Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

You Are Great People
0

4 posts in this topic

I've been trying to adhere to a gluten-free for two months after it was suggested by a dietician. The information on this site is just great, I've learned so much and it will be a great help. I think I'm going to do the Enteron tests and see what they show - I think I'd slug a doctor who wanted me to go back on gluten so they could tell for sure, I've felt increasingly worse for 23 years (51 now), I don't ever want to take a step backwards.

I'm amazed at the number of people describing situations similar to mine:

told it was IBS

depression

fatigue

doctors that don't listen

joint pain

sleep problems

Been looking for a miracle for years, maybe I've found it.

Do you people eat at restaurants - or just at home?

I think giving up pizza and deserts is the toughest for me so far - my Mom is/was a fantastic baker, a bakery nearby makes eclairs so good I salivate at the thought of them - I'm really going to have to learn to bake.

Reading the posts at this site is a great help - thanks again

Phil the Scrawny One

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Phil:

I think you have made a wonderful decision by taking charge of your health!

I also think Enterolab is a great idea :) . That is how I was diagnosed after suffering for years only be told I had IBS.

I eat at home most of the time. If I have family gathering I prepare mine and my daughters food and we take it with us. We eat out about once a week. I only go to places I KNOW has a gluten-free menu and food that I know I can tolerate by trial and error. I eat at Wendy's, Chick-Fil-A and Outback Steakhouse. I have not had any trouble with any of these places other than the salad dressing at Outback, it was just a little to spicy for me :D If you have an Outback near you they have an AWESOME gluten-free brownie dessert! It is YUMMY!!!!

0

Share this post


Link to post
Share on other sites

Hi, Phil!

Let's hear it for forward progress! Like you, I feel like maybe I have finally found the key that will allow me to unlock my full potential as a human being, and no one could pay me enough to convince me to go back on gluten for testing!

Right now I eat exclusively at home except when I am traveling, and even then I take as much food with me as possible. Either I have gotten EXTREMELY sensitive to gluten in the past month or so, or I have some temporary intolerances (besides lactose) that I haven't figured out yet. I haven't found a good pizza recipe yet, but I have found a couple of delicious cookies. One is a (vegan!) gingerbread cookie; the recipe is here. The other is a fruit-filled bar cookie with a crumble topping that I adapted myself from a regular recipe, and I will post the recipe as soon as I get a solid block of computer time without my baby trying to climb on my lap! These cookies really help me feel less deprived of the good things in life.

I hope you find some emotionally satisfying foods in short order, and that you continue to feel better each day!

0

Share this post


Link to post
Share on other sites

I feel just as you do Phil, there are great people on these boards that can help with the bad and share in the good. I think being a person that has gone through what we have really adds to our overall character! :wacko::P

Seriously, what doesn't kill you...o.k., it almost killed us all, but we are still typing so...

Glad your here, glad we are all here and can help each other.

As far as restaurants go, I have gone out to eat only a couple of times since going gluten-free, but I'm still not sure what is doing what yet. My immune system is so shot that it is hard for me to tell when I have a virus or if it is gluten that is causing suffering. It also depends on how desperate you are to feel better, I am limiting any potential mistakes because I can't live like this any longer. If your not too bad off and the risk is worth it, then o.k., but there is always the chance that even if you have eaten there before there will be cross contamination from a cook or whatever...it is tough, no way around it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,667
    • Total Posts
      921,670
  • Topics

  • Posts

    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,666
    • Most Online
      3,093

    Newest Member
    epalmer9
    Joined