Posted 13 March 2007 - 11:44 PM
I am glad to have my brain back too!
I was diagnosed /w idiopathic epilepsy at 21 or 22 years old, though by history I had evidence of seizures in childhood. (Diagnosed w/ IBS at same time & can't remember ever having normal GI function.) My mental functioning continued to decrease untill I was diagnosed w/ Alziemers in my 30's. I went low gluten in late June 2006 (continued to have some oat & trace gluten sources). I have been able to wean off of all seizure meds & am also taking no Alziemers meds. I have had no seizures & yes, my brain is functioning again. Yay! Oh, & my lifelong dyslexia seems to have virtually disapeared.
I was officially diagnosed w/ celiac disease 2 wks ago & have gone 100% gluten free. I am on disability w/ a list of 14 different ongoing diagnoses. Most of these are resolving on my gluten-free diet. I am appalled that it took 47 years for a proper diagnosis, but delighted to finally be getting well & getting my life back.
What is really sad is i was a highly trained RN (more training than many MD's) & I had never heard of celiac disease. It makes me wonder if my grandfather, who died of intestinal cancer, had celiac disease. Six of his grandchildren have celiac disease/gluten intolerance/allergy.
Good Luck & hang in there,
1979 w/ IBS (atypical) & idiopathic epilepsy
1980's acid reflux, chronic appendicitis
1991 chronic severe pain (thought to be related to injuries & compensation for injuries)
1995 gallbladder surgery
2003 exzema (not responsive to treatment)
2006 pain put me into electric wheelchair
Recurrent depression & anxiety (1975-2006)
Diagnosed w/ Celiac Disease Feb. 2007
I am currently off of all seizure & pain meds & doing GREAT! I am walking w/o even a cane. Sleeping in regular bed now w/ lots of pillows, but back on reflux meds.
Low Gluten since June 2006 (by accident) gluten-free since Feb. 2007
Other problem foods: Shellfish/iodine, dark green leafy vegtables, ie: spinach, tunip (greens as well as the root) I can cheat a little w/ spinach if it is raw. I love it in salads. Caffeine is also problem(fibroid cystic disease) & Nutrasweet causes me to have seizures.
Mother of 3. One w/ celiac disease & lactose intollerant, one non-sympomatic (allergic to blueberries, red #3 & red #33) & one thanking God he is adopted (though he is diabetic). I also care for toddler who is allergic to gluten, peanuts & soy. She is also lactose intolerant.