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Celiac With Fever
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I found an interesting site this evening that has to do with temp. It discusses low body temp. It says : http://www.mall-net.com/mcs/coldbody.html

I found it interesting because it says "allergies, skin and joint disorders, brain fog, lethargy" Which are just a few symptoms that align with Celiac.

I know I run a below normal temperature usually and when I get gluten I get a low grade fever.

I was just curious how many other folks out there run a below normal temp regularly.

-Jessica :rolleyes:

Yup...my normal temps are usually 96-97 degrees. Hypo thyroid is a leading cause of low body temps. I have Hashi's but even after successfully treating the Hashi's, my body temp. is still low. I think that's why heat bothers me so much. I also have seasonal and environmental allergies to boot and when I was going for allergy shots (which worked really well for me), the doctors new assistant had a habit of yapping too much while drawing the syringe of serum. Three times I popped a fever and had chills after my shots so I stopped them altogether. I just think that those with autoimmune problems may run weird fevers from time to time because our immune systems are a bit overactive. Maybe it's overkill when exposed to certain bacteria or viruses...our bodies go into overdrive more so to kill it off. All I know is I never really get sick anymore...no colds....nothing. However, during allergy season, I can spike a little temp. now and again. I take no meds at all for allergies.

Some things I have given up on trying to solve. Overall, I feel really well and never get sick. That's good enough for me.

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I don't have a high platelet count, no.

I had low grade fevers almost daily for about 2 years before I was diagnosed, but I had contracted a disease three years before then that can stay in the system and resurge quite easily. With no elevated platelets, we all thought it was this disease.

However, going gluten free had the fevers stop, and now the few times I've been glutened in the last month I've developed low grade fevers again, so I have a feeling that this is what has been getting me.

My daughter may also be developing this. The first few times she got the fever thing, we thought she was sick, but I finally started noticing that her getting sick was only happening at the same time she got gluten, so I'm tracking it now to see if that is always the case. Don't want to trust my memory and miss something, ya know?

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I have literally run a low grade fever for three years (not a typo either). :D It's getting better since I went gluten-free and have gotten my blood sugar under better control. If I get "glutened" or have a wild swing in my sugar, it's an immediate fever.

Hope that answers your question.

Brenda

Same here but now I only get a fever if I get glutened. My "normal" temperature was 99.4 - 99.9 for YEARS - even after a complete Infectious Disease workup by TWO Infectious Disease doctors!

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I had a fever of 105 after drinking some wine one night and went to the ER for it, docs have not been able to figure out for 4 years. I ran a low grade fever for about 6 months. I recently have discovered that all my problems have been from gluten. I had a high ANA and white blood cell count, and elevated Epstein-Barr. Celiac disease can cause yeast to proliferate, which teams up with Epstein-Barr, so my body was fighting against all of this. I was tested for celiac long ago, but was on the gluten-free diet at the time, which explains my negative results. Lately ingesting gluten has caused all of my symptoms to return, which has proven to me that without a doubt I have this disease. FINALLY after 4 years the pieces have come together!!

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I have also been having short bouts of a low grade fever on and off for about 2.5 years (since the birth of my last baby). Usually i get that 'coming down with something' feeling. aches and pains etc and even a sore throat, but it never turns in to anything.

I havne't yet had the biopsy, but have had postive blood test for celiac.

I didnt know there was any link between low grade fevers and celiac disease, so this is very interesting for me. (pieces of a puzzle etc)

I have always thought my fever was part of my Chronic Fatigue flaring up. Or a candida infection in my small intestine.

Perhaps it is celiac related.

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This is interesting. I have run fevers as long as I can remember. My mom has told me that I ran a lot of fevers as a baby. Testing has never shown anything. Now, that's not to say I haven't ever had a cold or strep throat with fever.. my fevers went away after being gluten free for 6 months. Now, I only get a fever when I get glutened or actually get sick.

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You might find some related threads if you do forum search on night sweats. there are several threads about them.

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My daughter is 8 and gets the same fevers as you do. Low grade fevers that come in the afternoon and go away with Tylenol daily for a couple weeks straight. She has lactose intolerance and has Celiac's. However, if your doctor can't diagnose you and you continue with daily fevers, or notice rashes with the fevers have him check your SED rate. If it is elevated, he needs to consider Still's Disease. I have Still's Disease and it was very hard to diagnose. It is very rare!

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I found an interesting site this evening that has to do with temp. It discusses low body temp. It says : http://www.mall-net.com/mcs/coldbody.html

I found it interesting because it says "allergies, skin and joint disorders, brain fog, lethargy" Which are just a few symptoms that align with Celiac.

I know I run a below normal temperature usually and when I get gluten I get a low grade fever.

I was just curious how many other folks out there run a below normal temp regularly.

-Jessica :rolleyes:

I have the same exact thing..I thought I had this celiac thing down(found out a year ago), but I still have low grade fevers that come and go..and I also have a below normal temperature normally. I also occasionally get blisters on my tongue..I never heard of Wilsons to be honest, but is it w/ celiac or instead of celiac..because I am tired, skin allergies, joint pain..and just cant think.

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Pre-diagnosis and was googling fevers and eating too much gluten and this thread came up. I feel as though I have found kindred sufferers! My normal body temp is low (97.6), which I always chalked up to being diabetic...but I just got glutened last night (my fault...ate junk all day and all of had gluten in it not to mention the fact that I was baking and had flour all over my hands. It took a couple hours to hit...but last night I was lightheaded, stomach upset, acid indigestion, headache, the whole nine yards. Finally the light headed ness and the feeling I was going to vomit left and I just had C and later D. Now, my blood sugars are running crazy and I have a low grade fever (for me) of 99. Now, after reading this thread, I don't feel so horrible and confused about what's going on!

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Fluctuations in how my body temperature feels to me (not necessarily enough for fever or to be low...and then again my thermometer might be a piece of crap) is one of the few problems I've had that has almost disappeared since going gluten free. Often with the chills I'd just get that icky flu-like, everything feels kinda off and gross.

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I've frankly been basically assuming the periodic low-grade fevers are from the celiac (I've eliminated most other obvious variables already and it seems like the simplest explanation). Before now, they were just another mystery thing my body did that was inconvenient and uncomfortable; I chalked it partially up to allergies/hay fever (which, for all I know, is actually the cause). Time will tell; I'm cautiously optimistic that if I'm overall healthier, it'll improve at least somewhat, regardless of direct cause.

So, I have little to contribute other than "me too," lol.

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Got cc'ed last night and now I have a 100.3 fever. I think it is part of the autoimmune reaction.

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Got cc'ed last night and now I have a 100.3 fever. I think it is part of the autoimmune reaction.

i agree same happens to me.  norm is about 96 or 97 glutened 99-100.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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