22 replies to this topic

[eLaurie]

A woman in our local support group was diagnosed at the Mayo Clinic and was told that it would take her 18 months strict gluten free before her mental symptoms would resolve. She said she got some better before 12 months but that it did seem to take her a good year and a half before she felt her old, pre-symptom self.

I'm asking this because I'm 7 months out gluten-free and 6 weeks casein-free without much mental improvement. My GI symptoms were much better within a few weeks gluten-free, but there's no change with mental symptoms.

Am looking for some hope!

[jerseyangel]

In my case, they were right about on target.

It took me about 18 months to finally get a handle on my anxiety and to a lesser extent, depression.

[eLaurie]

In my case, they were right about on target.

It took me about 18 months to finally get a handle on my anxiety and to a lesser extent, depression.

Thank you! In the middle of waiting, with depression and anxiety as symptoms, some days I can't see the light ahead. I feel like I've worked so hard for so little at this point. I'm glad gut symptoms are better, but I'd happily take back the Big D (got better within a couple of weeks) in exchange for the head stuff.

Your feedback is encouraging.

[jerseyangel]

Thank you! In the middle of waiting, with depression and anxiety as symptoms, some days I can't see the light ahead. I feel like I've worked so hard for so little at this point. I'm glad gut symptoms are better, but I'd happily take back the Big D (got better within a couple of weeks) in exchange for the head stuff.

Your feedback is encouraging.

I honestly felt the same way as you do at that point in my recovery. I'm glad that you are feeling encouraged, and I hope that yours resolves even sooner!

[DingoGirl]

Hi Laurie, sorry you're in such a pit....

My recovery was much shorter - but came in fits and starts. I did really well for a few months, then plummetted, then better, then plummetted deeply last summer....and now, I do have my moments, but seem to be holding steady. January of this year was one year gluten-free. And I absolutely know what you're saying about exchanging the D for some mental rest - - - the stomach stuff was easy compared to the depression.

I am wondering, are you eating any processed foods? things w/ MSG, hyrolyzed proteins, hydrogenated oils? because I have cut out almost all but the purest foods. When I lapsed over teh summer, and went into the pit, my eating was becoming very sloppy and more processed. Just a thought.

Hang in there, I absolutely do think you'll get better.

Blessings -

[ravenwoodglass]

I was 'lucky' the depression lifted fairly quickly for me. Within a couple of months my periods of depression and anxiety were gone unless I was glutened. I should mention that my depression was off and on. It seemed to be more like bi-polar (actually a prediagnosis diagnosis until they decided it was seizures), I was either full of energy and lots of plans or so depressed and anxious I could barely get out of bed. I find now that depression hits me about 24 hours after I injest and leaves just as suddenly about a day after it comes with anxiety hanging on a bit longer.

[eleep]

It's tough for me to say exactly why my depression and anxiety stopped when they did (there were a lot of really stressful, awful things going on in my life for a while), but I definitely felt like a completely different person at around 10 months.

[eLaurie]

Thanks for the responses and encouragement ...sorry I'm late acknowledging them (my hard drive crashed and I just got my 'puter back yesterday).

I can't begin to tell you how much it means to come here and find that others persevered and finally found recovery. This place is a haven from frustration!

[Mbelle]

A woman in our local support group was diagnosed at the Mayo Clinic and was told that it would take her 18 months strict gluten free before her mental symptoms would resolve. She said she got some better before 12 months but that it did seem to take her a good year and a half before she felt her old, pre-symptom self.

I'm asking this because I'm 7 months out gluten-free and 6 weeks casein-free without much mental improvement. My GI symptoms were much better within a few weeks gluten-free, but there's no change with mental symptoms.

Am looking for some hope!

I am going through the same thing. I get anxiety/nervousness symptoms that really began after the first few weeks of being gluten-free. I guess my body really "misses" that stuff. I am getting better - I can function at work now, despite the anxiety, but I also cannot WAIT until that glorious day when the mental stuff lifts away and we are back to normal. It definitely is a process...I also lost a lot of weight after going gluten free and found that I had other food sensitivities/allergies in addition to the gluten, that may have contributed to the anxiety/nervousness. When your immune system is constantly on the "alert" mode, it's going to cause anxiety. I have had to take on tai chi and meditation to manage the anxiety... and even some anti-anxiety DVDs. I wish there was a booklet that explained the mental health changes that accompany dietary and allergy discoveries so that we would not have to see this in isolation, but just what it is... a body-transforming process that affects the mind.

[VioletBlue]

Oh thank the Gods. I thought it was me. Eighteen months? Then I have - pulls out fingers and toes - NO, SEVEN MORE MONTHS? That's a long time. Every time I feel the anxiety or depression I start trying to figure out if I glutened myself somehow. So perhaps that's not the case.

With regards to feeling like my pre-Celiac self, I don't think I know what that will feel like. I don't remember really what it feels like to not have the depression off and on and the anxiety. It's gotten much better in the last eleven months, but I had kind of accepted that this was as good as it got. So maybe not, maybe it gets better? That would be nice.

Violet

[The One]

ugh, so I also have about 7 months to go? well not completely gluten free though because I had a few unfortunate glutenings that of course were not intentional, but let me tell you I would have the worst anxiety when i got glutened. Now I'm on Clonazepam for panic attacks and in like a month I'm going to see a psychologist I am happy about that though and have good expectations that it might help a bit. but im so tired of being depressed, its been so many years and anxiety too of course, now its better than it used to be a year ago before i got diagnosed but still my mood swings up and down so much even my family talks about it, one minute i'll be so energetic and happy and the next i'll be pissed off or completely depressed to the point i want to give it all up, and today is one of these days... i just want to cry and go to sleep just for no reason, ugh...

[fedora]

With regards to feeling like my pre-Celiac self, I don't think I know what that will feel like. I don't remember really what it feels like to not have the depression off and on and the anxiety.

VioletBlue,
I feel that way too. As a child my friends called me moody. I have been dealing with this for 22 years!!! I don't really know who I am entirely without out being poisoned. I guess time will tell. I'm okay with it as long as it keeps getting better. I have only been gluten free for 7 weeks, but I can already tell the difference during my pms time. I am more emotionally stable then then I use to be. The one time I think I got glutened off hershey kisses and hershey hugs and kisses, it was horrible. My worst symptom was my mood. It was a nightmare. But then it passed after 2 days.

P.S. I LOVE the name Violet. That was to be my son's name if he was a girl.

[Lshetler]

Try cutting out more foods. I cut out gluten, dairy, etc, and still felt horrible. I had to resort to only eating veggies, rice, and white meat and my symptoms went away within a day.

It takes a while for your intestines to be able to handle certain foods, so that may be why it takes so long for some people. If I ate beans right now, I'd get horribly depressed and tired, just not as severe as when I eat gluten.

[aikiducky]

A couple simple things that have helped me, on top of all the other good suggestions: taking a vitamin B complex, and eating food rich in good fats. Think sardines, leafy green veg, cold pressed rape seed oil (better ratio of the different fats than olive oil), avocados... a favourite of mine is making a salad with all of the above, so a green salad with sardines and avocado and a lemon juice and rape seed oil dressing.

Pauliina

[CuriousOne]

I'm not too sure of the responses on this thread.

I don't see why it would take 18 months for the intestinal tract to heal.

Are we saying that the serotonin-making cells take 18 months to re-establish themselves in the gut, so that they can then begin to start making serotonin again?

Its been awhile now since I posted. I was off gluten for a long time.... then one pizza party night I gave in and ate like 10 slices of deep dish pizza. I had no problems.

I then started playing with it again and found I did start getting symptoms again...but I find its complicated. I don't know if I've been healing and thats why I'm getting less symptoms, or if there is more to it.

I was reading Psychology Today today (older issue) and it was talking about how inflammation in the body is picked up in the mind, and the body goes into depressive and anti-social crawl-in-a-cave-mode in order to heal itself from the sickness.

I get this when I eat gluten... seems I can tolerate a bit of gluten...but if I go over my limit, it seems my intestines start inflamming...and then I get that "sickness behavior"... because I need to heal. I had this for at least 15 years constantly...caused so many issues with my life. Extreme depression etc.

For instance the other day I was having really suicidal thoughts... Because I had been eating too much gluten again...

I think part of the problem with gluten is related to how gluey it is... It seems to really get stuck in the digestive tract....and its this paralysis that causes lots of issues.

All this learning about gluten, and paying attention to my intestines...has made me realize how I "feel" is directly related to the status of my intestinal tract. If i feel bad, I literally -AM- bad. To me I can then logically realize that my intestinal tract is probably dry, has food stuck to it, needs to be cleaned out, etc.... or if I feel like -poop- (there is a difference usually)...that usually means I have even MORE food stuck in my tract... literally I feel like poop because i AM full of poop. lol... ever say a person is full of poop? They probably are..!

I think since we have stress coming at us multiple times a day, we are constantly getting our digestive systems shut down... so we end up having food getting stuck alot in our tracts fermenting, etc etc... David Wolfe says the problem with America today is we have too much constipation and not enough sex...lol...

Think about it... we eat so much stuffy foods all day long, and then get bombarded by stress all day long... so we just are constipated...

Anyway, so now I know what to do with my stomach... if I feel bad... that means I usually drink a diluted hot tea...or just a few glasses of water. That helps push the digestive tract to keep moving...and moistens the food and tract itself. Smoking a cigarette also helps push it along. Going for a walk helps push it along.

I also make a decision if I just need to eat less food for a good half of the day...or maybe to just drink water and have some fibrous vegetables for 4 or 5 hours. Anything to help clean out or get the digestive tract moving or both.

Too much caffeine for me causes my digestive tract to quiver too much. it gets the job done but I don't need that much. Tuning into how my digestive tract works has allowed me to once again use caffeine...but this time for the purpose its good for...keeping the tract moving. I've had to shy away from it before for a long time since I thought it caused me anxiety. But now I realize its only because my tract was sensitive to it and didn't need that much. Again, too much makes the tract quiver too much and my mind picks up on that as anxiety. I usually drink tea... just diluted.

Then again, I bet if you had a really stuck constipated digestive tract you could tolerate more caffeine because you had more to clean out. Maybe thats why the Italians drink espresso shots morning noon and night...its all that highly glutenous wheat they eat constantly...

I still think that gluten probably does cause a inflammatory reaction in me...it does seem to be different than just having too much food in my tract.... But there does seem to be a certain amount I can eat before it causes a reaction... although I'm not going to test this out...

I think next time I eat gluten I will have a few donuts and then see how my days go for a week...

But now I wonder if I will start feeling better as the months go by? I really felt good when I was on Paxil 4 years ago. I've taken it several times in my life and those were the best times of my life for the last 15 years. I've taken it a total of 2 years probably. I stopped taking it because I never wanted to be dependent on that stuff...and then only 3 months ago really stumbled onto this gluten thing...

So I wonder.... will I ever be able to just feel as good as I did when taking Paxil? Do I just need to give it more time still for my digestive tract to fully heal? For my villi to fully heal? For the leaky gut to heal (if I have that?)...for the serotonin making cells to re-establish themselves? How long would this take?

Just some thoughts and questions I've been having the past few months as I've gone about my daily life and observed different things.