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I've Finally Broken Through!


elye

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elye Community Regular

How exciting...

I have written the Globe and Mail (the big Canadian national newspaper) health editor, twice, and our local paper, twice, about celiac disease and all the compelling things that we all know: the surprising incidence of the disease, the myriad of symptoms, the eventual scary consequences if it is not addressed, etc. I also have written to two local radio show personalities with the same info and a request to feature it on one of their shows. Well, no surprise...I heard nothing from anybody. Well, I wrote a letter to our Ottawa Citizen yet again yesterday, responding to an article that appeared a couple of days ago that spoke about our modern world of gluttony, and how so many of us are willing to put up with the gastrointestinal distress that comes with too much food in exchange for overindulging in excessive processed food. I jumped on this, and wrote in about how for countless numbers of unsuspecting people, the diarrhea, constipation, cramps, etc. may not have anything to do with HOW MUCH one has eaten but WHAT one has eaten: gluten. I continue from there. And they are publishing it. I am SO happy. So anyone in the Ottawa area, check the Citizen out Saturday or Sunday, the letters section. It can also be read online. Gotta start with a small audience, and hopefully it can grow!

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Generic Apprentice

That's great! I find the squeaky wheel aproach works pretty well.

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Jestgar Rising Star

WOOOHOOO!!!! Good for you!

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RiceGuy Collaborator

Fantastic!!

On behalf of all Celiacs, a big Thank You seems most fitting. I hope it open the eyes of many readers.

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MurrayM Rookie

This is me giving you a great big pat on the back!!!

When your letter gets put on the papers website, could you post a link to it on this thread? I'd love to read it.

Murray

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elye Community Regular

Yep, sure thing. Should be tomorrow, which is great because Saturday is their BIG distribution day. I'm hoping there will in turn be written responses to my letter, and one big snowball.... :)

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darlindeb25 Collaborator

I found this in another forum and will be taking it to our local news station. They did a segment on celiac disease a month or so ago and I am hoping they will pick up on this and follow through:

Public Service Announcement: Spreading Celiac Awareness Nationwide

Celiac Disease...If you

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elye Community Regular

Wow, Deb, that is fantastic...I'm on it!

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Mtndog Collaborator

That is awesome!!!!!!!!!!!!!!!!!!

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Viola 1 Rookie

Congratulations on getting published! That's fantastic! Good for you for being so persistant. :D

Thanks Deb for all that information.

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elye Community Regular

Okay! Almost a week later, but it's finally appeared:

Open Original Shared Link

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wowzer Community Regular

Great article Emily. I live in the USA, but was born in Canada. My little sister was diagnosed with celiac at a year old. The more I'm reading about celiac, the more of my symptoms fit. My blood test came out negative. A lot of my symptoms fit DH. I have had so many different rashes that were called anything from poison ivy to impetigo. I have been taking synthroid for over 10 years. My immune system has been out of whack for a long time. I finally went gluten free the beginning of the year. I have had many improvements since doing this. I'm 52 years old. I still am in the learning process, but have found I'm much more sensitive to gluten. Wendy

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Ursa Major Collaborator

Excellent article, Emily. I e-mailed it to my oldest daughter in Kanata, she may find it interesting.

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ArtGirl Enthusiast

Well written article, Emily. What a great thing that they published it. This may lead the way for more articles.

Great job.

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elye Community Regular

This is so great...you cannot imagine the number of people who have come up to me today and said, "Wow! Saw your article...great stuff! So, you have this illness. You know, I'm suspecting that (fill in "I", or "my daughter", or "my mother", as they varied from person to person) may have this, too." And that's the only in I needed. It will be interesting to see if the letter has any written responses. The one thing I now regret not mentioning in the article (it's tough, because you only have a maximum of three hundred words) is the eventual consequences if the condition is not addressed. Hopefully those who suspect will go to their GP, who will tell them. Or the GI that they hopefully get a referral to...

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Mtndog Collaborator

YEAH- THAT is great!!!!!!!!!!!!!!!!!!

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Viola 1 Rookie

Super job Emily!! You've done us all proud!

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  • Posts

    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      What kind of stool test was done? Can you be more specific? 
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      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!
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