Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anyone Ever Diagnosed With Somatization Disorder?
0

7 posts in this topic

I was wondering if anyone else had been diagnosed with Somatization Disorder before they actually found out that they had food intolerances. I guess the qualifying requirements for a diagnosis are "vague" complaints of pain, neurological, gastro problems, food intolerances, for which there is no known or found cause. I just received that diagnosis from my GP despite the handful of positive food intolerance reports from Enterolab. I don't know how I will ever get that Somatization label off of my medical record. That diagnosis just seems like a convenience when they don't know or want to understand what is wrong with you.

0

Share this post


Link to post
Share on other sites


Ads by Google:

If the doc is a private doc, just change doctors and don't have those records sent to the new one.

My local doc told me I had somatization disorder, though she didn't call it that. She said that I had psychological issues I wasn't even aware of that were causing me to be sick. She maintained this was the case even after my postive Lyme Disease test!

I obviously go to a different doctor for treatment!

Since Enterolab hasn't published yet, most doctors won't accept their tests as a diagnosis. Since you can go gluten-free without a doctor's supervision, I just wouldn't mention it to them. If it does come up, just keep it simple and say gluten makes you feel bad, you feel better off it. This is how I handle the gluten intolerance with doctors.

0

Share this post


Link to post
Share on other sites

This definitely happened to me. I was diagnosed with Anxiety, Somatization, Narcissistic Personality Trait disorders and now years later..... Celiac Disease. Going gluten-free has definitely helped, and now you have to learn to live with it because it's not going away any time soon.

If a doctor tells you it's in your head - go to a new doctor.

If a doctor tells you it's fibromyalgia - go to a new doctor.

If a doctor tells you it's stress - go to a new doctor.

If a doctor tells you it's anxiety - go to a new doctor.

DO Get counseling from a local source.... it helps immensely.

1

Share this post


Link to post
Share on other sites

So, here's the thing... Stress CAN cause these symptoms, and fibromyalgia isn't just a myth.

A psychologist I saw for a long time suggested somatization for me - and she's right. It's fairly clear; during times of particularly high stress during a few years, the tendonitis in my wrists would get significantly worse. And there is perfectly reasonable physiologic explanation for this response as well

I have a fibromyalgia diagnosis, and I got it long after going strictly gluten free (and dairy free). Also chronic migraines. And when I was laid off from my stressful job, I felt a lot better, and still do. Some of it *is* a stress response - stress makes significant changes to body chemistry and the use of the nervous system (stress biologically shuts down the digestive system) and chronic stress causes very long term changes to body chemistry and brain chemistry. (I highly suggest reading "Why Zebras Don't Get Ulcers" for a thorough, though lay, discussion of the medical effects of chronic stress.)

I'm not saying that doctors always give the right diagnosis, or that they don't make assumptions about "things being all in your head". But somatization IS real, as is fibromyalgia (if only as a "we don't know what is causing it" sort of thing; it's not always gluten or food, though it may well be for some people), stress DOES cause real physical problems that need to be addressed, and anxiety is real as well. So just ignoring all of those things will do you a disservice.

And I want to be very clear about one thing regarding the stress issue, because I went through it and I see it every week with my yoga students. Chronic stress does cause very real physical symptoms for many, many people. And the stress can be addressed and handled, but - quite frankly - most people do not want to take the steps necessary to eliminate that stress. It usually means taking things out of your life (fewer obligations) or changing jobs or making other significant lifestyle changes that most of us don't want to make. And so, we blow off the "stress" idea because addressing it is too big of a change. And so doctors through it out like a "it's stress, there's nothing we can do" because they see their patients do this.

0

Share this post


Link to post
Share on other sites

I think there's also the fact that we tend to assume that a) "stress causes disease" as synonym with B) "if the cause is stress, then it's not a disease." Which, if you think about it, is a case of leaky logic. It's either a) or B). Does managing stress improve your condition? Why, yes. You can manage symptoms. Does going through a stressful moment exacerbate it? Of course.

I think that when a doctor uses "it's just stress" when they really mean "you're an hypochondriac nuisance," it is a sign of a poor physician. Not only they fail Logic 101 (see above), but they also seem stuck in a ridiculous para-Platonic notion of mind VS body. In which case, they probably slept through neurology and a bunch of other stuff. And heaven knows what the other stuff they slept through was.

Personally, when I hear "stress," I get scared. They treated dad for stress - he had a life-threatening aneurism. They treated me for stress - I have thyroid disorders. Get yourself together, docs!

0

Share this post


Link to post
Share on other sites




I agree with Chaser 100%. While irritable bowel syndrome, stress, somatization, fibromyalgia, anxiety and many other 'bucket' diagnoses are all legitimate descriptions of various conditions, most of them are not very helpful to the patient.

Stress, as Tarnalberry says, is something you can do something about if you are aware of it or made aware, and motivated if it is an applicable diagnosis. Most of us have a pretty good idea of whether we are under stress or not.

I was diagnosed myself with fibromyalgia, but once all the other issues I had going on (recovering from injuries sustained in a head-on auto accident) were resolved, I no longer had fibromyalgia. And yes, I did have all the trigger points, but I had many others that were just as painful in other places that are not classic fibro. And the Elavil they prescribed me for sleep made me depressed and none of the recommendations worked for me. So I believe it was just a gratuitous diagnosis in my case, although I was clutching at straws at the time.

Irritable bowel syndrome is just a case of the doctor admitting he doesn't have a clue why the patient has gastrointestinal distress.

Many people are anxious, but unless you can determine whether it is metabolic, neurologic, psychologic, situational, or personality disorder, and offer appropriate treatment / support, the diagnosis in and of itself doesn't do the patient any good.

Somatization would appear to be a subjective judgment on the part of the doctor and may or may not have validity. Certainly, if you are under stress and tension, it can affect your physical functioning and cause strain on the tensed parts of the body. But I would want some pretty clear analysis before I accepted this as a diagnosis.

For me, a diagnosis needs to be helpful to the patient in dealing with the condition. On most occasions I have seen these diagnoses used and 'treated', there has not been a lot of help for the patient. Just my very humble opinion.

0

Share this post


Link to post
Share on other sites

Irritable bowel syndrome is just a case of the doctor admitting he doesn't have a clue why the patient has gastrointestinal distress.

For me, a diagnosis needs to be helpful to the patient in dealing with the condition. On most occasions I have seen these diagnoses used and 'treated', there has not been a lot of help for the patient. Just my very humble opinion.

#1 is right on. Which is linked to #2.

Bad doctors are just like bad dates: they're only comfortable when the person in front of them is 'ticking all the boxes.' And if she/he doesn't then they accuse them of drama. :huh:

I now consider myself lucky to have a team of doctors that feel OK with the possibility their patient may be sick, but they can't figure out why, or that the patient has something that medicine has not yet wrapped its head around, or that the patient's body may simply have its own individual quirks.

But I do see why some people might prefer an IBS diagnosis or some feel good pill over "your bloodwork shows a condition that usually behaves so and so, but it may not as well, because it is a very unpredictable condition; it may develop in a month, years, or never; you have sensitivities that will force you to a rotational diet for life and that may change over time; oh, by the way, those you have are certainly allergic reactions, but the variables that cause them may be too complex to reproduce in a lab; after all, we have totally no idea why are you alive and functioning, so that fits the pattern." So either I am a medical wonder, or stuff just works that way. Or, as my oncologist used to say: "medicine is not a science, it's an art."

Something like that forces the patience to feel the disease rather than be the disease, because you need to pay constant attention to the signals of your body, rather than sticking to a protocol. And modern society is precisely predicated on body and mind not talking to each other.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,341
    • Total Posts
      920,478
  • Topics

  • Posts

    • As a GI specialty nurse who also has celiac I can tell you that it can not be diagnosed by CT and rarely unless you have severe disease can it be diagnosed by colonoscopy.  Those that have had it diagnosed by colonoscopy have such because their MDs were above to get into the small bowel from the bottom and take biopsys.  Celiac damage is not seen in the large intestine.  Also many people do not have diarrhea, many have constipation or a 50/50 mix between the two.  Celiac has 300 connected symptoms and sometimes no symptoms at all.  It's called the " great pretender" because of this.
    • Okay, thanks! I am 24 but my husband and I don't plan on having kids. However, the more I thought about it, the more I think I should get one for my brother's sake. Especially after my doctor's office called this evening to say my bloodwork tested positive for Celiac. Guess I will be on this forum longer than I thought!
    • You just got diagnosed Celiac and are wondering how serious this really is. What if there is just a little gluten in your food? What if you use the same toaster for your gluten-free bread as your wife's/husband's regular bread? What if those french fries are gluten-free but they fry them in the same fryer as those nice gluten coated onion rings? View the full article
    • Hi, I've never been on a forum before but thought I might find some answers here.  I have never been tested for celiac but a nurse practitioner I saw a few years ago told me she thought I would benefit from a gluten free diet.  At first, I thought I could never do this but after some encouragement I did try.  I did feel much better after going gluten free.  She never tested me for celiac. I turned 50 years old last year and I had a colonoscopy for the first time and had three polyps removed.  The surgeon said that my colon looked like I was a chronic laxative user.  I haven't used a laxative for a very long time.  I was at the time drinking a natural tea to help me to have bowel movements.  Before starting the tea I had always had difficulty with bowel movements and never had them once a day but with the tea I was able to go once a day. At the end of last month I developed severe pain after I would eat (I had my gallbladder removed at the age of 19).  One night the pain got so bad my husband had to drive me to the ER.  My liver functions were high as well as a few other things.  They did a CT scan of my abdomen and pelvis that showed wall thickening of my transverse colon and minimal irregularity involving the transverse colon.  My descending and sigmoid colon were collapsed.  There were a few tiny mesenteric lymph nodes present on the right.  They diagnosed me officially with colitis but said that most likely I had a gallstone (even though I don't have a gallbladder) that had come from the liver and had gotten stuck in the common bile duct (it did not show up on the CT scan).  I usually have a high ferritin level too.  I've been home from the hospital stay for about a month now and still have tenderness in the epigastric area. Some of this may not have anything to do with celiac but was wondering if anyone has been diagnosed with celiac by CT scan or colonoscopy or if anyone has had the same problems that I have had and found out what has caused it.  I cannot see the gastroenterologist who saw me in the hospital for a couple of months.  Can you have celiac and not have diarrhea as I am just the opposite? Any help would be appreciated!  Thanks!  
    • I had an acne flair up after going gluten free but it ended up improving and some long-term back acne I had been dealing with actually went away.  I think going gluten free was a shock to my system and at first I actually felt worse but after about a month things got better. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,411
    • Most Online
      1,763

    Newest Member
    Aly46
    Joined