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Cocoa ?


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14 replies to this topic

#1 georgie

 
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Posted 07 February 2007 - 08:13 PM

Would a sprinkle of cocoa on my coffee have Glutened me ? :blink: I can't think of anything else that could have done it. I feel really sick and have had cramping and D for 2 days. :(
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Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

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#2 larry mac

 
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Posted 07 February 2007 - 08:56 PM

Would a sprinkle of cocoa on my coffee have Glutened me?....


g,

I haven't heard about cocoa containing gluten. Was it just regular cocoa powder or some kind of cocoa mix, like hot chocolate or something.

Also, I'm fairly new (7 weeks), and was curious about that "challenge diet". Is that something a gastroenterologist gives you? And if you fail it he diagnoses you with celiac despite a negative blood test and no biopsy? Just wondering. Oh sorry, it says gluten intolerant. That's a different thing I guess. Does that mean you can eat gluten if you want to sometimes?

best regards, lm
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gluten-free 12-18-06

colonoscopy, upper GI
blood, urine, stool tests, prometheus panel
positive endoscopy/positive duodenal biopsies (severe villous atrophy, high intraepithelial lympocytes)
diagnosed celiac disease by Gastroenterologist Andrew R. Gottesman, 12-18-06

"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me

Beware the chocolate of Chiapa


#3 Ursa Major

 
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Posted 07 February 2007 - 09:11 PM

Georgie, cocoa is usually gluten-free, but as Larry mentioned, hot chocolate mix may not be.

Larry, some celiac specialists are doubting that there is a difference in celiac disease and gluten intolerance, and want the distinction removed. Celiac disease (destroyed villi) is just one possible form of gluten intolerance, there are many other ways it can manifest. Such as DH, or mental illness for instance.

And no, if you're gluten intolerant as opposed to being officially diagnosed with celiac disease, you're still not allowed to eat any gluten at all. Because it makes you just as sick, even though it may not destroy your villi (it may just destroy your brain, or wreak havoc with your neural pathways, making you unable to walk or use your hands, for instance).
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#4 georgie

 
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Posted 07 February 2007 - 09:47 PM

I asked my Dr what was the difference between GI and Celiac and she held her hand up and indicated a gap of 1mm! I think I have Celiac but as a Gastro hasn't dx me - I can't officially be called that ! Not here anyway. Our state has a Society you can join but you need a letter from a Gastro Dr before you can. They do not recognise the Gluten Challenge Diet. And I am NOT going back to Gluten just for a colonoscopy and Gastro Dr dx.

I have had a skin rash too - that resembled mild DH, and which disappeared after going gluten-free and which gets itchy when I am Glutened.

I have so much pain at the moment and can only think that the cocoa was a drinking choc blend. It was sweet - now I think of it. Ouch - won't do that again!
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Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#5 Saz

 
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Posted 08 February 2007 - 05:11 AM

Where abouts did you get the coffee? Mcdonalds capuinchino have gluten in the chocolate powder, I'm not sure about the Mccafe one but would asume it is the same. Also the powder that Gloria Jeans use on their capuinchino has gluten in it, but you can ask for it without.

Feel better soon.
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#6 JayT

 
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Posted 08 February 2007 - 11:23 AM

I think just plain cocoa does not contain any gluten. I must agree with the above comments that if it was a mixture of a chocolate powder with various ingredients then your illness may be a result of it.
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Dx and Gluten Free since 1996

#7 georgie

 
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Posted 08 February 2007 - 11:56 AM

Where abouts did you get the coffee?

It was a trendy cafe. I asked if their risotto was gluten-free and they told me rice had Gluten :lol: so I don't have much confidence now in the coffee ! I had my risotto at a proper Italian restuarant just down the road, and ALL their risottos are made fresh and are gluten-free. tip - eat Italian. You are not made to feel a nuisance. The waitress at the door knew all the risottos were gluten-free. And it was the same price as that cafe that didn't know rice was gluten-free!
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Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#8 larry mac

 
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Posted 08 February 2007 - 05:25 PM

.....I had my risotto at a proper Italian restuarant just down the road, and ALL their risottos are made fresh and are gluten-free. tip - eat Italian.... The waitress at the door knew all the risottos were gluten-free....


g,

I've heard of risotto before but honestly didn't know what it was. I vaguely thought it was couscous (another dish I've never had) or something like that. We don't go out to eat much, even less now. I always got lasagna or chicken florentine.

I'll definately have to try that risotto, it sounds good.

best regards, lm
  • 0

gluten-free 12-18-06

colonoscopy, upper GI
blood, urine, stool tests, prometheus panel
positive endoscopy/positive duodenal biopsies (severe villous atrophy, high intraepithelial lympocytes)
diagnosed celiac disease by Gastroenterologist Andrew R. Gottesman, 12-18-06

"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me

Beware the chocolate of Chiapa


#9 georgie

 
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Posted 08 February 2007 - 07:57 PM

I love risottos as my throat is still constricted by my enlarged Thyroid. Hubbie does them. He uses his own chicken stock, and you simmer the rice in that slowly and keep adding more until its right - so you need to stand over it abit and keep stirring and adding stock.Then you just add meat , veges as you like. I had a lovely roasted pumpkin , green peas , spinach, onion and parmasan cheese one the other day. recipezaar has good authentic recipes. As Celiac is so well recognised in Italy - if you are looking for a place to eat anytime - head to an authentic Italian Ristorante!
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Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#10 flowergirl

 
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Posted 08 February 2007 - 10:07 PM

Hi georgie, I'm sorry to hear to are feeling bad. I get glutened by any chocolate but two days ago I visited the Gluten free shop in Ormond that you suggested on the Aussie/NZ thread. I had two rows of a dark chocolate with chili they sell (threw wrapper away sadly :( ) and had no symptoms. It is the first time I've had chocolate in months and I'm quite glad there is at least something I can have. :rolleyes: My diet is already very restrictive as it is.
  • 0
Gluten intolerant - self diagnosed 2007 (not willing to do gluten challenge) and anemic
no dairy, soy, legumes, eggs, sugar, chocolate
no baked and processed foods (also gluten-free bakery) and high GI (due to hypoglycemia)
enjoy brown rice, buckwheat, quinoa and polenta instead
neurological symptoms flare up when glutened and in times of stress
following paleo diet, lots of raw fruit and veg, omega 3 oils, nuts

I feel heathy and able to function for the first time in my life. Thank God.
Organic food gives a great advantage.
Kefir rules!

On a mission to get rid of Candida overgrowth after a stressful event dropped my immune system. On a strict anti-candida diet using herbs and natural remedies. No meds or drugs to make it worse thanks.

http://www.gilbertss...com/candida.php
http://www.candidasu...rg/candida.html

#11 georgie

 
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Posted 09 February 2007 - 12:32 AM

Thats great news. Was it nice with the chilli ? I do mail orders with that shop. They have drinking chocolate powder so may carry my own to cafes in the future :lol: I am about to go dairy free for a trial and am dreading it - so glad that you thought the choc was OK ( as I see you are dairy free too)
  • 0


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#12 flowergirl

 
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Posted 09 February 2007 - 01:25 PM

Yes, I can't tolerate dairy at the moment but I'm planning on re-introducing it when I feel my gut has healed. Therefore I avoid milk chocolate and eat dark chocolate instead. I have a feeling that it is the soy (from the lechithin) in the dairy-free chocolates that I've been trying in the past that makes me sick. The chili chocolate has very basic ingredients like cocoa mass, cocoa butter, lechithin (from sunflower) and cane suger (if I remember correctly). B) It is devine though I only take 4 blocks a day. :D

Best wishes with going dairy free. I hope it makes a world of difference in your health.
Flowergirl
  • 0
Gluten intolerant - self diagnosed 2007 (not willing to do gluten challenge) and anemic
no dairy, soy, legumes, eggs, sugar, chocolate
no baked and processed foods (also gluten-free bakery) and high GI (due to hypoglycemia)
enjoy brown rice, buckwheat, quinoa and polenta instead
neurological symptoms flare up when glutened and in times of stress
following paleo diet, lots of raw fruit and veg, omega 3 oils, nuts

I feel heathy and able to function for the first time in my life. Thank God.
Organic food gives a great advantage.
Kefir rules!

On a mission to get rid of Candida overgrowth after a stressful event dropped my immune system. On a strict anti-candida diet using herbs and natural remedies. No meds or drugs to make it worse thanks.

http://www.gilbertss...com/candida.php
http://www.candidasu...rg/candida.html

#13 georgie

 
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Posted 12 February 2007 - 12:55 AM

Thanks ! 2 days now and I start DF. I just have realised that means black coffee :blink: Is it common to have healing and go back to dairy?
  • 0


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#14 jnclelland

 
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Posted 12 February 2007 - 09:37 AM

Thanks ! 2 days now and I start DF. I just have realised that means black coffee :blink: Is it common to have healing and go back to dairy?



:) Giving up half and half in my coffee was the hardest thing about going dairy-free to me! I can't stand black coffee, but I've found some decent substitutes. If you can tolerate soy, Silk makes a soy-based creamer that is quite good. Unfortunately for me, not long after discovering it, I realized I had a problem with soy too. :angry: So now I make my own lattes with hazelnut milk, and they're yummy! I asked for a cappucino machine for Christmas so I could make my own at home (and hazelnut milk foams up quite nicely!), but when I'm at work I just go buy an espresso at the coffee shop across the way, microwave some hazlenut milk, and mix it all up. Kind of a pain, but better than going without my coffee! ;)

Jeanne
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#15 Felidae

 
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Posted 12 February 2007 - 10:14 AM

Thanks ! 2 days now and I start DF. I just have realised that means black coffee :blink: Is it common to have healing and go back to dairy?

After one year of being gluten free I could have dairy again. So, there may be hope for you too.
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Tapioca intolerant
First cousin dx'd with Celiac Disease
Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.
Gluten-free since June 2005
Dx with IBS February 2005
Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)




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