plus gluten-free food is a bit more fattening/higher in carbs...

Has your thyroid been tested? If not I would get that checked too.

Take care,

Jacqui

[jacqui]

Christy_Latchford, on Feb 20 2007, 10:04 PM, said:

Believe me I am in the same boat as you! I have not yet been diagnosed with celiacs, but I am awaiting the appointment for my biopsy....I am currently 40lbs overweight and have tried EVERYTHING to loose weight (besides going gluten free, but I can't do that until after my biopsy). So just to let you know, you are most definatly not alone....One forum user reccomended the Atkins diet to me, she said it is the only thing that helped her....the basis for this diet is carb free, which in turn eliminates most of the gluten in your diet.....hope this helps

Welcome!

I agree with the forum user about Atkins or I did Weight Watchers. Once you start eating gluten-free you have to be almost more cautious b/c gluten-free has more carbs most of the time. I was 40 lbs. over weight and did Weight Watchers, but that was 3 months before my diagnosis of celiac disease. I still don't eat much bread.

Also, the best book to get once diagnosed celiac is Dr. Green's called "Celiac Disease: A Hidden Epidemic". He is the head of Columbia University Celiac Clinic. It is written by him and the dietician from there. This one is the most informative and the Gluten Free Bible has some good information, but it is older so some info is not up to date or wrong.

Good Luck!!

[georgie]

I lost weight starting gluten-free, then stopped. Now Dairy Free and losing weight really easily. I still have to watch carbs though.

[cyberprof]

jacqui, on Feb 21 2007, 02:20 AM, said:

Also, I read that (I can't remember if this related to kids with celiac or all) someone with celiac is used to eating keep eating the same.absorba lot b/c of the malabsorption. They continue to eat the same amount but now they are healed or healing and absorbing more --> they start to gain weight. Plus gluten-free food is a bit more fattening/higher in carbs...

I was just diagnosed last week, and my dietician said that everyone is different but some people have metabolisms that are slowed by celiac (evindenced by lethargy, tiredness, etc) and that after a celiac diagnosis with the correct foods, one may lose weight because of an increase in metabolism.

The other thing she said is that one's body may be holding onto weight while on a gluten-including diet because of malabsorption and once one goes gluten free the body may relax and lose weight better.

So the point I am making is that previous malabsorption shouldn't make it more likely that one will gain wait on gluten-free.

However, I decided at diagnosis that I wasn't going to rush out and replace bread, pizza, pasta etc. with substitutes. (I did get gluten-free soy sauce and the like.) I am eating a strict paleo diet with no refined carbs and no rice, lots of raw veggies and good healthy meats and fats. Once I lose the weight (30 pounds) I will add in a few "treats" like wheat-free pizza, once a month or so. So my gluten-free will be high in "good" carbs and low in fats.

Just my 2 cents.

[jacqui]

cyberprof, on Feb 24 2007, 09:50 AM, said:

I was just diagnosed last week, and my dietician said that everyone is different but some people have metabolisms that are slowed by celiac (evindenced by lethargy, tiredness, etc) and that after a celiac diagnosis with the correct foods, one may lose weight because of an increase in metabolism.

The other thing she said is that one's body may be holding onto weight while on a gluten-including diet because of malabsorption and once one goes gluten free the body may relax and lose weight better.

So the point I am making is that previous malabsorption shouldn't make it more likely that one will gain wait on gluten-free.

However, I decided at diagnosis that I wasn't going to rush out and replace bread, pizza, pasta etc. with substitutes. (I did get gluten-free soy sauce and the like.) I am eating a strict paleo diet with no refined carbs and no rice, lots of raw veggies and good healthy meats and fats. Once I lose the weight (30 pounds) I will add in a few "treats" like wheat-free pizza, once a month or so. So my gluten-free will be high in "good" carbs and low in fats.

Just my 2 cents.

Thanks for the 2 cents. I am a very bad eater. I don't know good carb from bad... I really should. That is great that you didn't go out and substitute. Of course I did, but then rarely ate what we bought - so wasted expensive food!

[sandys]

tiffjake, on Feb 21 2007, 03:06 AM, said:

Not at all! I am about 100 pounds over weight. Low car/sugar free now to lose weight. Lost 18 lbs in the last 6 weeks!!

Be encouraged! Ive been maintaining my same weight for the last 6 months. I eat lots of rice cakes and popcorn for snacks. I eat baked chicken breast or chicken taco or tostadas mostly lots of salads with sugar snap peas (love them). Try making your salad with mandrin oranges and pinapple chunks and pecans, then you don't need salad dressing, I sometimes just add Two spoons of my yogart that I have at lunch its great. Exercise and have fun Sandy

[CMCM]

I only got my celiac disease confirmed a year ago, but 4 years ago I did Atkins for about 2 months....I wanted to lose this 20 or so lbs. which I simply have never been able to budge in about 10 years, no matter what diet I was on or how much I exercised. About 6 weeks into Atkins I had lost a lot, maybe 12 lbs, and felt absolutely wonderful....I remember being very puzzled because I was not normally a big meat eater, but now with hindsight I realize it was a total lack of grain carbs, also no fruit, no sugar, and just all that protein with some veggies that I was eating. The bottom line was that the Atkins diet really really agreed with my digestive system.

I have come to believe that dairy and sugar stops weight loss dead in its tracks for me....unfortunately, a lot of gluten free substitutes are quite simply horrible and valueless from a health standpoint....they are unhealthy non-gluten substitutes, but offer nothing but empty calories. When I first went gluten free a year ago I ate a fair number of these things (gluten free cakes, cookies etc.), and then I realized WAIT....I wouldn't even eat all this stuff previously, so why am I eating it now???. Plus all the various flours and sugars really upset my system, and I didn't feel better until I cut ALL that stuff out. The last few months I've been trying to get my health in order again, and only recently have been eating more gluten-free treat stuff than I should, and that has to end.

I still have this incredibly frustrating 15 lbs. to lose....my fat % is frighteningly high even though I don't look it, and I'm totally frustrated trying to lose it because I really don't eat all that much. I'm going to try Atkins induction again starting tomorrow and see if that's the answer. I'll keep you all posted if I see any weight loss progress. I don't know what else to try!

[SunnyDyRain]

CMCM, on Mar 5 2007, 02:01 AM, said:

I only got my celiac disease confirmed a year ago, but 4 years ago I did Atkins for about 2 months....I wanted to lose this 20 or so lbs. which I simply have never been able to budge in about 10 years, no matter what diet I was on or how much I exercised. About 6 weeks into Atkins I had lost a lot, maybe 12 lbs, and felt absolutely wonderful....I remember being very puzzled because I was not normally a big meat eater, but now with hindsight I realize it was a total lack of grain carbs, also no fruit, no sugar, and just all that protein with some veggies that I was eating. The bottom line was that the Atkins diet really really agreed with my digestive system.

I have come to believe that dairy and sugar stops weight loss dead in its tracks for me....unfortunately, a lot of gluten free substitutes are quite simply horrible and valueless from a health standpoint....they are unhealthy non-gluten substitutes, but offer nothing but empty calories. When I first went gluten free a year ago I ate a fair number of these things (gluten free cakes, cookies etc.), and then I realized WAIT....I wouldn't even eat all this stuff previously, so why am I eating it now???. Plus all the various flours and sugars really upset my system, and I didn't feel better until I cut ALL that stuff out. The last few months I've been trying to get my health in order again, and only recently have been eating more gluten-free treat stuff than I should, and that has to end.

I still have this incredibly frustrating 15 lbs. to lose....my fat % is frighteningly high even though I don't look it, and I'm totally frustrated trying to lose it because I really don't eat all that much. I'm going to try Atkins induction again starting tomorrow and see if that's the answer. I'll keep you all posted if I see any weight loss progress. I don't know what else to try!

I did atkins about 3 years ago for about 4 monthes. I lost about 30lbs, and felt great. More enregy, no D. I wish somone could have put the pecies together then and said .... duh you not eating wheat... your celiac.

Nope... Suffered for 3 more years.

My mom still doens't think celiac is my main problem... "Celiac's are skinny and malnurished." I'm 100 lbs over weight....

[rlm90]

sweeet_pea, on Feb 4 2007, 05:27 AM, said:

Does anyone else have this problem? I feel as though I am the only one! I'm about 60 pounds overweight!!!

I'm about 50 pounds overweight, and I have been overweight since I was little. I'm 17 years old now, and I still can't figure out why I'm so overweight. I have been eating right and obeying my diet since I was diagnosed at 3. I was malnourished and nearly dead when diagnosed, and somehow soon after that I started rapidly gaining weight. My parents and my doctors don't get it either. For the last year I've been taking medication for other problems and I've lost about 50 pounds. I still would love to know the cause behind all of this. So much for "all celiacs are skinny" .