Posted 22 September 2004 - 03:53 AM
Posted 22 September 2004 - 07:41 AM
But, his blood work and biopsy just came back negative. And, he was diagnosed with the dairy allergy when he was very young. So, that being said, I'd elminate dairy and go from there.
I'm not sure about the African American ratio to this disease, but I'm British and my husband is Danish. We are both gluten-free and my doc said that Northern Europeans are more likely to have this disease. That being said, a friend of mine is Philipino and she has it. Go figure.
Good luck and don't just assume it's celiac disease.
Take care and keep us posted.
Gluten free since 5/03/04
Posted 22 September 2004 - 01:50 PM
Food allergy maybe makes sense though, he did have an allergy to the soy formula he was on when we first brought him home. He was having blood in the stool, so it was very obvious then. I would shudder to think about how he would be without milk for even a day though! He seriously wants it most of the day but I limit him to 3 cups (about 8 oz each) per his old pediatrition (we recently moved) He will go to the fridge and just cry or try and take me there all throughout the day. I guess that is one of the reasons I started thinking about celiac disease, my daughter wanted to live off milk before she was diagnosed too! I would think if milk was bothering him it wouldn't be the thing he craved so much, but maybe not!
My trust in doctors is kind of shot right now, so I am trying to figure things out the best I can without risking a condescending doctor right now!
Posted 22 September 2004 - 05:01 PM
Since you are in a new area, maybe you can use it to "interview" several pediatricians before settling on one you like. I agree about the medical community. They really hate it when their patients know a little more about something than they do. But persevere for your son's sake.
One bit of advice - getting your son's health issue identified is like eating a huge elephant. You know how to eat an elephant, don't you? One bite at a time. That's how you have to tackle this, otherwise, you'll be really overwhelmed and stressed. Kids pick up on that, too.
And, take some time for yourself. Draw a hot bath or pick a good book to read. Not sure where you live, but here in Northern California, the weather is just great for sitting in the back yard and enjoying the sunshine, with or without reading materials.
Sorry you have to go through this. I truly understand your situation. Hang in there keep us posted.
Gluten free since 5/03/04
Posted 22 September 2004 - 09:08 PM
The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
Posted 23 September 2004 - 03:10 AM
Posted 23 September 2004 - 06:24 AM
Posted 23 September 2004 - 08:30 AM
It may be a step, but it still doesn't explain the bloated tummy! An allergy could though, so I think that is probably where I need to look.
Posted 23 September 2004 - 09:18 AM
I agree here but I would do at least 6 weeks. Some say 12 to 20 weeks is what it takes to get dairy completely out of your system. However, from personal experience, you usually see signs of improvement quickly enough to know by 4 or 6 weeks if it is the culprit. Why was he on soy formula? Did he not tolerate dairy formula?
His craving for the dairy would lead me to think it is an allergy. While it does sound strange, many times an allergic person will crave the very food that makes them sick. It will be difficult for you and him, but I think you should try taking him off dairy for 2 to 3 weeks, and see if there is any improvement. I wish you the best!
Because of the AA decent, I would not immediately suspect celiac but you never know where they might have been some European blood mixed in.
My allergy was probably always there but I was not diagnosed until 5 or 6 years old when it got severe. Also, allergies develop from over exposure to a substance. This can happen at any age. Also, they are finding children often do not "out grow" an allergy but the symptoms may change. Also, both my girls are dairy "intolerant" but both tested negative on allergy tests. But clearly neither can have it. I have heard kids with whooping cough sound better than Beth does when she gets milk.
Posted 23 September 2004 - 09:54 AM
I thought Celiac might be off, but like you said, you never know what genes could be floating around, especially since I really know nothing about the birthfather. I did notice that his birthmother's grandmother died of stomach cancer, but that can come from things other then celiac's as well!
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