Help
Hi,
I always have a very strong intestinal reaction to glutening but I have started to notice that I am in a total haze after eating gluten. I have also noticed that I am having problems with my hands. I was glutened yesterday and in addition to having an awful stomach ache, I feel very foggy and I keep dropping things. It was very difficult trying to write a check this morning. Is this my imagination? Does this happen to people?
Mental Confusion And Motor Probs From Glutening?
in a fog and keep dropping things ever since glutening yesterday
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#2
Rebecca47 
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Posted 26 February 2007 - 04:16 PM
angel42, on Feb 26 2007, 11:06 AM, said:
Hi,
I always have a very strong intestinal reaction to glutening but I have started to notice that I am in a total haze after eating gluten. I have also noticed that I am having problems with my hands. I was glutened yesterday and in addition to having an awful stomach ache, I feel very foggy and I keep dropping things. It was very difficult trying to write a check this morning. Is this my imagination? Does this happen to people?
I always have a very strong intestinal reaction to glutening but I have started to notice that I am in a total haze after eating gluten. I have also noticed that I am having problems with my hands. I was glutened yesterday and in addition to having an awful stomach ache, I feel very foggy and I keep dropping things. It was very difficult trying to write a check this morning. Is this my imagination? Does this happen to people?
hI ANGEL 42 You are not alone. I get that way also. I have been gluten free since Aug. I have had a few glutenings and feel that way. I feel as if in a fog, at times anyway even dropping things. It gets better with time I hope.
[font=Comic Sans MS]Diagnosed Celiac Sprue Disease August, 02, 2006
Blood test, No Biopsy
IgA off the scale 44 now 3
IgG 56
(tTG) IgA 25 now 2
(tTG) IgG 1 now 1
now border line low iron 10
Gluten Free since August, 02, 2007
Diagnosed with Osteoporosis November 2006
As of Jan 2007 all numbers looking good
As of Feb 2007 no more Pork, having Allergic reactions
Lactose Intolerence
Blood test, No Biopsy
IgA off the scale 44 now 3
IgG 56
(tTG) IgA 25 now 2
(tTG) IgG 1 now 1
now border line low iron 10
Gluten Free since August, 02, 2007
Diagnosed with Osteoporosis November 2006
As of Jan 2007 all numbers looking good
As of Feb 2007 no more Pork, having Allergic reactions
Lactose Intolerence
#3
happygirl
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Posted 26 February 2007 - 04:42 PM
Angel,
What you are describing is rather common among Celiacs who have been glutened. It is frustrating----but, you are definitely not alone. Many of us call it "brain fog"........its the only way to really describe it!
I hope it passes quickly.
Laura
What you are describing is rather common among Celiacs who have been glutened. It is frustrating----but, you are definitely not alone. Many of us call it "brain fog"........its the only way to really describe it!
I hope it passes quickly.
Laura
#4
pugluver31902
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Posted 28 February 2007 - 08:25 PM
I call it my "gluten coma." So nope, its not just you! I dont get any intestinal symptoms, just the coma like feeling.
#5
Laura!
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Posted 28 February 2007 - 10:01 PM
angel42, on Feb 26 2007, 12:06 PM, said:
I feel very foggy and I keep dropping things. It was very difficult trying to write a check this morning. Is this my imagination? Does this happen to people?
It's definately not your imagination.
My left side stops working when I get glutened; just the other day I accidentally dropped (and broke
) my cell phone because my hand just sort of disappeared. Maybe now I have an excuse to buy a iPhone? (haha, i wish.)My mom read that taking vitamin B12 supplements might help with these neurological issues. I haven't tried it yet, so I don't know, but I doubt it can hurt, right?
♥ Laura
#6
And She Will Be Curious
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Posted 28 June 2007 - 01:09 PM
Ah. I have that to some degree as well. Didn't realize it was affecting me SO much until I went gluten-free. When I get glutened, usually unknowingly, the same things happen. Panic and itching and weird sweating and sort of a paranoid type of confusion (I always dart my eyes around as if searching for escape) followed by the mental brain fog. With this fog sometimes comes what you're talking about. I get kind of clumsy in addition to being lethargic, and I can't seem to string my sentences together. It's really weird - mixing up words and such. Lazy tongue that slurs.
#7
Rosewynde
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Posted 28 June 2007 - 02:26 PM
I get Brain Fog and weakness 6-12 hours after getting glutened. I've only been on the diet a month so I've not had long term experience, but I think it's related to the body being short on what it needs. I seem to get much better after taking a multivitamin with minerals (gluten free) and/or getting some fluids and electrolytes in me if I'm feeling dehydrated.
#8
elonwy
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Posted 28 June 2007 - 02:30 PM
Brain Fog is the worst part of a glutening. I use B12 to get me through the worst of it.
And no, you are not imagining it, and if anyone tells you so (especially doctors grrr) you have my permission to kick them in the shins and blame it on restless leg syndrome.
(I'm not bitter, I was just told I was "imagining things" or "exaggerating" for years by doctors.)
And no, you are not imagining it, and if anyone tells you so (especially doctors grrr) you have my permission to kick them in the shins and blame it on restless leg syndrome.
(I'm not bitter, I was just told I was "imagining things" or "exaggerating" for years by doctors.)
Positive Bloodwork 7/8/05
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.
"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.
"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"
#9
jerseyangel
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Posted 28 June 2007 - 03:01 PM
I get these after being glutened, too. Yes, they are most certainly real!
I have GI symptoms for 2-3 days, and then the brain fog sets in and lasts for the better part of 2 weeks or so, sometimes longer. I get crabby, anxious, can't get whole sentences out, and have a hard time sometimes even getting words out of my mouth.
I sometimes find it hard to know exactly where to put my foot down when walking, and am definately clumsier and slower than normal.
I have GI symptoms for 2-3 days, and then the brain fog sets in and lasts for the better part of 2 weeks or so, sometimes longer. I get crabby, anxious, can't get whole sentences out, and have a hard time sometimes even getting words out of my mouth.
I sometimes find it hard to know exactly where to put my foot down when walking, and am definately clumsier and slower than normal.
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Celiac.com - Celiac Disease Board Moderator
#10 Guest_Doll_*
Posted 28 June 2007 - 04:31 PM
And She Will Be Curious, on Jun 28 2007, 03:09 PM, said:
Ah. I have that to some degree as well. Didn't realize it was affecting me SO much until I went gluten-free. When I get glutened, usually unknowingly, the same things happen. Panic and itching and weird sweating and sort of a paranoid type of confusion (I always dart my eyes around as if searching for escape) followed by the mental brain fog. With this fog sometimes comes what you're talking about. I get kind of clumsy in addition to being lethargic, and I can't seem to string my sentences together. It's really weird - mixing up words and such. Lazy tongue that slurs.
You sound *exactly* like me. In fact, I was investigated for MS (CT Scan) before my GI symptoms appeared and I began to suspect Celiac. It is truly amazing at the broad range of symptoms Celiac's can have. It was an eye opener to piece all of my symptoms together for sure. The neuro symptoms (dropping things, trouble walking, talking, etc). just appeared and got progressively worse, until I (thank God) starting get the diarrhea and weight loss. If I hadn't, I don't know if I would have figured it out to be tested in time.
Luckily, all of my symptoms did resolve once gluten-free. However, some people with Celiac present with neurological antibodies that *do not* seem to resolve on the gluten-free diet. The reason for this is not clear.
The good thing is, I now know what to look for in people who may present atypically with Celiac (adults especially). I honestly was sure I was developing MS based on my symptoms and was terrified.
#11
Karen B.
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Posted 28 June 2007 - 05:01 PM
Red Bull and orange juice help me some through the brain fog but you should see my hand writing during that time.
I tell people it's like getting stomach flu. I think that's the closest thing most people can relate it to.
I tell people it's like getting stomach flu. I think that's the closest thing most people can relate it to.
Karen B.
diagnosed with Celiac Nov. 2003
diagnosed with Celiac Nov. 2003
#12
Alaska
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Posted 20 August 2007 - 09:48 AM
I get exactly the same symptoms, usually 6-8 hrs. after. I was also told these were symptoms of candida, which I have also been told I have. Anyone been diagnosed with candida as well as Celiac.
#13
marciab
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Posted 20 August 2007 - 12:28 PM
Thanks for posting this. My speech has been so bad lately I was considering getting a nueropsych eval. It doesn't help that a new friend of mine keeps cutting me off mid sentence either. I'm already self conscious, but her cutting me off only makes me feel stupid. My family doesn't cut me off any more. It's funny /sad what your friends and family learn to accept as your norm.
I had forgotten that I used to drop things too. My hand would just let go on it's own.
Anyone's eyes get twitchy ?
About the candida, it's normal for undiagnosed celiacs to get candida. Just take some probiotics first to see if that alone can help, if not you'll need to treat it.
Marcia
I had forgotten that I used to drop things too. My hand would just let go on it's own.
Anyone's eyes get twitchy ?
About the candida, it's normal for undiagnosed celiacs to get candida. Just take some probiotics first to see if that alone can help, if not you'll need to treat it.
Marcia
Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)
2004 - Digestive pain all the time.
May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)
No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.
Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.
June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.
August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.
June 19, 2007 - Positive DQ2, Dx Celiac
October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues
Nov 2007 - Started Paleo diet for chronic hypoglycemia
April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.
May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
2004 - Digestive pain all the time.
May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)
No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.
Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.
June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.
August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.
June 19, 2007 - Positive DQ2, Dx Celiac
October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues
Nov 2007 - Started Paleo diet for chronic hypoglycemia
April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.
May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
#14
Joni63
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Posted 20 August 2007 - 02:38 PM
marciab, on Aug 20 2007, 04:28 PM, said:
Anyone's eyes get twitchy ?
Marcia
Marcia
My eyes get twitchy. I guess that's what to call it. When I try to read, my eyes seem to jump from word to word instead of go smoothly. I lose my place a lot. Sometimes my vision gets blurry in my right eye.
Joni
Dx'd with Celiac Disease 8/01/07
Dx'd with Celiac Disease 8/01/07
#15
marciab
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Posted 21 August 2007 - 07:14 AM
Bellyfat, on Aug 20 2007, 06:38 PM, said:
My eyes get twitchy. I guess that's what to call it. When I try to read, my eyes seem to jump from word to word instead of go smoothly. I lose my place a lot. Sometimes my vision gets blurry in my right eye.
My eyes skip around over the words too. Makes reading a real pain.
I had strong noticeable twitches in each eye a few days ago when I first got glutenned, but now it's only something I can feel, but not see. They're gooey a lot right now too.
This all just gets sooo annoying !!! But, it sure beats not knowing why something is happening.
Marcia
Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)
2004 - Digestive pain all the time.
May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)
No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.
Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.
June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.
August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.
June 19, 2007 - Positive DQ2, Dx Celiac
October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues
Nov 2007 - Started Paleo diet for chronic hypoglycemia
April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.
May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
2004 - Digestive pain all the time.
May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)
No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.
Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.
June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.
August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.
June 19, 2007 - Positive DQ2, Dx Celiac
October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues
Nov 2007 - Started Paleo diet for chronic hypoglycemia
April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.
May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
