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Celiac With Fever
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I found an interesting site this evening that has to do with temp. It discusses low body temp. It says : http://www.mall-net.com/mcs/coldbody.html

I found it interesting because it says "allergies, skin and joint disorders, brain fog, lethargy" Which are just a few symptoms that align with Celiac.

I know I run a below normal temperature usually and when I get gluten I get a low grade fever.

I was just curious how many other folks out there run a below normal temp regularly.

-Jessica :rolleyes:

Yup...my normal temps are usually 96-97 degrees. Hypo thyroid is a leading cause of low body temps. I have Hashi's but even after successfully treating the Hashi's, my body temp. is still low. I think that's why heat bothers me so much. I also have seasonal and environmental allergies to boot and when I was going for allergy shots (which worked really well for me), the doctors new assistant had a habit of yapping too much while drawing the syringe of serum. Three times I popped a fever and had chills after my shots so I stopped them altogether. I just think that those with autoimmune problems may run weird fevers from time to time because our immune systems are a bit overactive. Maybe it's overkill when exposed to certain bacteria or viruses...our bodies go into overdrive more so to kill it off. All I know is I never really get sick anymore...no colds....nothing. However, during allergy season, I can spike a little temp. now and again. I take no meds at all for allergies.

Some things I have given up on trying to solve. Overall, I feel really well and never get sick. That's good enough for me.

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I don't have a high platelet count, no.

I had low grade fevers almost daily for about 2 years before I was diagnosed, but I had contracted a disease three years before then that can stay in the system and resurge quite easily. With no elevated platelets, we all thought it was this disease.

However, going gluten free had the fevers stop, and now the few times I've been glutened in the last month I've developed low grade fevers again, so I have a feeling that this is what has been getting me.

My daughter may also be developing this. The first few times she got the fever thing, we thought she was sick, but I finally started noticing that her getting sick was only happening at the same time she got gluten, so I'm tracking it now to see if that is always the case. Don't want to trust my memory and miss something, ya know?

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I have literally run a low grade fever for three years (not a typo either). :D It's getting better since I went gluten-free and have gotten my blood sugar under better control. If I get "glutened" or have a wild swing in my sugar, it's an immediate fever.

Hope that answers your question.

Brenda

Same here but now I only get a fever if I get glutened. My "normal" temperature was 99.4 - 99.9 for YEARS - even after a complete Infectious Disease workup by TWO Infectious Disease doctors!

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I had a fever of 105 after drinking some wine one night and went to the ER for it, docs have not been able to figure out for 4 years. I ran a low grade fever for about 6 months. I recently have discovered that all my problems have been from gluten. I had a high ANA and white blood cell count, and elevated Epstein-Barr. Celiac disease can cause yeast to proliferate, which teams up with Epstein-Barr, so my body was fighting against all of this. I was tested for celiac long ago, but was on the gluten-free diet at the time, which explains my negative results. Lately ingesting gluten has caused all of my symptoms to return, which has proven to me that without a doubt I have this disease. FINALLY after 4 years the pieces have come together!!

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I have also been having short bouts of a low grade fever on and off for about 2.5 years (since the birth of my last baby). Usually i get that 'coming down with something' feeling. aches and pains etc and even a sore throat, but it never turns in to anything.

I havne't yet had the biopsy, but have had postive blood test for celiac.

I didnt know there was any link between low grade fevers and celiac disease, so this is very interesting for me. (pieces of a puzzle etc)

I have always thought my fever was part of my Chronic Fatigue flaring up. Or a candida infection in my small intestine.

Perhaps it is celiac related.

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This is interesting. I have run fevers as long as I can remember. My mom has told me that I ran a lot of fevers as a baby. Testing has never shown anything. Now, that's not to say I haven't ever had a cold or strep throat with fever.. my fevers went away after being gluten free for 6 months. Now, I only get a fever when I get glutened or actually get sick.

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You might find some related threads if you do forum search on night sweats. there are several threads about them.

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My daughter is 8 and gets the same fevers as you do. Low grade fevers that come in the afternoon and go away with Tylenol daily for a couple weeks straight. She has lactose intolerance and has Celiac's. However, if your doctor can't diagnose you and you continue with daily fevers, or notice rashes with the fevers have him check your SED rate. If it is elevated, he needs to consider Still's Disease. I have Still's Disease and it was very hard to diagnose. It is very rare!

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I found an interesting site this evening that has to do with temp. It discusses low body temp. It says : http://www.mall-net.com/mcs/coldbody.html

I found it interesting because it says "allergies, skin and joint disorders, brain fog, lethargy" Which are just a few symptoms that align with Celiac.

I know I run a below normal temperature usually and when I get gluten I get a low grade fever.

I was just curious how many other folks out there run a below normal temp regularly.

-Jessica :rolleyes:

I have the same exact thing..I thought I had this celiac thing down(found out a year ago), but I still have low grade fevers that come and go..and I also have a below normal temperature normally. I also occasionally get blisters on my tongue..I never heard of Wilsons to be honest, but is it w/ celiac or instead of celiac..because I am tired, skin allergies, joint pain..and just cant think.

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Pre-diagnosis and was googling fevers and eating too much gluten and this thread came up. I feel as though I have found kindred sufferers! My normal body temp is low (97.6), which I always chalked up to being diabetic...but I just got glutened last night (my fault...ate junk all day and all of had gluten in it not to mention the fact that I was baking and had flour all over my hands. It took a couple hours to hit...but last night I was lightheaded, stomach upset, acid indigestion, headache, the whole nine yards. Finally the light headed ness and the feeling I was going to vomit left and I just had C and later D. Now, my blood sugars are running crazy and I have a low grade fever (for me) of 99. Now, after reading this thread, I don't feel so horrible and confused about what's going on!

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Fluctuations in how my body temperature feels to me (not necessarily enough for fever or to be low...and then again my thermometer might be a piece of crap) is one of the few problems I've had that has almost disappeared since going gluten free. Often with the chills I'd just get that icky flu-like, everything feels kinda off and gross.

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I've frankly been basically assuming the periodic low-grade fevers are from the celiac (I've eliminated most other obvious variables already and it seems like the simplest explanation). Before now, they were just another mystery thing my body did that was inconvenient and uncomfortable; I chalked it partially up to allergies/hay fever (which, for all I know, is actually the cause). Time will tell; I'm cautiously optimistic that if I'm overall healthier, it'll improve at least somewhat, regardless of direct cause.

So, I have little to contribute other than "me too," lol.

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Got cc'ed last night and now I have a 100.3 fever. I think it is part of the autoimmune reaction.

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Got cc'ed last night and now I have a 100.3 fever. I think it is part of the autoimmune reaction.

i agree same happens to me.  norm is about 96 or 97 glutened 99-100.

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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
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    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
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