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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Pantene.
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9 posts in this topic

So before i went gluten-free I used and loved pantene.

About a year ago they could not confirm anything on their products.

When I called about a month ago, they said that they will list any gluten on the bottles, EXCEPT for the fragrance, because it is outsourced.

Here is my question would they have gluten in a fragrance??

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Hey moongirl --

I use Pantene Conditioner with no problems -- on the flip side I accidentally used Aveeno products before (they DO contain gluten, and it says so right on the label, oops) and had a really bad reaction to it - never using Aveeno again.. But Pantene is OK for me.

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I use Pantene with no problems. I have started adding two drops of tea tree oil to the shampoo in my hand, and my dandruff and itch problems cleared up, too.

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Hey moongirl --

I use Pantene Conditioner with no problems -- on the flip side I accidentally used Aveeno products before (they DO contain gluten, and it says so right on the label, oops) and had a really bad reaction to it - never using Aveeno again.. But Pantene is OK for me.

That's a relief. I like the Pantene range and it works for my hair too. Thanks for the tip.

Marcus.

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I ran out of Pantene and replaced it with an Avalon organics conditioner. I've been feeling worse and worse. This weekend I finally nailed down that it is the conditioner making me sick. I'm going back to Pantene!

If anyone has any good organic, gluten-free conditioners for hair in need of lots of detangling, de-frizzing moisture, let me know!! I'd like to stop putting all the artificial crap into the water supply, but can't find an organic conditioner that doesn't either make me sick or dry my hair out.

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I ran out of Pantene and replaced it with an Avalon organics conditioner. I've been feeling worse and worse. This weekend I finally nailed down that it is the conditioner making me sick. I'm going back to Pantene!

If anyone has any good organic, gluten-free conditioners for hair in need of lots of detangling, de-frizzing moisture, let me know!! I'd like to stop putting all the artificial crap into the water supply, but can't find an organic conditioner that doesn't either make me sick or dry my hair out.

Last time I checked a lot of the Giovanni organic shampoos and conditioners were fine. I have used the Smooth as Silk conditioner which has been great for my frizzies in the summer. They have recently come out with skin care products also but I haven't tried those.

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what kind of reaction did you get from the Aveeno products??.....yesterday i was given a new cream they have out...should i or shouldnt i use it???.......and....pantene has worked well for too...thank god!!!!

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I also really like Pantene. (Currently Pro-V Curls Conditioner.) Can anyone give me a current status on use and reactions? Thanks!

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I switched from Nature's Gate Awapuhi shampoo and conditioner to Pantene Pro-V Flat to Volume shampoo and conditioner. Though I love the smell and the way it leaves my hair, the rash on my forehead is back. It's brightest right out of the shower. So I'm going back to NG Awapuhi. I experienced this once before when I switched from NG Awapuhi to the NG that contains Pomegranate, which turned out to have gluten. I don't see anything on the Pantene bottle that states it has gluten, so it should be interesting to see if the change will make the rash go away.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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