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I've Finally Broken Through!


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16 replies to this topic

#1 elye

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Posted 08 March 2007 - 01:04 PM

How exciting...
I have written the Globe and Mail (the big Canadian national newspaper) health editor, twice, and our local paper, twice, about celiac disease and all the compelling things that we all know: the surprising incidence of the disease, the myriad of symptoms, the eventual scary consequences if it is not addressed, etc. I also have written to two local radio show personalities with the same info and a request to feature it on one of their shows. Well, no surprise...I heard nothing from anybody. Well, I wrote a letter to our Ottawa Citizen yet again yesterday, responding to an article that appeared a couple of days ago that spoke about our modern world of gluttony, and how so many of us are willing to put up with the gastrointestinal distress that comes with too much food in exchange for overindulging in excessive processed food. I jumped on this, and wrote in about how for countless numbers of unsuspecting people, the diarrhea, constipation, cramps, etc. may not have anything to do with HOW MUCH one has eaten but WHAT one has eaten: gluten. I continue from there. And they are publishing it. I am SO happy. So anyone in the Ottawa area, check the Citizen out Saturday or Sunday, the letters section. It can also be read online. Gotta start with a small audience, and hopefully it can grow!
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Emily

diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006

But healthy and happy! Posted Image


11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)

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#2 Generic

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Posted 08 March 2007 - 01:12 PM

That's great! I find the squeaky wheel aproach works pretty well.
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#3 Jestgar

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Posted 08 March 2007 - 01:27 PM

WOOOHOOO!!!! Good for you!
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"But then, in all honesty, if scientists don't play god, who will?"
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My sources are unreliable, but their information is fascinating.
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Leap, and the net will appear.

#4 RiceGuy

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Posted 08 March 2007 - 01:43 PM

Fantastic!!

On behalf of all Celiacs, a big Thank You seems most fitting. I hope it open the eyes of many readers.
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A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

#5 MurrayM

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Posted 08 March 2007 - 04:02 PM

This is me giving you a great big pat on the back!!!

When your letter gets put on the papers website, could you post a link to it on this thread? I'd love to read it.

Murray
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#6 elye

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Posted 09 March 2007 - 04:17 AM

Yep, sure thing. Should be tomorrow, which is great because Saturday is their BIG distribution day. I'm hoping there will in turn be written responses to my letter, and one big snowball.... :)
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Emily

diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006

But healthy and happy! Posted Image


11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)

#7 darlindeb25

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Posted 09 March 2007 - 04:21 AM

I found this in another forum and will be taking it to our local news station. They did a segment on celiac disease a month or so ago and I am hoping they will pick up on this and follow through:



Public Service Announcement: Spreading Celiac Awareness Nationwide

Celiac Disease...If you’re reading this, you’ve probably heard of it, but 97% of the people who have it still don’t know what it is.

To help raise awareness and get the 3 million Americans with celiac disease accurately diagnosed, CNN has graciously helped the National Foundation for Celiac Awareness write, film, edit and produce a 30-second public service announcement (PSA) featuring CNN Newsroom Anchor Heidi Collins.

To view the PSA click the start button above!!

Now…we need your help to get the PSA aired nationwide on as many stations as possible. By getting the PSA aired in more communities, we can instantly educate millions of people about celiac disease and help them get on the path to restoring their health and reclaiming their lives.

Join the 50 Station Challenge!!

If you’re ready to join our 50 Station Challenge, here’s what you need to do:

1. Contact the stations you’d like to air the PSA. You can find their contact information in your local telephone book or online at their website. Ask to speak to the person in charge of handling public service announcements.

2. Ask this person if the station is airing PSAs and if they might be interested in celiac disease. If you have celiac disease, tell them your personal story. Telling your personal story will show why it is so important for the station to air the PSA.

3. Ask them to view the PSA at http://www.celiaccen.../Other/PSA/358/ or to contact Vanessa Maltin 215-692-2639 or Vanessa@celiaccentral.org. Some stations may request a DVD or BETA copy. In this case, please ask for the address of the station and the name of the person whose attention the package should be sent to. Send this information to Vanessa Maltin and she will send the DVD or BETA version to the station.

4. About one week after you’ve emailed them the link or NFCA has sent them the DVD or BETA copy, it is very important for you to follow up to see that the person received your email or our package and to find out whether they’d like to air it.

5. If they say yes, FANTASTIC!! If they say no, don’t be discouraged. Pick another station and try again!! .


To join the 50 Station Challenge, please contact:
Vanessa Maltin
National Foundation for Celiac Awareness
215-692-2639
Vanessa@celiaccentral.org

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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#8 elye

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Posted 09 March 2007 - 10:44 AM

Wow, Deb, that is fantastic...I'm on it!
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Emily

diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006

But healthy and happy! Posted Image


11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)

#9 Mtndog

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Posted 09 March 2007 - 10:47 AM

That is awesome!!!!!!!!!!!!!!!!!!
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Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.
Albert Careb


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#10 Viola 1

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Posted 09 March 2007 - 01:49 PM

Congratulations on getting published! That's fantastic! Good for you for being so persistant. :D


Thanks Deb for all that information.
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Shirley


[Save the Earth, It's the only planet with chocolate and wine.

It isn't about waiting for the storm to pass...
It's about learning to dance in the rain.

Gluten free since 1989


West Kootenay.... British Columbia

#11 elye

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Posted 14 March 2007 - 03:45 AM

Okay! Almost a week later, but it's finally appeared:

http://www.canada.co...l...da7&k=22841
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Emily

diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006

But healthy and happy! Posted Image


11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)

#12 wowzer

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Posted 14 March 2007 - 05:16 AM

Great article Emily. I live in the USA, but was born in Canada. My little sister was diagnosed with celiac at a year old. The more I'm reading about celiac, the more of my symptoms fit. My blood test came out negative. A lot of my symptoms fit DH. I have had so many different rashes that were called anything from poison ivy to impetigo. I have been taking synthroid for over 10 years. My immune system has been out of whack for a long time. I finally went gluten free the beginning of the year. I have had many improvements since doing this. I'm 52 years old. I still am in the learning process, but have found I'm much more sensitive to gluten. Wendy
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#13 Ursa Major

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Posted 14 March 2007 - 11:31 AM

Excellent article, Emily. I e-mailed it to my oldest daughter in Kanata, she may find it interesting.
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#14 ArtGirl

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Posted 14 March 2007 - 12:59 PM

Well written article, Emily. What a great thing that they published it. This may lead the way for more articles.

Great job.
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Valda
Enterolab results: ...two genes for gluten intolerance ...casein intolerance
other sensitivities: corn, eggs, soy, potato, tapioca
Hypoglycemic
Sensitivity to high EMFs [electromagnetic frequency] (limits my time in front of the computer)
Living a healthier, happier life.
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If I take the wings of the morning, and dwell in the uttermost parts of the sea, even there shall thy hand lead me, and thy right hand shall hold me.Psalm 139: 9,10

#15 elye

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Posted 14 March 2007 - 01:49 PM

This is so great...you cannot imagine the number of people who have come up to me today and said, "Wow! Saw your article...great stuff! So, you have this illness. You know, I'm suspecting that (fill in "I", or "my daughter", or "my mother", as they varied from person to person) may have this, too." And that's the only in I needed. It will be interesting to see if the letter has any written responses. The one thing I now regret not mentioning in the article (it's tough, because you only have a maximum of three hundred words) is the eventual consequences if the condition is not addressed. Hopefully those who suspect will go to their GP, who will tell them. Or the GI that they hopefully get a referral to...
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Emily

diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006

But healthy and happy! Posted Image


11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)


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