Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

How Long Have U Had Celiac?


Kara B.

Recommended Posts

Kara B. Newbie

Hey

ive had celiac for about a year. i no peeple who have had it a long time i just dont no many teens w/ celiac. how long have u guys had celiac?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kassie Apprentice

1 year 1 month and 1 week. wow i didn't realize i actually now it from the exact day wierd :blink: lol

Link to comment
Share on other sites
ErraticBinxie Explorer

I have been gluten free for about 10 years now.

Link to comment
Share on other sites
  • 1 month later...
.paulaa Newbie

i found out i had celiac 5 days ago.

believe it or not.

lol

Link to comment
Share on other sites
Ashley Enthusiast

I've had Celiac for 2 years on the 15th of April.

-Ash

Link to comment
Share on other sites
  • 2 weeks later...
Paris96 Newbie

I JUST FOUND OUT 2-3 WEEKS AGO THE HARD WAY IF U KNOW WHAT I MEAN! I JUST SAW THE NUTRIONULIST YESTERDAY SO BASSICLY 2 DAYS! I HATE IT!!!!! I WAS REALLY SAD AT FIRST :( I DONT KNOW ANYONE WITH CELIAC DISEASE AND I CANT TALK TO MY FRIENDS CUZ THEY DONT UNDERSTAND HOW HARD IT IS!!!!!

Link to comment
Share on other sites
Speedy Newbie

Ive had it about 18 years, pretty much since i could start eating solid foods...thats when i was diagnosed, so about since i was about a year old

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
DestinyLeah Apprentice

I got my official diagnosis this morning.

My doctor said that with the damage I have and my medical records, I have had it my whole life, and it nearly killed me.

I was really surprised to find so much support on the web, though. It is making it easier to be gluten free, which I have had to be since I was released from the hospital a couple of months ago.

Link to comment
Share on other sites
Guest Damo

You'd have to ask my intestines.

I was unofficially diagnosed a month and a half ago but only officially from biopsy results a week ago. Judging by the fact that I haven't put on any significant weight for 5 years, and have had on-and-off low iron for about 3 years, I'd say it'd be at least that long sinse I've had it. Those are my only symptoms which is good in a way but it also means my diagnosis has been postponed.

Link to comment
Share on other sites
  • 2 months later...
lex4850 Newbie

a little longer than two years...

Link to comment
Share on other sites
blueeyedmanda Community Regular

Coming up on 3 years

Link to comment
Share on other sites
Ed-G Newbie

I had celiac almost all my life -- nearly 50 years. That's why I refer to myself as a banana baby. Way back then you eliminated everything and were started on bananas, and gradually added things.

Ed in MD

Link to comment
Share on other sites
Crystalkd Contributor

About three weeks ago although I've been on the diet for 5 weeks. I've prob. had symtoms all my life but was told it was the Cerebral Palsy. I started having unexplained problems in 95 and my first bout of low iron in 2000. I'd say I've been sytomatic for 13 years it just got to a breaking point 6 months ago.

Link to comment
Share on other sites
kml55 Rookie

I have had celiac officially for about 3 years..always had stomach aches though since ealry childhood, so probably longer.

at first it was really hard, but each day it gets easier.

I am a nutrition major in college, so i hope that one day i can help people the way i was helped.

Link to comment
Share on other sites
Lollipop Newbie

I am on my 6th week on my trial diet and it seems to be helping. I'm going on my first long trip soon. I'm not sure how much or what I need to bring. Any advice?

Link to comment
Share on other sites
the-elmel Newbie

I was diagnosed in August of 2001. ;)

Link to comment
Share on other sites
  • 2 weeks later...
Alexandra  Rosenberg Rookie

about 6 months since I was diagnosed.

Link to comment
Share on other sites
flagbabyds Collaborator

15 years and 3 monts and 20 days (approximately :D)

Link to comment
Share on other sites
taylor- Rookie

approx. 17 years. I've had it since I was 1 1/2

Link to comment
Share on other sites
flagbabyds Collaborator
approx. 17 years. I've had it since I was 1 1/2

hey you're like me! i'm just a year behind you lol. i was diagnosed at 20 months so about 1 1/2 as well :D

Link to comment
Share on other sites
pedro Explorer

Hi.

I been having symptoms all my life, since I was a kid, and I found out about Celiac at the age of 39.

The worse and more severe symptoms have been with me for the past 20 years.

Best regards to everyone.

Link to comment
Share on other sites
little d Enthusiast

I'm not "offically diagnosed" but I found out about Celiac last year from my sister who has the same symptoms but affecting her differantly than me.

donna

Link to comment
Share on other sites
  • 2 months later...
Guest Joshua

I have only known for one month. Some of my symptoms are definately those of celiac. I tested positive for the genetic test so no gluten for life they say. :unsure:

Link to comment
Share on other sites
celiacvictim123 Newbie

hi i am only 12 but i want to know more about celiac and i have it :):huh:

Link to comment
Share on other sites
Guest Joshua

celiacvictim123 how long have u had it.

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GardeningForHealth replied to GardeningForHealth's topic in Coping with Celiac Disease
      9

      10 years later, my celiac is progressing

    2. - GardeningForHealth replied to GardeningForHealth's topic in Coping with Celiac Disease
      9

      10 years later, my celiac is progressing

    3. - sc'Que? commented on Scott Adams's article in Summer 2024 Issue
      1

      Speculating on Benjamin Franklin's Health: Could He Have Had Celiac Disease?

    4. - TessaBaker replied to MiriamW's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      54

      Hair loss

    5. - Celiac16 replied to Sultana's topic in Related Issues & Disorders
      3

      Thiamine supplementation


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,992
    • Most Online (within 30 mins)
      7,748

    Celiac Family
    Newest Member
    Celiac Family
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • GardeningForHealth
      As a side note, it seems that medical science has evolved in the past 5-6 years regarding Celiac Disease, and I am now catching up. It seems that anything that disrupts the microbiome sufficiently enough can--in genetically susceptible individuals--lead to Celiac Disease. I have been reading now that antibiotics, excessive simple carbohydrates such as refined sugars and starches, the manner of birth such as C-section vs vaginal delivery, the diversity of one's diet, the presence of certain bacteria or viruses, can all contribute to microbiome dysbiosis, which can lead to Celiac. This is fascinating research.
    • GardeningForHealth
      I mostly eat healthy. My diet has varied over the past 10 years but mostly consisted of meals I cooked at home made from scratch. Ingredients I used over the years include (not in order): non-wheat grains such as teff, sorghum, millet, and eggs, butter, cheese, some milk, meat (poultry, red meat, but very little processed meat), gluten-free baked bread (mostly Canyon Bakehouse brand), vegetables, fruits, nuts, legumes, peanuts, chocolate (not in the past 6 months). However, the mistakes I made in my diet are that I consumed too much sugar and carbohydrates from gluten-free baked goods that I baked myself at home such as gluten-free dessert items, and also I ate pretty much the same exact meals over and over, so a great lack of diversity in what I ate. I got lazy. I think this messed up my microbiome. The meals I ate were mostly healthy though. I always made sure to eat vegetables and fruits on a daily basis.  I have checked for nutrient deficiencies over the years and I am sometimes low in Vitamin D. I started supplementing it after that. What concerns me is the progressive nature of the food intolerances, which indicates the gut is not healing and has been leaking all along. 
    • TessaBaker
      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
×
×
  • Create New...