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I Did Something Stupid....


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17 replies to this topic

#1 JerryK

 
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Posted 12 February 2007 - 02:03 PM

Sigh...severe rookie mistake....

I fell for the label on one of those specialized loafs of breads..."spelt, a natural alternative to wheat".

Spelt was one of those grains that I remember being on one of those "safe grain" lists..right?..right!.(these are the voices in my head at the store)

I was so proud of "my find" and I raced home and made a piece of toast to check it out. Damn it tasted good for "gluten free bread".

THEN I decided to look in "Gluten Free for Dummies"(which I was) the author lists spelt as a sneaky "alias for wheat". Crap did I feel foolish.

That sucker shot thru me like a greased pig at the county fair...

Let the chastising begin!! B)
  • 0
Dental Enamel Defects
Gastro symptoms
Positive Dietary Response
Enterolab Antigliadin IgA positive 12/06
Transglutaminase IgA Positive
Blood TG IgA Negative 2/07
HLA-DQ 3,1 (Subtype 7,5)
Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.
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#2 chocolatelover

 
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Posted 12 February 2007 - 02:15 PM

Hey, don't beat yourself up too badly...I had to ask a friend who is a veteran at this gluten free stuff, because I had read mixed things about spelt. I think it's an honest mistake, and you certainly will never forget it!! I figure every mistake we make like this is just one more to put down as a good old fashioned learning experience. :lol:
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Dx'd with lymphocytic colitis 1/07
Dx'd by Enterolab 3/07--+IgA, +Ttg, DQ2 and DQ8
Dx'd celiac by Dr. Lewey 4/07--without +blood or biopsy
gluten-free 3/7/07

#3 jerseyangel

 
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Posted 12 February 2007 - 02:18 PM

Yea, they put on the label that it's an "alternative to wheat" because some people with an allergy to wheat can safely eat it.

It's not safe for us, though :(

You live and learn ;)
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#4 JerryK

 
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Posted 12 February 2007 - 02:22 PM

Yea, they put on the label that it's an "alternative to wheat" because some people with an allergy to wheat can safely eat it.

It's not safe for us, though :(

You live and learn ;)


Yah...glad I only ate one slice....it seems like my body is more sensitive to it now....
hits the reject button in a hurry...
  • 0
Dental Enamel Defects
Gastro symptoms
Positive Dietary Response
Enterolab Antigliadin IgA positive 12/06
Transglutaminase IgA Positive
Blood TG IgA Negative 2/07
HLA-DQ 3,1 (Subtype 7,5)
Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.
You’ve already won the lottery! Enjoy it!

#5 Ursa Major

 
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Posted 12 February 2007 - 02:54 PM

I hope you feel better soon! Anyway, you'll never forget that spelt is wheat, I'm sure.

I went to a health-food store in Florida a year ago, and told the sales lady that I have celiac disease and wanted to buy some flour I could use. She told me that spelt was safe for celiacs! Fortunately, even though I wasn't sure then, I also wasn't convinced it was safe, and didn't buy it. Good thing, too. I wonder how many people are misled by that lady.
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#6 Slackermommy

 
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Posted 12 February 2007 - 03:30 PM

I did a stupid thing today too. I know the chickens at Sam's Club are gluten free, and today they had ribs out. No label like the chicken though. The guy who runs the meat dept was right there, so I asked if they were gluten free too.

He asked some other guy to check the package, and he came back and told me it was gluten free and yeast free too.

I believed him.

So my slamming headache and nausea are either from them or the GI bug that is going around.

I am starting to realize that people will say something IS gluten free if they aren't sure, instead of saying that they aren't sure.


Sigh.
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Enterolab results confirmed suspicions on Jan. 29th 2007

#7 JerryK

 
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Posted 12 February 2007 - 03:49 PM

I hope you feel better soon! Anyway, you'll never forget that spelt is wheat, I'm sure.

I went to a health-food store in Florida a year ago, and told the sales lady that I have celiac disease and wanted to buy some flour I could use. She told me that spelt was safe for celiacs! Fortunately, even though I wasn't sure then, I also wasn't convinced it was safe, and didn't buy it. Good thing, too. I wonder how many people are misled by that lady.


You are right..spelt is ingrained in my memory. Funny thing is, I don't get much symptoms...
just whoooomp and it's outta here. My body doesn't even bother with cramps or anything <_<
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Dental Enamel Defects
Gastro symptoms
Positive Dietary Response
Enterolab Antigliadin IgA positive 12/06
Transglutaminase IgA Positive
Blood TG IgA Negative 2/07
HLA-DQ 3,1 (Subtype 7,5)
Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.
You’ve already won the lottery! Enjoy it!

#8 Lisa

 
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Posted 12 February 2007 - 03:52 PM

Jerry:

Ya sure you ain't a Southern Boy. We sure have alot of greased pigs down here. We catch'em and cook'em.

When I left the city and moved here where my husband grew up, we were invited to a Pig Pick'in.

I asked what was that, and said "I don't think sooo"!! Ever been to a Turkey Shoot? I thought they shot turkeys.

Never-the-less, the learning curve is steep. We'll keep you on track. Hope you feel better by Saturday.

Lisa
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#9 Ruth52

 
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Posted 12 February 2007 - 04:01 PM

I was also caught with the Spelt bread thing. I just wanted to have a piece of toast and I thought I had made the best find of my life.

Unfortunately for me it was only after the second piece that the folly of my eating really hit me - never again!

Glad to know I'm not the only one.

Ruth
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#10 JerryK

 
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Posted 12 February 2007 - 04:02 PM

Jerry:

Ya sure you ain't a Southern Boy. We sure have alot of greased pigs down here. We catch'em and cook'em.

When I left the city and moved here where my husband grew up, we were invited to a Pig Pick'in.

I asked what was that, and said "I don't think sooo"!! Ever been to a Turkey Shoot? I thought they shot turkeys.

Never-the-less, the learning curve is steep. We'll keep you on track. Hope you feel better by Saturday.

Lisa


We have greased pigs here in Oregon (Or EE Gun..not..Or EE Gone). Went Chicken pickin...once...never again. I'm learning to never assume anything...
After all this my tests will probably come out negative and they will tell me there is nothing wrong
with me :P
  • 0
Dental Enamel Defects
Gastro symptoms
Positive Dietary Response
Enterolab Antigliadin IgA positive 12/06
Transglutaminase IgA Positive
Blood TG IgA Negative 2/07
HLA-DQ 3,1 (Subtype 7,5)
Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.
You’ve already won the lottery! Enjoy it!

#11 darlindeb25

 
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Posted 12 February 2007 - 04:21 PM

After all this my tests will probably come out negative and they will tell me there is nothing wrong
with me


Awwwwwwwww Jerry, I think the spelt already proved you can't have gluten!!!!!
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#12 jerseyangel

 
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Posted 12 February 2007 - 04:29 PM

I have a spelt story:

A couple months ago, I was watching QVC :ph34r: , and the host was presenting a waffle iron. He said that if you were gluten intolerant, you could always use spelt flour instead to make your waffles.

Well, of course I had to email him and politely set him straight! So, I did, and felt much better :P

I had all but forgotten about it when about 3 weeks later, I got an email from the host saying his wife actually had a wheat allergy and that's why he said it. Now that he knew the difference (thanks to me) , he said he wouldn't make the same mistake again.

Just thought I'd share--a lot of people out there get confused about these things. We always have to be on the ball :D
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#13 zansu

 
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Posted 12 February 2007 - 07:19 PM

This was how I (inadvertently) did my gluten challenge :rolleyes: !!! My wheat allergy friend did it to me!
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#14 lonewolf

 
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Posted 12 February 2007 - 07:34 PM

I asked what was that, and said "I don't think sooo"!! Ever been to a Turkey Shoot? I thought they shot turkeys.


Wait, what am I missing? What's a turkey shoot?

Jerry - you're in good company with the spelt. I thought it was okay for me too after avoiding wheat for about 7 years. It just about killed me.
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Liz

Started Specific Carbohydrate Diet on 8-16-09 because son was diagnosed with Ulcerative Colitis and want to give him moral support.

Diagnosed with Minimal Change Nephrotic Syndrome in 2003. Discovered that going completely gluten-free put me in remission.

I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Psalms 27:13

#15 miles2go

 
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Posted 12 February 2007 - 07:36 PM

And don't forget that kamut is an another ancient form of wheat. I was lucky enough to have come across Jax Peters Lowell's advice to "run, not walk" to a nutritionist who gently informed me of those facts even though I wasn't and haven't been medically diagnosed as celiac...although I've done plenty of other stupid things since, not all related to celiac. ;) I've heard others say in line at the marketplace at work that they're gluten-free and then go on to talk about how they're glad they have their spelt bread. I just don't know what to say to folks like that in a fleeting moment of a lunch half-hour's time.
Sounds like you're feeling better, hope that's the case!
Margaret
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