Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Any One In Jacksonville, Fl Or Southern Ga
0

53 posts in this topic

I need as much support as I can get, if anyone in Jacksonville, Orange Park and surrounding areas (there are too many to name) or southern Georgia would like to talk let me know! I am just looking for support and friends, nothing else!

I enjoyed cooking until this (hopefully someday soon I will enjoy it again), anything out doors (mountains since I am from CO, beaches here), being social, reading, movies and Im sure there is more but who wants to read all that right?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hey Nicole. I'm not from Jacksonville but I am from Tallahassee, FL...not too far away. I too LOVE teh beach!!

0

Share this post


Link to post
Share on other sites
I need as much support as I can get, if anyone in Jacksonville, Orange Park and surrounding areas (there are too many to name) or southern Georgia would like to talk let me know! I am just looking for support and friends, nothing else!

I enjoyed cooking until this (hopefully someday soon I will enjoy it again), anything out doors (mountains since I am from CO, beaches here), being social, reading, movies and Im sure there is more but who wants to read all that right?

Hey! I'm from the area! Orange Park...Jacksonville! I know you wrote this in Febuary...it is now June but what the Hey!

0

Share this post


Link to post
Share on other sites
Hey! I'm from the area! Orange Park...Jacksonville! I know you wrote this in Febuary...it is now June but what the Hey!

I am from Jacksonville....newby here. I'ld love to talk to both of you.

0

Share this post


Link to post
Share on other sites

I'm in Savannah, GA, and get to Jacksonville on occasion, though mostly either to the airport or passing through on my way to see friends in Gaineville. I am an older female, no kids, not retired yet. Love being active, hiking, backpacking, etc.

Fran

0

Share this post


Link to post
Share on other sites




Hi! My family and I are planning on moving to Orange Park, FL this summer. My husband is in the Navy and will be an intern at NAS JAX. I came across your post while searching for gluten-free stores in the Jacksonville area. My daughter Amelia was diagnosed with Celiac May 2006. I would love to talk with you about the area and about cooking gluten-free. I do a lot of baking/cooking and with the exception of gluten-free bread have been able to make everything we normally ate.

Thanks,

Angie

SAHM in Gaithersburg, MD to Daniel (9-1/2); Amelia (8 - dx'd w/Type 1 Diabetes 4/03, Celiac Sprue 5/06); Steven (6-1/2); & Meghan (4-1/2). Wife to Paul, active duty Navy/4th year (FINALLY!) medical student. Moving to Orange Park, FL 6/08!

0

Share this post


Link to post
Share on other sites

Hi Angie,

I saw your post, and I'm not trying to blatantly plug my store, but I work in a health food store/deli in Yulee, Florida, just north of JAX. We have a great staff and lots of gluten free items. Let me know if you want more info, as I can't promote anything online.

Erin

Hi! My family and I are planning on moving to Orange Park, FL this summer. My husband is in the Navy and will be an intern at NAS JAX. I came across your post while searching for gluten-free stores in the Jacksonville area. My daughter Amelia was diagnosed with Celiac May 2006. I would love to talk with you about the area and about cooking gluten-free. I do a lot of baking/cooking and with the exception of gluten-free bread have been able to make everything we normally ate.

Thanks,

Angie

SAHM in Gaithersburg, MD to Daniel (9-1/2); Amelia (8 - dx'd w/Type 1 Diabetes 4/03, Celiac Sprue 5/06); Steven (6-1/2); & Meghan (4-1/2). Wife to Paul, active duty Navy/4th year (FINALLY!) medical student. Moving to Orange Park, FL 6/08!

0

Share this post


Link to post
Share on other sites

Jacksonville has a great store called Native Sun; lots of gluten free items and a person who checks to make sure that the gluten free stuff is truly gluten free; if not, she doesn't give it the colored price sticker that indicates gluten free stuff.

Lots of restaurants -- Maggiano's, PF Chang's, and Ted's Montana Grill in the St. John's Town Center, and I've heard that Roy's, Semolinas, the Wedge Cafe, Brick Restaurant, and Lemongrass will work with you on the diet, although this bit of hearsay is from 2005 and I haven't personally tried those restaurants.

There was a support group but as far as I know it is disbanded; I'm just guessing since I never heard back from the coordinator after one other person and I went to the Christmas Cookie Exchange in 2006 and no one else was there... I live in Gainesville, though, so I guess it wasn't that practical driving over every month. You are so lucky to be moving to Jax, I am jealous! I think it is wonderful. :D

0

Share this post


Link to post
Share on other sites

Hey! I just noticed your replies. I also live in Jacksonville. I love it here (only a few minutes from the beach)! I also LOVE Native Sun - the labels make shopping so much easier. I also found a little health food store on Beach Blvd. that carries a ton of gluten free foods. I have found that some of the Publix stores also have a pretty good selection.

0

Share this post


Link to post
Share on other sites
I need as much support as I can get, if anyone in Jacksonville, Orange Park and surrounding areas (there are too many to name) or southern Georgia would like to talk let me know! I am just looking for support and friends, nothing else!

I enjoyed cooking until this (hopefully someday soon I will enjoy it again), anything out doors (mountains since I am from CO, beaches here), being social, reading, movies and Im sure there is more but who wants to read all that right?

Hi , I live in Macclenney (30 miles west of Jacksonville) and I too am looking for some support and celiac disease pals. I am married and have two small children. I love cooking as well and I have been doing some great gluten-free baking. I also like shopping and scrapbooking. I would love to hear from you. Tori F.

0

Share this post


Link to post
Share on other sites

Hey, - I live in jacksonville (not too far from the beach), and I'm 36 yrs. old. I have 3 children (10, 7, and 4). I'm trying to start baking gluten free desserts, but I'm having a hard time finding things that are gluten free, dairy free, and soy free. Any suggestions?? I have made a chocolate cake, and pumpkin muffins so far, but I'm thinking that they may have both had soy in them, because I didn't feel the greatest after eating them. I also LOVE shopping!

0

Share this post


Link to post
Share on other sites
Hey, - I live in jacksonville (not too far from the beach), and I'm 36 yrs. old. I have 3 children (10, 7, and 4). I'm trying to start baking gluten free desserts, but I'm having a hard time finding things that are gluten free, dairy free, and soy free. Any suggestions?? I have made a chocolate cake, and pumpkin muffins so far, but I'm thinking that they may have both had soy in them, because I didn't feel the greatest after eating them. I also LOVE shopping!

Hey Roxie! I bake all the time, am in the end process of writing my own cookbook, and I use The Gluten Free Pantry's All Purpose Flour in all my recipes. It really acts like good old poisonous flour! It's also nice to only have to buy one flour for all your cooking needs. I have family of five and cook gluten free almost exclusively, feel free to ask me if you have any other questions about cooking gluten free!

0

Share this post


Link to post
Share on other sites

I am new to Jacksonville and new to a gluten free diet. I am a newlywed -my husband is stationed at NS Mayport but we live further south in JAX. Do you all get together or does anyone know of any local support groups. I don't really know anyone here yet and I'm pretty overwhelmed by the diet. I read some of the posts though an I'm going to try to get to Native Sun today - I haven't had much luck since we've been here finding gluten-free products.

Kristy

0

Share this post


Link to post
Share on other sites

Hello! My name is Carolanne...and I've lived in Florida for over 20 years. I'm not in Jacksonville...but over on the West Coast. I am a Celiac, and I've been Wheat-Free for 20 years, and Gluten-Free for over 3 years. I'm trying to locate people who live Gluten Free here in Florida...and it's not been easy. Most of the links I've found have been disconnected or discontinued...and I'm having a devil of time finding people to connect to. I'd really like to find others who are interested in getting together...and I understand that I am not alone. I've read several posts from people looking for help, Doctors, restaurants, support groups, meetups and such here in Florida.

GlutenFreeInFlorida-subscribe@yahoogroups.com

I've created a Yahoo Group in the hopes of connecting with other people here in the Sunshine State...and to help others connect as well. I'd like to know if anyone is interested in something that will enable you to contact others in your own local area. I'd like to make more information available to people who are living Gluten-Free in Florida.

0

Share this post


Link to post
Share on other sites

Hey, Jacksonville folks!

I'm over in Gainesville and I would so love to get together with any of you that are interested. There was supposed to be a meeting around here but I don't know if people have left for the summer or it just never materialized or what happened, but I haven't heard from anyone. I am definitely feeling the need to support and be supported! I used to drive over to Jax for support group meetings, so I don't mind the drive and I always like popping in Native Sun anyway. ;) We could meet somewhere on a Saturday afternoon for a little bit and exchange baked goods or recipes or just sit and talk. What do you say??

0

Share this post


Link to post
Share on other sites

I'm in Jacksonville too. That sounds like it might be fun!

0

Share this post


Link to post
Share on other sites

Could anyone suggest a place? We used to meet at the Baptist Hospital, but since this would be an informal, first meeting, maybe we could go somewhere more casual? Or even meet to eat out? I was thinking maybe Saturday, June 21. Let me know what you think! :D

0

Share this post


Link to post
Share on other sites

Hey all,

We are now in Jax. I'll volunteer my house for a meeting, unfortunately, June 21st is already booked on our calendar. What about the 28th? Warning, though, we left the majority of our living room furniture behind when we moved and haven't replaced most of it yet. As long as you don't mind folding and patio chairs, welcome aboard!

Also, a friend recommended a store that just opened up, Grassroots. It is an organic market that does carry gluten-free items. They are mixed in with other products and takes some searching, but there is one close to our house. I've heard a lot about Native Sun but haven't ventured out to find one yet.

Thanks,

Angie

newly located in Orange Park, FL. SAHM to Daniel (10), Millie (8-1/2) Type 1 Diabetes, dx'd 4/15/03 and Celiac dx'd 5/5/06, Steven (7) and Meghan (nearly 5). Wife to Paul, Active Duty, US Navy, Family Medicine Intern at NAS JAX.

0

Share this post


Link to post
Share on other sites

Hi, Angie!

The 28th would be fine for me -- thanks so much for volunteering! :) Can other people make it on the 28th??

0

Share this post


Link to post
Share on other sites

Wow! I really havent kept up with my own post. I'm a little mad at myself for that now :angry: but hopefully we can all support each other. Its good to see that everyone is so willing to help one another. :) I'm still up for supporting each other as much as possible; weather it be actually all getting together or just finding ways to support each other through postings and emails. I'm fairly young with basically no family here so I definitely will take any help I can get and would love to be able to share some of the wisdom I've gained as well ;)

feel free to email me at nicole.nnfl@gmail.com

0

Share this post


Link to post
Share on other sites

Hi, all!

Angie, I really appreciate your offer of a meeting place. It sounds like you have a lot going on, though, and I'd like to post the info about our meeting in other places as well, and I wouldn't want to be spreading your address all over the Internet! :)

So, I put in a request to the Baptist Medical Hospital downtown for a meeting room, where the old support group used to meet. They are supposed to get back to me as soon as they can. I requested a room for June 28 from 2-4pm (to be on the safe side, we might not want to meet that long, I don't know). This way it will be a place where we can spread out and not incovenience Angie! :D What do you guys think? I know everyone's busy, but it would be so nice to get together.

0

Share this post


Link to post
Share on other sites

The 28th works for me! Sorry I've been out of the discussion for so long -we're out of town for two weeks! We'll be back by then and I would love to meet all of you!

0

Share this post


Link to post
Share on other sites
Hi, all!

Angie, I really appreciate your offer of a meeting place. It sounds like you have a lot going on, though, and I'd like to post the info about our meeting in other places as well, and I wouldn't want to be spreading your address all over the Internet! :)

So, I put in a request to the Baptist Medical Hospital downtown for a meeting room, where the old support group used to meet. They are supposed to get back to me as soon as they can. I requested a room for June 28 from 2-4pm (to be on the safe side, we might not want to meet that long, I don't know). This way it will be a place where we can spread out and not incovenience Angie! :D What do you guys think? I know everyone's busy, but it would be so nice to get together.

As long as I know when and where I'll be there! :)

0

Share this post


Link to post
Share on other sites

Hey Guys,

I'm Tori and I have been diagnosed with celiac disease for 3 months now. I would love to join your support group. I am 31 and live in Macclenny (30 miles west of Jacksonville). Thanks to Laurel for E-mailing me. By the way...Do you guys know of a good GI in the surrounding area? Mine has not been real helpful. He just scares me to death. Thanks, Tori

0

Share this post


Link to post
Share on other sites

I'm just curious how many people will be coming on the 28th. I'll be there and I'm excited to meet all of you!

Kristy

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined