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A Very Good Dvd On celiac disease/gluten


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5 replies to this topic

#1 CMCM

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Posted 04 March 2007 - 09:20 PM

I just ordered this DVD of a recent (last summer) seminar on Celiac disease and gluten sensitivity. It answered a lot of questions I had, plus it pointed out some rather frightening statistics I had not read before. The lecture puts together a lot of studies and really tells us where we stand with this. If you are wondering if you are "merely" gluten sensitive (perhaps lacking the celiac gene) whether or not it is harmful to eat some gluten, or whether you MUST know if you actually have/had celiac disease, if damage can be done to non-celiacs, etc, then this lecture will answer a lot of your concerns. The doctor also discusses testing and problems with the medical profession regarding celiac disease etc. There is also a segment from a women who is concerned with the nutrtitional aspects of dealing with celiac disease. I'm passing this DVD around to all my family members and I felt it was worth the $$$. After I ordered it, it arrived within about 2 days!

I sure wish I could locate a doctor around here to has this particular doctor's interest and knowledge on the subject! I really do recommend this to everyone.


Here's the link:

http://www.specialeats.com/
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CAROLE

-------------
Enterolab 1/2006
IgA & tTg Positive
DQ2-0201 (celiac) and DQ1-0604 (gluten)
Casein IgA positive
Mom has 2 celiac genes
Both kids have a celiac gene.
Lots of celiac disease in my family, both sides.

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#2 Canadian Karen

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Posted 05 March 2007 - 02:28 AM

I just ordered this DVD of a recent (last summer) seminar on Celiac disease and gluten sensitivity. It answered a lot of questions I had, plus it pointed out some rather frightening statistics I had not read before. The lecture puts together a lot of studies and really tells us where we stand with this. If you are wondering if you are "merely" gluten sensitive (perhaps lacking the celiac gene) whether or not it is harmful to eat some gluten, or whether you MUST know if you actually have/had celiac disease, if damage can be done to non-celiacs, etc, then this lecture will answer a lot of your concerns. The doctor also discusses testing and problems with the medical profession regarding celiac disease etc. There is also a segment from a women who is concerned with the nutrtitional aspects of dealing with celiac disease. I'm passing this DVD around to all my family members and I felt it was worth the $$$. After I ordered it, it arrived within about 2 days!

I sure wish I could locate a doctor around here to has this particular doctor's interest and knowledge on the subject! I really do recommend this to everyone.
Here's the link:

http://www.specialeats.com/


Thanks Carole! I just ordered it! Maybe this will clue my husband in to the seriousness of this disease.....

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#3 Canadian Karen

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Posted 19 March 2007 - 12:23 PM

Thanks Carole! I just ordered it! Maybe this will clue my husband in to the seriousness of this disease.....

Karen


I received my DVD a few days ago and just got to watch it today.

IT IS AMAZING! OMG! THE WAY THAT DOCTOR DESCRIBES THINGS MAKES IT SOOOO MUCH CLEARER AND EASIER TO UNDERSTAND!!!!!

I HIGHLY recommend getting this DVD, not only for further understanding ourselves, but to better explain it to our families, etc.

I give it a 9 out of 10!

Thanks for the link Carole!

Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#4 pugluver31902

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Posted 19 March 2007 - 06:26 PM

The woman that wrote the cookbook and "co-stared" in the DVD, Susan Vess runs the Celiac support group that I go to, its at the whole foods in wheaton Illinois. She is very nice, and extremely knowledgeable.
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#5 Ursa Major

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Posted 19 March 2007 - 08:49 PM

Thanks for providing the link to this website, I also just ordered the DVD! I really need it to clue people in my family in, they think I am overreacting. Plus, my 15-year old daughter keeps saying when I tell her I believe she needs to be gluten-free, "Mom, I believe you that I might be gluten intolerant, so what, I don't care, I refuse to give up bread, and you can't make me!" If she sees the DVD, maybe she will change her mind (I can hope, can't I?).
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#6 Yenni

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Posted 20 March 2007 - 09:44 AM

Thanks for posting about this! I am defenitely going to order it. A very good price for it too. Only $20.00.

I bought the cook book on that same page and it is very good. Has some good info on labeling and stuff.
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One Celiac gene and one gluten intolerance gene (HLA-DQ 2,1).
Grain free, casein free, soy/legume free + a bunch of allergies I have had since I was a child (stone fruits, nuts..carrots)
Following the Specific Carbohydrate Diet, but no nuts, legumes or casein.


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