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#16 Guest_barbara3675_*

 
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Posted 22 September 2004 - 08:17 AM

Hey, Red, I'm with you.....I want you to know that beta blockers can do very weird stuff to you. I was on Inderal to keep my blood pressure down due to my migraines. Then I got asthma. My doctor had me on some very serious asthma medications. I ended up at a pulmonary specialist who said that I didn't have asthma........it was the Inderal. He sent me back to the doctor with the instructions to pull me off the Inderal (they did and too fast and I was one sick puppy!!!) and the pulminary specialist pulled me off all the asthma medication. I DO NOT have asthma....it was the Inderal that was causing it. It was the SAME doctor that prescribed the Inderal and the asthma medication...a family physician. Just thought you would like this information on what beta blockers can do to you. Barbara
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#17 enigma

 
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Posted 22 September 2004 - 05:48 PM

KEVIN - I have to thank you for the info on the beta blockers. My doctor just recently gave me samples of them to try for lowering my blood pressure. Thankfully years ago I had heard negative comments about them so I decided to hold off trying them. Now after reading your posts I know I will definitely NOT take them, especially since I have full-blown celiac disease and Lupus looming large behind the scene (no obvious symptoms now, just a HUGE jump in my ANA level, which my doctor knows about but still gave me the beta blockers). So, thanks again for the info. And at your young age, I don't see why you aren't pursuing a medical career. Do it while you're young!
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#18 plantime

 
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Posted 22 September 2004 - 08:59 PM

1)Medical conditions that may or may not exist along with the Celiac Disease. If so, what came to be first-Celiac, or the other disease. Time period between?
2)Any and all prescription and over the counter medications/vitamin or herbal supplements you were taking within three years of experiencing your first celiac related symptoms. Please specify whether or not you have ever taken any enteric coated medication, too (A few types of aspirin, Tylenol, ibuprofen are coated-they are designed to pass through your stomach so they may digest in the UI)
3)Any immunizations taken within 5 years of your first symptoms-please specify if they were not routine (IE-If it was your first flu shot, or the first one you had had in ten years, etc).
4)Any major life stresses correlating with the onset of symptoms-
5)Have you ever been given a lab test for Candida or H. Pylori
6)If applicable-Did your onset correlate with Menopause or a pregnancy; do your symptoms change in relation to your period
7)Have you been diagnosed with Chronic Fatigue or Fibromyalgia.
8)Is your liver function abnormal? If so, did this occur before or after being diagnosed or 1st experiencing symptoms
9)Have you ever had peptic ulcers? If so, did this occur before or after being diagnosed with Celiac Disease, or 1st experiencing Celiac related symptoms
10)Have you ever sought a 2nd opinion? If so, were the findings different in any way
11)Do you live in a region that is known for its genetically modified grain/wheat production? If so, were you diagnosed in the early or mid 90's? (Keep in mind the fascinating thing about what you have is that it is a sensitivity to wheat/gluten, not necessarily a RAST allergy)
12)Do you feel, or do you know, that you may experience sensitivities to dairy?
13)Do you consume asparateme?
14)Have you ever had a stool analysis performed that measured for parasites?
15)Do you have mercury fillings, or have reason to believe that you have ever been exposed to high levels of mercury, lead, ammonia, or cobalt. Have you ever had a 24 urine test done for heavy metals?
16)Are you on HRT?
17)Do you live with a family member that has also been diagnosed with Celiac Disease?
18)Have you ever had any testing done on your Thymus gland?
19)Do you have gingivitis?
20)Is there any history of ADD in your immediate family?

Ok, here is my response, I hope it helps!

1. Food and environmental allergies and prediabetes. Allergies came first, as a child; Celiac was second, with adult onset; prediabetes was third, just occurred.
2. I do not remember when I had my first bout with celiac, most of the symptoms have just always been there. I did (and still do) take enteric coated medications: Ecotrin as a teen and now odorless garlic.
3. None-many vaccines are cultured in eggs, which I am very allergic to.
4. No.
5. No.
6. No.
7. No.
8. No.
9. No.
10. Yes; the findings were the same.
11. Yes, I live in farm territory. No.
12. I do not have problems with dairy.
13. No.
14. Yes, it was negative.
15. No mercury fillings, no exposure to heavy metals.
16. No HRT for me!
17. No.
18. Yes, it was normal.
19. No.
20. No.

If you have any questions for me, email me!
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#19 red345

 
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Posted 24 September 2004 - 01:59 AM

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#20 tarnalberry

 
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Posted 24 September 2004 - 07:16 AM

your last paragraph there reminded me of a time I argued - strenously - with my doctor against taking a particular antibiotic. well, I had taken it, and it made me sick. he didn't believe me, but fortunately the nurses had seen other patients coming back with this complaint as well, and essentially overruled him. given the vomitting it was causing (and I normally do NOT respond to antibiotics that way), that is probably one I would have refused to take (you can only go so long without keeping food down ever, and 10 days probably would have had me in a hopsital). that said, it would have been necessary for me to talk to my other doctor for a viable alternative - because just not taking meds for fear of potential side effects is, as you said, a dangerous thing.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#21 stef_the_kicking_cuty

 
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Posted 24 September 2004 - 02:12 PM

Hello Kevin,

before i start to answer your questions i'd like to say, i agree with enigma. You're still young and can learn medicine. I learnt medicine myself for several years, but failed the test, because due to the celiac my brain was like a sieve. I didn't find the subject difficult at all, i just can't remember it. I'm 28 now and several month ago it came out that i have celiac disease. A lot of my symptoms are better or gone now and i decided to go back to school and try the medicine thing again in a few years, which is even harder for me now, since english isn't my mother language (i'm from germany) and i'm living in the states now since last year november 5th.

But now to your questions:

1) Well, because of the problems i had all my life i think i had celiac all my life. But it was really triggered in the year 1998 after a tooth surgery and all the "real" problems started. When i was 17 (that was 1993, 5 years earlier) a doctor found out that i have some thyroid problems, but i can't remember anymore, if it was a hyperfunction or a subfunction. But it disappeared again a few month later after taking medication.
2) I've taken so many medications against so different things, i can't really remember all of the names to be truthfull (would be german medication anyway) But i do remember that i had an allergic reaction against Aspirin a couple of years ago. Before i got "really" sick in 1998 i actually never really took pills. I only remember taking antibiotics as a young adult. I think it was against a severe flue. And the other thing was against a gastro-intestinal tract infection and a fungus or something. I don't know how to say that in english. And i take Centrum Multivitamin since August this year.
3) Well, as a kid/baby i had all the (in germany) required vaccinations. Which is diphteria twice 1976 and one 1977 and then one reviver 1999, tetanus twice 1976 and one 1977. One tetanus in 1980 and one in 1983. And then another one 1989 and again another one 1998. And i got shots for poliomyelitis (all three types) 1976, 1977, 1978, 1986, 1998 and 1999. Then i got shots against rubella (german measles) 1987 and then Hepatitis B twice 1997 and once 1998. And when i came over here i had to get an MMR shot in february for my papers for the states. Whatever MMR is, you guys must now. All of them were just routine. And i wanted to get the hepatitis B because of my job as a police officer.
4) Well, in january/february 1998 i started with my own martial arts school plus i had the police duty shifts and slept only 4 hours each night until July 1999 when i stopped the police work, because i thought that this causes my severe headaches. And in 1998 i had this tooth surgery when the dentist put a filling in one of my teeth. When the anesthetization died down my pain started immediately and got even worth until my diagnosis this year in July.
5) I'm not sure, but i think yes.
6) No.
7) No.
8) No.
9) No.
10) No.
11) No.
12) Since i'm on the glutenfree diet a lot of my problems are gone or have improved. But i still have pain sometimes and so the idea popped into my head, that there might be something else. Until now i only tried to drink a glass of milk every day, but that doesn't seem to cause the problems. I will still try fructose and if that doesn't bring a result i'll see another dentist over here.
13) Never heard of that so i never took it. I don't know the german name for it.
14) Yes.
15) I strongly think, that the tooth surgery with this filling caused my problems and triggered the celiac. I still don't know, what kind of filling he put into my tooth. Those days my dentist just said, it's a new "less harming" substance which has tooth color and so you can't see it.
16) No.
17) I strongly believe, that my mother has it and that my grandma had it (according to their health problems). They've never been diagnosed though.
18) No.
19) I had it really bad until 1998 although i cleaned my teeth hysterically (i'm afraid of dentists). After that traumatic tooth surgery in 1998 i've never been to a dentist anymore, so i don't know.
20) No.

Well, I hope i could help you with this although i'm not from this continent...lol. If you have any other questions, please feel free to send me a mail.
Lots of greetings, Stef
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Stef

Next goals:
Results for 2011:
1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting
August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)
gluten-free since 07/21/2004
Shermans Dale, PA

#22 red345

 
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Posted 24 September 2004 - 11:22 PM

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#23 plantime

 
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Posted 25 September 2004 - 02:47 AM

I keep coming back to this and reading it over and over. Perhaps I should mention something else about myself that my sister reminded me of: I had rheumatic fever when I was 12. That is when I started exhibiting symptoms of arthritis, and even tested positive for Rheumatoid arthritis. Now, my Rheumatoid tests are negative, but my Osteoarthritis tests are positive. Hence I am on Vioxx for inflammation control. I have allergies to foods and pollens, my immune system just seems to over-react to the littlest thing! When I was pregnant with my second child, my ob-gyn did an immunity test. He said how fortunate that I had had all of the major diseases early on in life, and that the polio did not cause any permanent damage. I have not had any or those diseases, not even chicken pox. I did have all of the childhood vaccines, and was exposed to measles, mumps, and chicken pox as a child, but I never had the diseases themselves. He said my immunity levels were those of someone that had the diseases themselves, they were way to high to just be from exposure, including the polio. I don't know what that may have to do with Celiac, but if you are looking for something about the auto-immune system, well, there is mine. It could just be that my immune system goes berserk, and is just looking for a fight, so it fights with my body! If it is in hyperdrive, then maybe that would explain why I have so many allergic problems. They range from anaphlaxia (rice) to migraines (eggs, strawberries) to flu-like symptoms (grasses). I hope this thread stays open for a while, it is taking the shape of some good, deep research.
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#24 stef_the_kicking_cuty

 
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Posted 25 September 2004 - 02:08 PM

Hey Kevin,

it's me again, i can calm you down. Since i've had problems my entire life and the severe celiac symptoms already were triggered in 1998, i don't think, that my being over here caused it. Maybe it didn't even make it better, because of all that pizza...lol. But it sure didn't cause it. I already had a lot of bad problems before coming over. In fact, if i wouldn't have come over here, i probably still wouldn't know, what i have.

Let me tell you real quick how i found out i have celiac. I remember it as if it was yesterday. I came over here last year in november (the 5th actually). About 2 weeks later my parents in law had the idea we could eat chicken wings in a restaurant, because that would give me experience about new food over here. Well, i enjoyed the chickenwings, they tasted really great. But these chicken wings really gave me a pain i thought i pass out every moment. And i already had ordered mild for myself. I had migraines (sp?) and pain in my guts it wasn't funny anymore. And since my -those days- soon to be husband and i drove home immediately after that meal (we live 2 hours from his parents) he suggested one more time (like always): "Oh heck, you get sick so fast of traveling". I just mentioned to him not to be silly. I never heard about getting migraines from traveling. But maybe the pain in the guts. Well, however. The other day i went to the restroom and as soon as the damn chickenwings left my body (the natural way...lol) from one second to the other the pain stopped. Like somebody snipped with a finger. So for the first time in my life i thought, my problems have to have something to do with food. I mean, i didn't have a clue before, where my problems might come from. Well, i first suggested, i can't eat hot stuff. But then again i thought that can't be. I already had the symptoms in germany and i hardly ever ate hot stuff at home. So the first time i had the suspicion that it's from food in general. I told my doctor where i went to regularly at the beginning of this year. But he suggested one thing after the other and told me, he doesn't think, it's a food allergy. So what should i do. I made a food diary for myself and that's how i found out, that it must be that gluten. And because my doctor was so stubborn and first didn't test me for it i thought, well, just start this glutenfree diet and it worked fine for me. Well, i mentioned this fact to him and then suddenly (after my success) he wanted to test me. I reminded him, that the tests probably would be falsified, but he said, he would be sure it's not necessary to eat gluten before. He obviously doesn't have a clue... So i started to go back to glutenfood for a while (it was terrible). Of course the blood tests were negativ. I never made a biopsy. I feel well now, why should i. It's not that complicated than i first thought. You can live pretty good with that disease, if you are a little flexible with your time management and improve your cooking skills. And since i'm a "nightbird" i go shopping with list in the night, so nobody stares at me, while i read labels. And all the giants stuff members already know me and my problem and help me out, if i'm looking for something special. It's quite funny actually. Of course we don't have kids yet and still i'm not allowed to work (green card). So that gives me enough time to improve language and cooking skills enough every day. So i can improve without hectic for the day when our family grows and i start to work and get a little routine. But i'm changing subjects here.

In fact i actually only wanted to say thanks for your suggestions that it could be the Centrum vitamins. I think i read somewhere else they are glutenfree. But obviously they are not. I will give the Nature's Made vitamins a try and if my condition improves, we solved the problem. If not we might try something else. Sorry for my stupid question (maybe i already know it but don't see the forest of all the trees). What is RDA?

The next thing i found very important is, that i'm not only thinking, my mother has celiac and my grand-ma had it. But i know of a cousin that has MS. I thought that might help. This cousin, she is the daughter of one of my mother's sisters. So these problems probably runs in my mother's (or her mother's) side of the family.

I hope i could help you.
Nice greetings, Stef
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Stef

Next goals:
Results for 2011:
1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting
August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)
gluten-free since 07/21/2004
Shermans Dale, PA

#25 stef_the_kicking_cuty

 
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Posted 25 September 2004 - 02:17 PM

Ah, shoot, there's something else i actually wanted to say. Well, my cousin (the one with the MS). Well, i asked my mother, if they ever found out, where it came from. And my mother answered, they aren't sure about what caused it. But those times my cousin grew up they still numbed you with laughing gas at the dentist. And she loved it so much, that she kind of tried to get a lot of dentist appointments to inhale that stuff on purpose. Until in germany (or europe, i don't know) doctors suggested, that this laughing gas might play a major role in getting MS.

And i'm sure you heard about that english playwright who had MS and he tried the glutenfree diet and was almost healed when he died in the end. And they say MS is actually not healable.

Well, that was another thing i thought you might find interesting.

Greetings, Stef
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Stef

Next goals:
Results for 2011:
1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting
August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)
gluten-free since 07/21/2004
Shermans Dale, PA

#26 red345

 
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Posted 26 September 2004 - 01:35 PM

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#27 enigma

 
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Posted 26 September 2004 - 05:32 PM

Sorry to bring the subject up again about beta blockers but I do want to make a definite point. Everyone, especially us celiacs, should take a HUGE role, as much as humanly possible, in our health care. Many of you have learned, as I have, that we can not completely trust our doctors (they are only human, afterall) and that we SHOULD question their advice and do our own research and at times, yes, even refuse to take the medication they have prescribed (or just given to us for free as samples to try). I know now that I will NEVER take beta blockers because, as I stated earlier, I had already heard negative things about them years ago, and now from Barbara and you, Kevin. Just to ease your mind, Kevin, I will explain that I am already taking medication to lower my blood pressure (the reason I was given the beta blockers) but am experiencing a negative side affect so when I called my doctor she said she had some samples of a beta blocker if I wanted to try them. I did go by and pick them up but had that nagging negative feeling about trying them. Reading those posts did help in making my decision but WAS NOT the sole reason! We celiacs are a pretty experienced and savvy group just because of our variety of medical problems. I would NEVER jeopardize my health by suddenly stopping a medication based on info I read in a post, even by someone who sounds as intelligent as you, Kevin. A lot of good info is coming out of this thread and I hope it continues.
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#28 strack2004

 
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Posted 27 September 2004 - 01:25 PM

red345:I have just read an interesting book from the library that may have some bearing on the research you are doing. It is called "Sugars That Heal, The New
healing Science of Glyconutrients" by Emil I. Mondoa, M.D. and Mindy Kitei. It is published in paperback by Ballantine Books. Copyright is 2001. The book listes 8 essential saccharides and the role of each in maintaining health. Chapter 9 is "Addressing Chronic Fatigue Syndrome, Fibromyalgia, and Gulf War Syndrome." There is a comprehensive list of the sources he consulted for each chapter. Also there is a list of resources for the glyconutrients listed in the book. Phone numbers, addresses, and email addresses are included. The essential saccharides according to this book are: Mannose, Fucose, Galactose, Glucose, N-acetylglucosamine, N-acetylgalactosamine, N-acetylneuraminic Acid, Xylose. Food sources of each are listed. Part II: Strengthen Your Immune System, Intro., Common Cold and other Viruses; Treating Bacterial , Fungal, and Parasitic Infections; Alleviating Allergies, Asthma, and Other Pulmonary Diseases, Skin disorders; Arthritis, Diabetes, Other Chronic Illnesses, Inhibiting Cancer, Hepatitis, HIV and Opportunistic Infections, The last part deals with age-related subjects. The author does not put this information forward as a cure-all, but just as a possible approach to these problems. Perhaps you are already aware of this book. If so, ignore. Cheers, Ruth
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#29 cynicaltomorrow

 
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Posted 27 September 2004 - 09:34 PM

1) I am not really sure when I became gluten sensitive. But, I have had stomach problems for as long as I can remember. I was once diagnosed with depression. Although, that was in my early teenage years. I have Tourette's Syndrome. I have had persistent respiratory problems though. I got pneumonia at the age of 9. I had strep throat last year REALLY bad. I had bronchitis earlier this year (See #15).
2) I have dabbled in several vitamins, but suspected they made me sick (they are gluten-free though). I take Zyrtec every day. In the past I have taken Paxil, Luvox, Celexa, Ovcon, and Ortho Tricyclen Lo. Those were the only medications I ever took for a good amount of time. I have always used Ibuprofen to relieve menstrual cramps, but have recently suspected it may make me sick. I have taken several antibiotic series though. And.. anti-inflammatory steroids? Is that what they are? I took something when I had strep throat.. which didn't work and had to go in and get the shot in my bum. :) I was actually prescribed painkillers for this case of strep throat. I had prescriptions too when I had my wisdom teeth cut out 3 or 4 years ago.
3) I had a flu shot maybe a year ago. I know it was the first one I'd had in awhile. I also had both series of immunizations for Hepatitis A and B.
4) Well, I first went to my GI in August of last year. But, decided to hold off on his suggestions. I went back in April. During that period was my first year in college.
5) No
6) I usually find I have more severe symptoms during my period. In fact, I went to the gynecologist first to make sure everything was alright before I pursued anything with the GI.
7) No
8) Liver is A-Okay.
9) No
10) No. The test results really speak for themselves.
11) Probably so. I live in Oklahoma. There's wheat all over the place.
12) I've self-diagnosed myself as casein intolerant.
13) No
14) No
15) I'm pretty sure I was exposed to ammonia earlier this year. I was working with some old ammonia-coated drawings for my mom's work. I developed severe respiratory problems. I pretty much had bronchitis for several months. Needless to say, I quit working there. I used an inhaler from January through April. I was diagnosed in June.
16) No
17) No, but my mom has developed sudden autoimmune diseases. She developed a severe anaphalactic (sp?) reaction to NSAI and it almost killed her. It started with a reaction to Valium and ended up getting to the point where she couldn't take even Aleve. She also had antibodies attack her hair follicles. These things have all occurred within the last 4-5 years.
18) No
19) My gums do bleed sometimes when I brush my teeth.
20) No
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#30 red345

 
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Posted 28 September 2004 - 09:35 PM

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