Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

How Important Are Probiotics And Digestive Enzymes?


  • Please log in to reply

17 replies to this topic

#1 Aerin328

 
Aerin328

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 126 posts
 

Posted 05 February 2007 - 03:15 PM

I am a recovering celiac, 7 months gluten-free and still healing. I have great days (finally, yeah!) but I definitely still have a good number of crappy days. GI symptoms are gone, but I still struggle with fatigue and brain fog. In my quest for total healing I've heard several times "All Celiacs should be on digestive enzymes and probiotic supplements." I tried them a few months ago (briefly), but after a few days they seemed to irritate my digestive system so I dropped them both. A few questions then for the wise participants of the forum :

1. Do you find that digestive enzymes and probiotics indeed help? Do you recommend all celiacs try them?

2. Has anyone had problems with them and had to avoid them?

I realize complete healing of the system after initial diagnosis can take a long time (some people on this forum have told me 1-2 years, and Enterolab reports the antibody stays in the blood for at least 1 year!) , but I just want to do everything I can to help myself, without irritating my fickle gut.

Thank you!!
Christian
  • 0
Gluten free since 7/6/06. :)

Enterolab Results positive 8/24/06:
Antigliadin IgA 33 (Normal Range <10 Units)
Antitissue Transglutaminase IgA 16 Units (Normal Range <10 Units)
Anti-casein (cow’s milk) IgA antibody 21 Units (Normal Range <10 Units)
Serologic equivalent: HLA-DQ 3,1 (Subtype 8,5)

Blood test somewhat positive 7/6/06:
Antigliadin IgG (only) 57 (Normal range <20 units)

"Perspective is Reality"

Celiac.com Sponsor:

#2 GlutenWrangler

 
GlutenWrangler

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 421 posts
 

Posted 05 February 2007 - 08:44 PM

Christian,
There are many people out there who cannot tolerate probiotics and digestive enzymes. I started taking probiotics and L-Glutamine about a month ago and saw some great improvements. Probiotics are rough at first because they have to cleanse the intestine of toxins and bad bacteria. This period can last for 10 days, and it can be very uncomfortable. Fortunately, for many people it does come to an end, and positive effects begin to show through. The reason why probiotics work is because many celiacs have some degree of bacterial overgrowth. Probiotics restore a healthy balance of good bacteria.
Digestive Enzymes are containdicated for people with ulcers. If you have an ulcer or erosion, Digestive Enzymes will most likely bother your stomach. Generally, people tolerate them well. Digestive Enzymes help because in many celiacs, the pancreas isn't working correctly. It is unable to secrete enough enzymes to digest food. Digestive Enzymes assist in this process, and complement the pancreas.
Did you take the probiotics and the enzymes together? If this is the case, it is possible that only one of these supplements was bothering you. You may want to introduce them one at a time, and then see how you feel. Many people take probiotics, digestive enzymes, and L-Glutamine to speed their recovery. If you have pancreatic insufficiency or bacterial overgrowth, it may take longer to recover with the supplements. Fortunately, your doctor can run tests to see if you have either of these conditions. After the tests, your doctor could advise you on which, if any, supplements to take. I hope this helps. Good luck,

-Brian
  • 0
Celiac Sprue
Multiple Food Allergies
Diagnosed June 2006
Stopped Eating June 2007
IV Nutrition: 6/27/07 - Present

#3 Nancym

 
Nancym

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,026 posts
 

Posted 05 February 2007 - 09:13 PM

capsule probiotics didn't do anything for me but Kefir sure does! I make it from coconut milk. I think it is responsible for my turn-around. I was still pretty bad after a year of gluten-free, better than I was before gluten-free but still having issues.
  • 0

#4 evie

 
evie

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 322 posts
 

Posted 05 February 2007 - 09:26 PM

capsule probiotics didn't do anything for me but Kefir sure does! I make it from coconut milk. I think it is responsible for my turn-around. I was still pretty bad after a year of gluten-free, better than I was before gluten-free but still having issues.


Nancy, could you tell me how to amke kefir from coconut milk. thank you so much! :blink: evie
  • 0

#5 Guest_cassidy_*

 
Guest_cassidy_*
  • Guests
 

Posted 06 February 2007 - 04:36 AM

I take digestive enzymes daily. I don't really have any problems now but when I was still a bit sick I could tell a difference when I went to the bathroom - things were formed much better when I was taking them. Now, if I have a stomach ache (unknown reason, not gluten) I take one and it usually helps, but then again maybe the stomach ache was going to go away anyway. I take digest gold by enzymedia (some brand like that).

I took probiotics in the beginning. I had a stool test that showed I had very little good bacteria and candida overgrowth. Since getting better I just drink kefir everyday. It has a lot of protein as well. The plain tastes like liquid sour cream and I couldn't do that so I do drink the flavored kind which tastes like liquid yogurt.

I guess it really depends on why you are still having days when you don't feel great. If you are ingesting gluten, then I don't think these things will help you much. If you are just still healing, then I would think they would help if you can tolerate them.
  • 0

#6 Corkdarrr

 
Corkdarrr

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 397 posts
 

Posted 06 February 2007 - 04:47 AM

I just started seeing a specialized nutritionist and he put me on, among other things, digestive enzymes.
He gave me a chart of when to take what, but he told me that you can't take enough digestive enzymes. And that if everyone would eat them like candy, we'd all feel a lot better.
It's been about two weeks and my stomach has definately felt a lot better overall...

Courtney
  • 0
Courtney - 25
Columbia, SC

Gluten-free since July 8, 2006
Casein-free since October 16, 2006
Went six weeks, and fell back into a deliciously painful world of cheese.
Casein-free (again and for serious this time) December 11, 2006
Stupid cheese addiction....2/07

Dx Hypothyroid in 1993
Dx Gluten & Casein Sensitive through Enterolab 10/06
Dx Adrenal *Exhaustion* 2/07




Originally from WI, I am still in denial over my newfound casein intolerance. I fear I will not be allowed back into the state if I can no longer eat cheese and drink milk. This could pose some trouble over holidays when I wish to visit my family. It also poses a problem involving the severe rage I feel when I have to throw away somebody's unfinished cheese sticks. That is so wrong.

#7 miamia

 
miamia

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 825 posts
 

Posted 06 February 2007 - 04:50 AM

Nancy, could you tell me how to amke kefir from coconut milk. thank you so much! :blink: evie

I second this question rinne- how do you make kefir from coconut milk?
Miamia
  • 0

#8 gfp

 
gfp

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,311 posts
 

Posted 06 February 2007 - 07:11 AM

A lot of the question depends on the rest of your diet.
If you drink unpasturised milk, eat unpasturised cheeses especially and raw meats then you are getting pro-biotics.
In most cases processing of food is what removes or kills the pro-biotics hence it depends on what you eat.

Humans developed eating raw eggs, milks and cheeses but the increasing processing of food removes them.
If you have lived without them then they will likely make a difference but whether this is good or bad in the short term isn't easy to determine.

In many cases because of our dependance on processed food our body cannot deal with the pro-biotics as they do their job... because we react more strongly to them than if we had consumed them naturally from birth....

One thing is for sure, infant mortality is lowerer and life expectancy higher in countries that eat raw meats, fish and unpasturised products.
I don't think this is necassarily a direct consequence of this but if it was so bad for you then you would hardly expect not to see higher life expectancy and lower infant mortality since it is usually the old or very young that are said to be at risk!
  • 0
Fere libenter homines id quod volunt credunt. (JC, De Bello Gallico Liber III/XVIII)

#9 jlr

 
jlr

    Community Member

  • Advanced Members
  • PipPipPip
  • 31 posts
 

Posted 06 February 2007 - 09:12 AM

Is there a recommended brand of digestive enzymes??

Thanks,
Janet
  • 0

#10 tummytroubles

 
tummytroubles

    New Community Member

  • Advanced Members
  • Pip
  • 22 posts
 

Posted 06 February 2007 - 09:29 AM

I've had trouble in the past with digestive enzymes. I rarely take them now. I have found that when I start to have small intestine pain, I go back to a very basic, easy to digest diet of fruits, veggies, lean meat, fish, & eggs, and brown rice/brown rice flour (not the starchy sweet brown rice). I make sure not to eat any preservatives or additives, and very few spices. I find that most of the gluten free items contain gums and starches that are pretty hard to digest when my system is sensitive. This helps me so much! I also avoid any foods that cause me to get congested (like corn, dairy) and foods that many people find harder to digest (nuts, beans, etc.). Then, when I have been feeling better for a while, I start to reintroduce harder to digest items. I always avoid gluten though :-)
  • 0

#11 Aerin328

 
Aerin328

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 126 posts
 

Posted 06 February 2007 - 03:54 PM

Did you take the probiotics and the enzymes together?


Brian, Yes, I took them together and decided "I don't know what it is but I'm not comfortable." lol Today I began digestive enzymes and I have ordered a probiotic.

I appreciate everyone's comments. This darn disease is so frustrating at times - always second guessing where the gluten could be, always second guessing potential negative affects of other foods and supplements, and the inevitable roller coaster that ensues as GI stability is chased. Hopefully the enzymes and probiotics will help ; meanwhile I appreciate the feedback anyone may give.

Thank you-
  • 0
Gluten free since 7/6/06. :)

Enterolab Results positive 8/24/06:
Antigliadin IgA 33 (Normal Range <10 Units)
Antitissue Transglutaminase IgA 16 Units (Normal Range <10 Units)
Anti-casein (cow’s milk) IgA antibody 21 Units (Normal Range <10 Units)
Serologic equivalent: HLA-DQ 3,1 (Subtype 8,5)

Blood test somewhat positive 7/6/06:
Antigliadin IgG (only) 57 (Normal range <20 units)

"Perspective is Reality"

#12 Nancym

 
Nancym

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,026 posts
 

Posted 06 February 2007 - 07:58 PM

Nancy, could you tell me how to amke kefir from coconut milk. thank you so much! :blink: evie

Same as you would from milk, just use coconut milk instead.

First thing to do is get the Kefir culture called "Kefir grains". Then you put them in a clean jar (I use 1 quart mason jars). Fill it up (leaving some air space at the top) with coconut milk (without preservatives). Drop in the kefir grains. I cover the top with a coffee filter held on with a rubber band. I put that into a cupboard at room temperature for 2-3 (or more days) until it tastes nice and tangy (using a clean spoon to taste. Then I strain out the "kefir grains" and refrigerate the kefir. The grains either go into a new batch right away or else I store them water in the fridge for awhile (not too long, they might die).

Be aware that the beasties give off gas so never put a tight lid on kefir, you could have a messy explosion if the gas can't escape. After it is done fermenting I put a loose mason jar lid on the jar and stick it in the fridge.

Here's a web site with more than you ever wanted to know about kefir. :) As far as getting the grains, I did a web search and found someone selling them.

http://users.sa.char.../kefirpage.html

Since I started using kefir my constant, not-quite-diarrhea cleared up entirely and if I miss too many days of kefir I start getting constipated. But it seems to go away on short order when I resume the kefir.
  • 0

#13 Marlene

 
Marlene

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 110 posts
 

Posted 08 February 2007 - 07:24 AM

I take a digestive enzyme from the NOW brand. They are really good but don't take too many or they will bother your stomach. I found that out the hard way. They have helped me immensely.

When it comes to probiotics, make sure you take one that is enteric coated. That means they will last long enough to get past the stomach acid and make it to the intestines where they can do what they are supposed to. I started taking one about 3 weeks ago called Acidophilus Ultra from New Root Herbal (or something very close to that). After being on them for about a week, I went through about 7 days of detox (as Brian mentioned in an earlier post). Now, however, I am starting to get the positive results and have such amazing bowel movements, I just about want to stand there and admire them!!! Sounds gross but I'm sure anyone with Celiac/ gluten intolerance can well appreciate what I am saying :D

Best wishes!
Marlene
  • 0

#14 Creative_Soul

 
Creative_Soul

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 150 posts
 

Posted 08 February 2007 - 08:16 AM

... After being on them for about a week, I went through about 7 days of detox (as Brian mentioned in an earlier post). Now, however, I am starting to get the positive results and have such amazing bowel movements, I just about want to stand there and admire them!!! Sounds gross but I'm sure anyone with Celiac/ gluten intolerance can well appreciate what I am saying :D

Best wishes!
Marlene


:lol: :lol: :lol:

Marlene, its good to know that I'm not the only one!!! I've been taking digestive enzymes and Acidophilus by Country Life for a couple of months, now, and I've been having the most beautiful BMs that I've found myself wanting to photograph them!!!

Yes, the first week was way hard for me too... I actually stopped taking them for a couple of days but then came here to see another thread like this one, where someone suggested to the poster to ride it out for a few more days as it was probably his system kicking the bad stuff out his system. Went back on and am loving the results! Aerin, please let us know if you find them helpful...best of luck!
  • 0
Gluten-free since 10/05 - Positive dietary response with Doctor's validation! - Debilitating migraines, constant dizziness and lightheadedness gone; anxiety & panic attacks, depression, agoraphobia and extreme exhaustion considerably lessoned

Dairy/Casein Intolerant
Soy, Cabbage, Sugar, Peanut, Shellfish, Caffeine, Egg, Potato and Tomato allergies / intolerances

Sporadic reactions to: Poultry

Avoiding all preservatives and additives

Also Multiple Chemical/Environmental Sensitivities

Mitral Valve Prolapse

Pulmonary Embolism - 1999

Dance, when you're broken open.
Dance, if you've torn the bandage off.
Dance in the middle of fighting.
Dance in your blood.
Dance, when you are perfectly free.

RUMI

#15 Mousy

 
Mousy

    New Community Member

  • Members
  • Pip
  • 1 posts
 

Posted 12 February 2007 - 06:25 AM

I have a few questions about coconut kefir:

Do you just use whole coconut milk from a can or do you use fresh coconuts to make your milk?

Is it okay to use kefir grains from raw milk?

Do you drink it plain or add other ingredients such as in a smoothie?

Will I notice a change in apprearance as it ferments?

Thanks. I am so excited to get started with the kefir.

Cathy



Same as you would from milk, just use coconut milk instead.

First thing to do is get the Kefir culture called "Kefir grains". Then you put them in a clean jar (I use 1 quart mason jars). Fill it up (leaving some air space at the top) with coconut milk (without preservatives). Drop in the kefir grains. I cover the top with a coffee filter held on with a rubber band. I put that into a cupboard at room temperature for 2-3 (or more days) until it tastes nice and tangy (using a clean spoon to taste. Then I strain out the "kefir grains" and refrigerate the kefir. The grains either go into a new batch right away or else I store them water in the fridge for awhile (not too long, they might die).

Be aware that the beasties give off gas so never put a tight lid on kefir, you could have a messy explosion if the gas can't escape. After it is done fermenting I put a loose mason jar lid on the jar and stick it in the fridge.

Here's a web site with more than you ever wanted to know about kefir. :) As far as getting the grains, I did a web search and found someone selling them.

http://users.sa.char.../kefirpage.html

Since I started using kefir my constant, not-quite-diarrhea cleared up entirely and if I miss too many days of kefir I start getting constipated. But it seems to go away on short order when I resume the kefir.


  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: