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A Very Good Dvd On celiac disease/gluten
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I just ordered this DVD of a recent (last summer) seminar on Celiac disease and gluten sensitivity. It answered a lot of questions I had, plus it pointed out some rather frightening statistics I had not read before. The lecture puts together a lot of studies and really tells us where we stand with this. If you are wondering if you are "merely" gluten sensitive (perhaps lacking the celiac gene) whether or not it is harmful to eat some gluten, or whether you MUST know if you actually have/had celiac disease, if damage can be done to non-celiacs, etc, then this lecture will answer a lot of your concerns. The doctor also discusses testing and problems with the medical profession regarding celiac disease etc. There is also a segment from a women who is concerned with the nutrtitional aspects of dealing with celiac disease. I'm passing this DVD around to all my family members and I felt it was worth the $$$. After I ordered it, it arrived within about 2 days!

I sure wish I could locate a doctor around here to has this particular doctor's interest and knowledge on the subject! I really do recommend this to everyone.

Here's the link:

http://www.specialeats.com/

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I just ordered this DVD of a recent (last summer) seminar on Celiac disease and gluten sensitivity. It answered a lot of questions I had, plus it pointed out some rather frightening statistics I had not read before. The lecture puts together a lot of studies and really tells us where we stand with this. If you are wondering if you are "merely" gluten sensitive (perhaps lacking the celiac gene) whether or not it is harmful to eat some gluten, or whether you MUST know if you actually have/had celiac disease, if damage can be done to non-celiacs, etc, then this lecture will answer a lot of your concerns. The doctor also discusses testing and problems with the medical profession regarding celiac disease etc. There is also a segment from a women who is concerned with the nutrtitional aspects of dealing with celiac disease. I'm passing this DVD around to all my family members and I felt it was worth the $$$. After I ordered it, it arrived within about 2 days!

I sure wish I could locate a doctor around here to has this particular doctor's interest and knowledge on the subject! I really do recommend this to everyone.

Here's the link:

http://www.specialeats.com/

Thanks Carole! I just ordered it! Maybe this will clue my husband in to the seriousness of this disease.....

Karen

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Thanks Carole! I just ordered it! Maybe this will clue my husband in to the seriousness of this disease.....

Karen

I received my DVD a few days ago and just got to watch it today.

IT IS AMAZING! OMG! THE WAY THAT DOCTOR DESCRIBES THINGS MAKES IT SOOOO MUCH CLEARER AND EASIER TO UNDERSTAND!!!!!

I HIGHLY recommend getting this DVD, not only for further understanding ourselves, but to better explain it to our families, etc.

I give it a 9 out of 10!

Thanks for the link Carole!

Karen

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The woman that wrote the cookbook and "co-stared" in the DVD, Susan Vess runs the Celiac support group that I go to, its at the whole foods in wheaton Illinois. She is very nice, and extremely knowledgeable.

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Thanks for providing the link to this website, I also just ordered the DVD! I really need it to clue people in my family in, they think I am overreacting. Plus, my 15-year old daughter keeps saying when I tell her I believe she needs to be gluten-free, "Mom, I believe you that I might be gluten intolerant, so what, I don't care, I refuse to give up bread, and you can't make me!" If she sees the DVD, maybe she will change her mind (I can hope, can't I?).

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Thanks for posting about this! I am defenitely going to order it. A very good price for it too. Only $20.00.

I bought the cook book on that same page and it is very good. Has some good info on labeling and stuff.

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    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
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