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Celiac With Fever
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I will run a low-grade fever for up to 2 weeks (usually just one week) but the docs don't know why. My CBCs are always OK, Lupus, Rhumatoid Arthritis, etc. all negative. My allergist just said to take Tylenol for a week until the fever goes away which I have to do so I can work, I still don't know why I have these fevers!

Does anyone else have this problem and have you ever heard about this being a symptom of celiac disease?

The fevers started about the time I realized I am lactose intollerant--about 5+ years ago. I don't get sick, I am just tired.

Please help...Kate

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Have you seen an infectious disease specialist to cover infectious causes? For me, prior to going gluten-free, my temperature _dropped_ whenever I got sick - and it's almost never as high as "normal" anyway.

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Yes I did about 2 years ago - they released me from the hospital when my fever went away on its own, after about a week without discovering why...

-Kate

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Anytime I get gluten in my system I run a fever of about 99(I always run below normal any other time). I have always chalked it up to the immune response that is going on because of the gluten ingestion. White cells are being produced to fight against the gluten, so I figured that was what the fever resulted from.

-Jessica

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When I first got REALLY sick from celiac disease I ran fevers up to 105 (not a typo) for 11 days. At that point I was hospitalized and six days later tested positive for celiac disease (blood tests high and no visible villi). But the reason they tested for celiac disease was because of my severe anemia, not the fever, which apparently is unusual. They kept looking for cancer for that.

I ran off and on fevers that gradually came down in severity. But for two months I spiked a fever over 100 at least twice a day. And my normal temp is under 98. Awful joint and muscle aches, too.

richard

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I have literally run a low grade fever for three years (not a typo either). :D It's getting better since I went gluten-free and have gotten my blood sugar under better control. If I get "glutened" or have a wild swing in my sugar, it's an immediate fever.

Hope that answers your question.

Brenda

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I found an interesting site this evening that has to do with temp. It discusses low body temp. It says :

Chronic low body temperature, also known as Wilson's Syndrome, is related to many syndromes. It is found in many cases of allergies, apathy, chronic fatigue, "brain fog", "personal failure", depression, dizziness, hypoglycemia, lethargy, passive/aggressive syndromes, skin and joint conditions, sleep disorders, sexual dysfunction, past sexual abuse, yeast problems, porphyria, and many other poorly defined chronic low health states. Obviously, not all chronic problems are related to chronic low body temperature; but it may be prudent to measure one's body temperature on a routine basis to see if this is a possibility.
http://www.mall-net.com/mcs/coldbody.html

I found it interesting because it says "allergies, skin and joint disorders, brain fog, lethargy" Which are just a few symptoms that align with Celiac.

I know I run a below normal temperature usually and when I get gluten I get a low grade fever.

I was just curious how many other folks out there run a below normal temp regularly.

-Jessica :rolleyes:

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I use to have nearly constant low grade fevers before I went gluten-free. Since then my body temp does seem to be somewhat below normal.

Ianm

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I am so shocked to see this. I have run a low fever, I think around 96 degrees and never related it to the celiac disease. Interesting.

Sally

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My son has run high fevers (up to 105.1) all his life. A year ago when he was 7 he was diagnosed by an infectious disease specialist with a periodic fever disease called FMF (Familial Mediteranean Fever). But since we started him on the gluten-free diet the same month that we started him on the medication for the fever disease, they are going to take him off the meds and see if his fevers come back. This will happen sometime over the next few months. He see's the doctor this month. Well he has a fever today, but I am not sure if it is just a virus or if he might have grown out of the dosage for the meds. The doctor warned me that he could start getting break-thru fevers when he outgrew the dosage, and he has grown literally 10 lbs and 3-4 inches since going gluten-free last March!

Anyhow, I guess what I'm trying to say, is that sometimes the fever might be unrelated to gluten. You might have something else causing it, or it could be just your body's response to gluten ingestion.

What are the chances of one kid getting two strange genetic diseases? FMF really is rare, celiac disease is only thought to be rare, and the news is spreading quickly that it isn't but still I've got to think the chances of him getting both are pretty slim. To get FMF both parents have to be carriers of the gene and pass on both copies. No one in either side of our families ever had this disease and we both only have a little bit of Mediteranean in our bloodlines. And the variant he has is one they haven't even isolated the gene for. They have only isolated the genes for the top 9 variants. We only got the diagnosis of FMF because of a very good doctor. If we hadn't gotten to go to him we may have still been clueless. Other doctors passed over the FMF diagnosis because of our apparent genetic backgrounds, which didn't really match up with the known genetic backgrounds for FMF. Mostly it is the eastern mediteranean people, and we have northern mediteranean, and only a little of that! I joke around sometimes about how we found the "right" doctor. The doctor's name is Dr. Wright!! :D

Also, my son's "normal" his temperature range is between 96.6 and 98.8. With his most common temp being aroung 97.2. I chart his temp at least 3 times every day for the last 2 years and so I pretty much know what is normal for him. I would say that is low. The lowest he ever got was 95 and he was borderline hypothermic. This was after a fever episode of 105 and his temp dropped 10 degrees in a matter of 2 hours! To say I was freaked out is an understatement. It is sort of like his internal thermostat is broken. The meds he takes daily sort of cause his body temperature to normalise.

Anyhow, I hope that you find out what is causing your fevers. It could be gluten or something else.

God bless,

Mariann

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I think it's important that we don't label everything as having something to do with celiac.

I have been sick for almost 3 months and went through "it's all in your head" again. It brought flashbacks to all the years I had celiac without knowing it.

It appears it's a diagnosis of achalasia often is suspected on the basis of the history. Patients usually describe a progressive (worsening) of dysphagia for solid and liquid food over a period of many months to years. They may note regurgitation of food, chest pain, or loss of weight. Rarely, the first symptom is aspiration pneumonia

I had been having a problem breathing, everytime I ate the pressure would be so bad in my chest and I did have pneumonia. Anyway, this is also possibly an immune disorder.

Food for thought.....

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I have since figured out that my fever is usually triggered by yeast - not gluten. It was an amazing discovery and I only had this problem since I figured out the triger when I eat fruit that is ripe or sweet desert that has not been refridgerated and it "hits" me again.

I was surprised to read about the low temp possibilities - my youngest son, the one withOUT stomach problems but with many allergy problems has a temp that runs about 1 degree below normal. The school now sends him home if he even runs up to 99 because for him, that is the eqivilant of over 100 for most people.

-Kate

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Last spring when I was very sick for a month because of the GI I ran a fever off and on. Pretty high for a little bit there too.

During the summer, when I got glutened, I ran a low fever too.

I am normally a bit under normal in temperature.

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Do any of you have elevated platelet counts with the low grade fever? How about Hashimotos? I have been running a low grade fever- 99-100.3 degrees since last Dec. every day, and my platelet count has gotten to 526,000. One dr. said I have a bone marrow disorder essential thrombosis cythemia). Now I found out I have celiac and am hoping this is the cause of the fever and elevated platelet count. I also have Hashimotos. Feeling horrible and getting ready to start the gluten-free diet and am a bit nervous about getting started. Anyone have any input or similar symptoms?

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Low body temps are indicitive of hypothyroidism. My temp is usually around 97.6. Before and after gluten free I have low grade fevers that come and go. For me a low grade fever starts at about 98.3, but will go up to 98.9. I get chills and hot skin and feel terrible when my temps are here.

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Low body temps are indicitive of hypothyroidism. My temp is usually around 97.6. Before and after gluten free I have low grade fevers that come and go. For me a low grade fever starts at about 98.3, but will go up to 98.9. I get chills and hot skin and feel terrible when my temps are here.

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My son has run high fevers (up to 105.1) all his life. A year ago when he was 7 he was diagnosed by an infectious disease specialist with a periodic fever disease called FMF (Familial Mediteranean Fever). But since we started him on the gluten-free diet the same month that we started him on the medication for the fever disease, they are going to take him off the meds and see if his fevers come back. This will happen sometime over the next few months. He see's the doctor this month. Well he has a fever today, but I am not sure if it is just a virus or if he might have grown out of the dosage for the meds. The doctor warned me that he could start getting break-thru fevers when he outgrew the dosage, and he has grown literally 10 lbs and 3-4 inches since going gluten-free last March!

Anyhow, I guess what I'm trying to say, is that sometimes the fever might be unrelated to gluten. You might have something else causing it, or it could be just your body's response to gluten ingestion.

What are the chances of one kid getting two strange genetic diseases? FMF really is rare, celiac disease is only thought to be rare, and the news is spreading quickly that it isn't but still I've got to think the chances of him getting both are pretty slim. To get FMF both parents have to be carriers of the gene and pass on both copies. No one in either side of our families ever had this disease and we both only have a little bit of Mediteranean in our bloodlines. And the variant he has is one they haven't even isolated the gene for. They have only isolated the genes for the top 9 variants. We only got the diagnosis of FMF because of a very good doctor. If we hadn't gotten to go to him we may have still been clueless. Other doctors passed over the FMF diagnosis because of our apparent genetic backgrounds, which didn't really match up with the known genetic backgrounds for FMF. Mostly it is the eastern mediteranean people, and we have northern mediteranean, and only a little of that! I joke around sometimes about how we found the "right" doctor. The doctor's name is Dr. Wright!! :D

Also, my son's "normal" his temperature range is between 96.6 and 98.8. With his most common temp being aroung 97.2. I chart his temp at least 3 times every day for the last 2 years and so I pretty much know what is normal for him. I would say that is low. The lowest he ever got was 95 and he was borderline hypothermic. This was after a fever episode of 105 and his temp dropped 10 degrees in a matter of 2 hours! To say I was freaked out is an understatement. It is sort of like his internal thermostat is broken. The meds he takes daily sort of cause his body temperature to normalise.

Anyhow, I hope that you find out what is causing your fevers. It could be gluten or something else.

God bless,

Mariann

Mariann

My son is 10. Since he was little he would run unexplained high fevers. One day I came home from work and discovered him ill. He was 2. Fever of 105 and climbing. Freaked me out. Put him a tub of warm water and shook all the time I waited for him to seizure! I have 4 children. He is the third, so I'm no stranger to sick kids at this point.

Doctor's can find nothing wrong. Told me that boys tend to run higher fevers and unexplained reasons. He was diagnosed with a malabsorption syndrome at the time however. They said "not to worry.! His fevers were always higher after that.

When he was 8 his fever was sustained over more than a week. No cause could be found. I kept a diary. He wouldn't eat.

Blood work at the time showed him to be neutorpenic (dangerously low white count) elevated esr, sed rate, elevated csr. All showed some kind of autoimmune response. They tested him extensively. This included testing for FMF. There is also a scotish one. We are not Mediteranean.

All negative, including celiac. No diagnosis.

Now he's 10. I don't remember why I put him on a celiac diet. It was a random occurence after speaking to some random person.

My husband has many health problems. i put him on it too.

The difference in them is amazing to say the least. no more fevers. To be brief no more health problems period for either of them.

Has your son ever had a low neutrophil count? Associated with the fevers.

One pediatrician was getting a history from me for my youngest girl and I mentioned Andrew and he said that there was a neutropenic component to some gut syndromes.

Does any of this sound familiar?

Thanx

Andie

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I have just been doing some research on yeast overgrowth. It's called candida. It is frequently linked to celiac disease and could be the cause of your problem. Check out this website. http://www.candidafree.net/

Hope you find your answer.

SJ

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I get a high temperature when I have been glutened. My best tip for this is to take Aloe Vera juice and lactobacillus acidophilus and eat light meals.

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Hmm, my regular body temperature is below normal too. I had my thyroid checked less than a year ago though, and it was fine.

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I've been running a fever for 7 days on a gluten-challenge.

When I was gluten-free, I could tell I had been glutened by my fever: 99.1 to 101.1 F

In the past when Drs have checked me, my white blood cell count is high but my RA which runs in family is neg.

Never been checked for celiac even when I had chronic diarrhea.

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I always get these 'FEVERS' and they have been so frequent and bothering me so much recently that I've been going to the Doctors for the last month. I basically loose all energy and just need to sleep. For 12-24 hours I have to go to bed with a hot water bottle and just sleep it off. The next few days I'm shattered and have ' regular' toilet visits!

It's been bothering my wife and kids so much that they have forced me to push the doctor for something to be done about it and now I've been refered to another gastric specialist at the hospital.

The doctor thinks it might be a related autoimune disease but that's all they can tell me at the moment.

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I have the same sort of problem with these low grade fevers. I'm not sure what causes them.

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Yes, I ran a low-grade fever for at least a year before I was diagnosed with Celiac disease. I am not sure why, but once I went gluten-free my temperature returned to normal. If I eat inadvertently eat gluten, I can get the fever back. For me, it spikes in the afternoons and makes me feel lousy.

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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
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