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Positive Igg, Me And My 4 Sons


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11 replies to this topic

#1 Happycat

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Posted 10 September 2004 - 01:00 PM

Hi, I'm just trying to sort out all my information. Doctors are not much help. We all had bloodwork done and here are the results. Me, Lisa 42, IgA normal range(don't have the number) IgG 62, anything over 20 is positive and over 30 strong positive. Joe 19, IgA deficient, IgG 115. Anthony 16, IgA normal range IgG 76. James 14, IgA normal, IgG 35. Christopher 12, Iga normal, IgG 26. We all have symptoms of one kind or another. Alot of autoimmune in our family. All but James have Thyroid antibodies and Christopher is on synthroid like me. Anthony and Christopher have Vitiligo(skin disease). My oldest son has been sick for about 4 1/2 years with reflux and stomach pain and burping constantly. The list goes on and on for all of us.

Anyway, I really just want to know how many of you went gluten-free with just a positive IgG and symptoms.

Thanks so much for the help!

Lisa
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#2 tarnalberry

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Posted 10 September 2004 - 01:47 PM

I only had a positive anti-reticulin IgG (not even the anti-gliandin one!) but between that and the positive response on the diet, I'm staying gluten-free.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#3 Happycat

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Posted 10 September 2004 - 03:15 PM

Thanks Tiffany! I needed to hear that. My oldest son and I are gluten-free. He went gluten-free 9 days ago, me 3 days ago. I just have to see about my younger ones. I have to talk to their doctor because I would like her support. I think my youngest is going to give me a problem but I'm sure once he feels better he'll come around. He is always running to the bathroom!

Thanks again,

Lisa
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#4 nicolesmom

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Posted 11 September 2004 - 05:31 AM

Hi Happycat,

My daughter also tested positive for only the Gliadin IgG. (69) There is celiac disease in my family so we went to a "specialist" all the docs said it is nothing-maybe IBS or stress. I tried the gluten-free diet, and after 1 week, she did notice an improvement in stomache aches and # of trips to the bathroom. Have you or your son noticed any improvement yet? From what I've read, if there is no damage or minimal damage to the intestines, improvement should be noticed quickly once beginning a gluten-free diet.

She spends about half the time with her dad, (we are divorced) and dad won't try the gluten-free without a doctor's recomendation. I understand that a person can be gluten sensitive, but not have full blown celiac disease. I'm wondering if having only IgG is the same as "early detection" In other words, if you're sensitive and continue to ingest gluten, are you at a higher risk to eventually damage your intestines and develop full blown celiac disease?

If you find any docs who are willing to treat or recommend a gluten-free diet for you or your children, I would love to know. My daughter-age 12, is sick everyday, but just tolerates it. On a scale from 1-10 she is at least a 6 everyday, but now only complains when she is around 8 and really can't function.

PS-I also had her tested by enterolab and their results stated that she is sensitive to gluten, but there is no damage based on the fact her absorption was normal.

I'm glad to know there are people in the same boat as we are!

Thanks!
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#5 gf4life

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Posted 11 September 2004 - 03:31 PM

All three of my kids came back positive on IgG only in the blood tests. After testing them with Enterolab (and they all came back positive on those tests) I put them on the diet. They are so much healthier now. They are all growing like weeds! Unstoppable! My daughter who has been in the same size for the past two years has now skipped a full size and isn't showing any signs of stopping! I really feel that improvement on the diet should be conscidered a positive test. Maybe someday the doctors will agree, until then we'll all just keep eating gluten-free!

God bless,
Mariann
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~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children

#6 jaycee30

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Posted 11 September 2004 - 07:33 PM

Lisa,

My only positive test was the AGA IgG...36.1, which was just barely positive. One doc said no gluten intolerance, another said I had to have a biopsy. I ignored both and just did what I knew I needed to do for myself.

I went gluten-free just a short while ago and its changed my whole life. I also have MS, and injesting anything that I am sensitive too just makes the whole auto-immune thing worse. I'm now pain free, "regular" for the first time in YEARS! and have much more energy.

Jen
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Ttg 0.9 (negative) AGA IGG 8.4 (negative) AGA IGA 36.1 (positive) Finally DX'd gluten intolerant 8/26/04

York Lab food sensitivity test confirmed Gluten intolerant as well as milk, soy, yeast, barley, wheat, tomatos and peppercorn

#7 Happycat

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Posted 12 September 2004 - 04:28 AM

Hi Everyone,

Thanks for all you responses. I really appreciate them. My oldest son is gluten-free with the doctors permission. Actually 2 different GI docs said trying the diet is just fine with them. He has so many symptoms and is IgA deficient which is common among celiacs. He has been on it for 1 and 1/2 weeks and he said he feels the same??? I think he has so much damage to his esophagus it's gonna take time, plus he has a sinus infection right now. (He had a negative biopsy in July)

I went gluten-free wednesday the 8th the day I found out I had a positive IgG. I was diagnosed with IBS 20 years ago. Autoimmune Thyroid 9 years ago, I found out because I had alopecia and they ran bloodwork. Thank God my hair grew back within a few months and that was that. I have had cankersores on and off as long as I can remember and I had a bone density test 2 years ago that said my hips were thinning?? A few years ago I had panic attacks and anxiety, that has gotten better. Right now I'm going through HELL with hives. I think it's autoimmune Uticaria, the doctors said that 30- 35% of people with autoimmune thyroid disease get this. It can last for weeks, months or years! So I will speak to my doctor but with everything I don't think she will have a problem with me going gluten-free. I also copyed many pages from the book Dangerous Grains and I am giving it to her and a few other doctors (GI, allergist, pediatrician). That was the best book, it made everything so easy to understand.

Nicolesmom, I have to call my pediatrician, I have a large group at the practice where we go but there is this really sweet doctor, young and I hope willing to listen. It says in the book Dangerous Grains that if you go on the gluten-free diet and get rid of the gluten antibodies you can also get rid of the thyroid antibodies. 3 of my four sons have thyroid antibodies. I think they are going gluten-free support or no support from the doctors. I think my 14 and 16 year old kids understand. Especially the one with vitiligo, he also has thyroid antibodies. He does not want anymore autoimmune diseases.

THANK YOU ALL!!!


Lisa
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#8 nicolesmom

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Posted 12 September 2004 - 11:43 AM

Hi Lisa,

Thanks so much for sharing! What exactly is vitiligo? My daughter has bumpy almost leathery skin on both of her upper arms. Has had it her whole life. One time she also had some kind of outbreak on the inside of her elbow, lasted for weeks. The school nurse kept sending her home, even though the doc said it was not contagious. We all called it "Oozy-goozy disease" just for fun, but I suspect it may have been dermatitis herpetiformis. However her total IgA was slightly below normal, but not low enough to be considered a true deficiency.

Would your pediatrician's office have any documentation, or could I contact them for information regarding followup and possible treatments for positive gliadin IgG? You can send it to yanksfan507@hotmail.com or post it here, if you're willing and it's OK with the office.Maybe I could share it with the docs in our office, I work in the building and I'm sure they would entertain and review any info I could give them coming from other physicians.

Thank you again!

Trudi
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#9 Happycat

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Posted 12 September 2004 - 12:12 PM

Hi Trudi,

Vitiligo is the "michael Jackson" disease. He has no pigment in blotches on his hands, arms, legs and a small patch on his face. It's not horrible yet. I just hope it doesn't get worse.

My pediatricians sent me to my GI for the tests for the boys. What I did was show them my prescription that the my doctor gave to me and she just copied it on presciptions for the kids. She does not appear to know much. She advised us to go to the GI. The (3rd) GI is stumped with my oldest son!! My plan is to show them the copies I made from Dangerous Grains and hope for the best. I really would love their support. There are so many doctors in the practice I just hope one will listen and be open minded. My oldest son sees an internist and the 3 younger ones still go to the pediatrician. Basically my oldest has been sent from one doctor to the next with no help. So I'm determined to help my oldest myself. I have learned so much by reading anything I can get my hands on and searching the internet. What I don't understand is why doctors don't do this when they have a patient with all the symptoms. Their attitude is you don't want this, the diet is too difficult. Well I can tell you I would rather the diet than a child that is sick every single day. He has severe damage to his esophagus already! Anyway I will keep you posted and if anything works with the doctors I will let you know.

Thanks so much ,

Lisa
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#10 Happycat

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Posted 12 September 2004 - 02:06 PM

Trudi,

I forgot to answer your question about your daughter's skin on her arms. I think it's keratosis polarias, (spelling?). My 14 year old has it. It's bumps on upper arms. My poor son has the worst case the doctor has ever seen, he has bumps on arms, legs and all over his chest. I'm hoping it's just hormones and it will get better. They gave him cream to use and of course there is no cure.

The doctor told me about 40% of children get this. It is very common.

Talk to you soon.

Lisa
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#11 nicolesmom

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Posted 14 September 2004 - 04:54 AM

Lisa,

Thanks for sharing all the info! God bless, and have a great day!

Trudi PS: I will keep you and your boys in my prayers!
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#12 Happycat

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Posted 14 September 2004 - 08:32 AM

Thanks Trudi we can use all the prayers we can get!!! I know we do sound a little pathetic but Thank God my kids are all HAPPY and well adjusted. We all manage to do what we have to and have fun too!

Thank so much for caring!

Lisa
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