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Has Anyone Ever Heard This Before?
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3 posts in this topic

I had a positive blood test for the antibodies a couple weeks ago. I haven't had my biopsy yet.

Anyhow, my father was visiting his gastro (for a regular colonoscopy) and he brought up that his grown daughter (me) might have Celiac's. The doctor asked how he knows and he mentions that I had a positive blood test. The doctor asked if I had the biopsy done and my father said not yet. Then the doctor said something strange.

He said, "your wife (my mother) is from Ireland, right?" My father said yes and the doctor said, well make sure your daughter gets that biopsy because 1 in 5 people of Irish descent will have a fake positive blood test for Celiac's.

Has anyone heard that before?

I was kind of surprised at that.

I would be happy to find that it was a false positive and that I don't have Celiac's. But, on the other hand, then why I'm having these problems (diahrea, pain, conspitation, etc) would still be a mystery then.

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Although I have not heard of that correaltion, I would like to comment on it.

I believe that there is a whole group of people that the medical community is missing the boat on. It is the group that tests positive for a gluten intolerance (presence of 'tons' of anti-bodies to gliadin) but have not yet developed the damage in the small intestines to give a diagnosis of Celiac's disease. These poor folks would be what he describes as the 'false positives.' They have not yet or may never sustain damage to the villi in their small intestines, but could benefit from a gluten-free diet, helping them avoid a whole host of other auto immune disorders.

I believe that gluten intolerance can lead to Celiac's disease 'as well as' many other auto immune disorders afflicting people today. Most of the medical community fails to recognize this and therefore does not encourage a gluten-free diet for anyone other than "gold standard" proven Celiacs.

If your biopsy is inconclusive or negative, I would recommend a trial on a gluten-free diet to see if it helps.Your response to a gluten-free diet along with your bloodwork results, would be sufficient to accept a gluten intolerant/sensitive diagnosis.

These are only my opinions on the matter...

I am NOT a doctor, nor do I play one on t.v.! :) I am just a mother of a gluten intolerant child who has read and chatted with others in the same boat. Please feel free to challenge me or point me towards any research and information, I'm always searching!

Priscilla

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I quite agree. Sure... if you go by the textbook definition of not being celiac until your villi are flat, then you could have a positive blood test without the textbook celiac diagnosis - doesn't mean that you should still eat gluten though.

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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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