Help
Hi again.
Has anyone tried Pocono (brand) Kasha buckwheat? It claims it's gluten-free; their web-site claims dedicated lines and all but I'm always nervous about eating a new thing. I'd just like to add another grain besides rice to my diet. Any advice is greatly appreciated. I have the "organic roasted buckwheat groats- cracked granulation".
Thank you!
lisa
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Pocono Buckwheat- Anyone Tried It?
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#2
ravenwoodglass 
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Posted 19 February 2007 - 09:40 AM
I eat their buckwheat all the time. My favorite is their cream of buckwheat, it tastes very close to cream of wheat and is pretty high in protein. They are a good company with a great product line.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#3
oceangirl
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Posted 20 February 2007 - 10:23 AM
ravenwoodglass, on Feb 19 2007, 12:40 PM, said:
I eat their buckwheat all the time. My favorite is their cream of buckwheat, it tastes very close to cream of wheat and is pretty high in protein. They are a good company with a great product line.
Ravenwoodglass,
Thank you so much! When I get over this last glutening, I'm going to try it!
lisa
#4
jayhawkmom
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Posted 20 February 2007 - 04:30 PM
I also LOVE the Cream of Buckwheat!! Very tasty!! I eat it for breakfast often!! =)
Jayhawkmom -
Mom of three....
Jay - 11
Bean - 8
Ian - 3
Mom of three....
Jay - 11
Bean - 8
Ian - 3
#6
ravenwoodglass
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- Joined: 17-April 04
Posted 21 February 2007 - 06:19 AM
oceangirl, on Feb 20 2007, 10:23 AM, said:
Ravenwoodglass,
Thank you so much! When I get over this last glutening, I'm going to try it!
lisa
Thank you so much! When I get over this last glutening, I'm going to try it!
lisa
If you tummy is still a bit off and you need some comfort food the cereal with some cinnamon can be nourishing and easy to digest, sometimes that's all I can eat after a day spent in the throne room. If all you have is the kasha with the larger grains a couple seconds whir in the blender or a food processer would give you the consistency for the cereal. I hope you feel better soon.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#7
oceangirl
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Posted 22 February 2007 - 11:05 AM
ravenwoodglass, on Feb 21 2007, 09:19 AM, said:
If you tummy is still a bit off and you need some comfort food the cereal with some cinnamon can be nourishing and easy to digest, sometimes that's all I can eat after a day spent in the throne room. If all you have is the kasha with the larger grains a couple seconds whir in the blender or a food processer would give you the consistency for the cereal. I hope you feel better soon.
Thank you, Ravenwoodglass. It's nice to hear a few words of encouragement as I am having my first "sustained" glutening, (meaning I can't seem to get it to stop even as I eliminate any and every suspect thing) in awhile. This is the sixth day of unabating symptoms and even worsening symptoms and I'm really fed up. Sometimes I think it'd be easier just to remove my stupid intestines altogether, but I'll try not to dwell on that. Thank you for your help!
lisa
#8
ravenwoodglass
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Posted 22 February 2007 - 12:18 PM
oceangirl, on Feb 22 2007, 11:05 AM, said:
Thank you, Ravenwoodglass. It's nice to hear a few words of encouragement as I am having my first "sustained" glutening, (meaning I can't seem to get it to stop even as I eliminate any and every suspect thing) in awhile. This is the sixth day of unabating symptoms and even worsening symptoms and I'm really fed up. Sometimes I think it'd be easier just to remove my stupid intestines altogether, but I'll try not to dwell on that. Thank you for your help!
lisa
lisa
After that length of time unless you are sure you are reglutening yourself you may want to call the doctor and submit some stool samples. It is possible you may have some form of food poisoning. You haven't been eating any of those recalled Pnut butters have you? I managed with a case of salmonella once for almost 3 weeks cause I thought it was my usual stuff just a worse case. Always better to be safe than sorry if you can. Meanwhile you may want to do a modified Brat diet that I call the BRA, bananas, white UNFORTIFIED plain rice and applesauce with no additives or homemade. I really hope you feel better soon.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#9
oceangirl
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Posted 22 February 2007 - 01:16 PM
ravenwoodglass, on Feb 22 2007, 03:18 PM, said:
After that length of time unless you are sure you are reglutening yourself you may want to call the doctor and submit some stool samples. It is possible you may have some form of food poisoning. You haven't been eating any of those recalled Pnut butters have you? I managed with a case of salmonella once for almost 3 weeks cause I thought it was my usual stuff just a worse case. Always better to be safe than sorry if you can. Meanwhile you may want to do a modified Brat diet that I call the BRA, bananas, white UNFORTIFIED plain rice and applesauce with no additives or homemade. I really hope you feel better soon.
Ravenwoodglass,
Thank you again. I'm pretty sure this is gluten. I've also had salmonella and it was NO picnic. Unlike many with gluten issues, I get severe bloat with a lot of pain, CONSTIPATION alternating (SOMETIMES) with D, low back pain, much intestinal pain, red, burning eyes and just generally feel like I can't leave the the house 'cause I don't know when I WILL need to run to the bathroom. The pain is also worse at night so sleeping doesn't happen. I'm sure you're delighted to hear all this... as I drone on..... I also am suspicious that my fluctuating hormonal levels are exacerbating symptoms as I'm 49 and things are changing. But, you're right, if I still feel lousy tomorrow I may cave and call my doctor. Sigh...
Thank you so much again,
lisa
#10
ravenwoodglass
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Posted 22 February 2007 - 02:21 PM
oceangirl, on Feb 22 2007, 01:16 PM, said:
Ravenwoodglass,
Thank you again. I'm pretty sure this is gluten. I've also had salmonella and it was NO picnic. Unlike many with gluten issues, I get severe bloat with a lot of pain, CONSTIPATION alternating (SOMETIMES) with D, low back pain, much intestinal pain, red, burning eyes and just generally feel like I can't leave the the house 'cause I don't know when I WILL need to run to the bathroom. The pain is also worse at night so sleeping doesn't happen. I'm sure you're delighted to hear all this... as I drone on..... I also am suspicious that my fluctuating hormonal levels are exacerbating symptoms as I'm 49 and things are changing. But, you're right, if I still feel lousy tomorrow I may cave and call my doctor. Sigh...
Thank you so much again,
lisa
Thank you again. I'm pretty sure this is gluten. I've also had salmonella and it was NO picnic. Unlike many with gluten issues, I get severe bloat with a lot of pain, CONSTIPATION alternating (SOMETIMES) with D, low back pain, much intestinal pain, red, burning eyes and just generally feel like I can't leave the the house 'cause I don't know when I WILL need to run to the bathroom. The pain is also worse at night so sleeping doesn't happen. I'm sure you're delighted to hear all this... as I drone on..... I also am suspicious that my fluctuating hormonal levels are exacerbating symptoms as I'm 49 and things are changing. But, you're right, if I still feel lousy tomorrow I may cave and call my doctor. Sigh...
Thank you so much again,
lisa
I get alot of inflammation and joint, muscle and oddly enough tooth pain when I get glutened so I can really sympathize. The only thing that helps is oddly enough St. Josephs baby asprin. I don't know why such a simple med would do so much, perhaps it acts on the inflammation. I don't know if it would help you but figured I would mention it. I tried it once in desperation and it seems to work for me. It's all I take now. I hope you can figure out what is getting you. It can be a real search sometimes. It took me 2 years to realize that my can opener was getting me.
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
#11
oceangirl
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Posted 22 February 2007 - 02:36 PM
ravenwoodglass, on Feb 22 2007, 05:21 PM, said:
I get alot of inflammation and joint, muscle and oddly enough tooth pain when I get glutened so I can really sympathize. The only thing that helps is oddly enough St. Josephs baby asprin. I don't know why such a simple med would do so much, perhaps it acts on the inflammation. I don't know if it would help you but figured I would mention it. I tried it once in desperation and it seems to work for me. It's all I take now. I hope you can figure out what is getting you. It can be a real search sometimes. It took me 2 years to realize that my can opener was getting me.
Ravenwoodglass,
Holy mackerel! Yes, the old CAN opener- YIKES! Thank you- I am going to buy some St. Joseph's tomorrow. You have been very kind. Yes, I'm hoping to get to the bottom of this soon!
Thank you!
lisa
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