Celiac With Fever
Posted 02 August 2007 - 08:07 AM
Posted 02 August 2007 - 08:07 AM
Posted 27 August 2007 - 06:50 PM
My son has run high fevers (up to 105.1) all his life. A year ago when he was 7 he was diagnosed by an infectious disease specialist with a periodic fever disease called FMF (Familial Mediteranean Fever). But since we started him on the gluten-free diet the same month that we started him on the medication for the fever disease, they are going to take him off the meds and see if his fevers come back. This will happen sometime over the next few months. He see's the doctor this month. Well he has a fever today, but I am not sure if it is just a virus or if he might have grown out of the dosage for the meds. The doctor warned me that he could start getting break-thru fevers when he outgrew the dosage, and he has grown literally 10 lbs and 3-4 inches since going gluten-free last March!
Anyhow, I guess what I'm trying to say, is that sometimes the fever might be unrelated to gluten. You might have something else causing it, or it could be just your body's response to gluten ingestion.
What are the chances of one kid getting two strange genetic diseases? FMF really is rare, celiac disease is only thought to be rare, and the news is spreading quickly that it isn't but still I've got to think the chances of him getting both are pretty slim. To get FMF both parents have to be carriers of the gene and pass on both copies. No one in either side of our families ever had this disease and we both only have a little bit of Mediteranean in our bloodlines. And the variant he has is one they haven't even isolated the gene for. They have only isolated the genes for the top 9 variants. We only got the diagnosis of FMF because of a very good doctor. If we hadn't gotten to go to him we may have still been clueless. Other doctors passed over the FMF diagnosis because of our apparent genetic backgrounds, which didn't really match up with the known genetic backgrounds for FMF. Mostly it is the eastern mediteranean people, and we have northern mediteranean, and only a little of that! I joke around sometimes about how we found the "right" doctor. The doctor's name is Dr. Wright!!
Also, my son's "normal" his temperature range is between 96.6 and 98.8. With his most common temp being aroung 97.2. I chart his temp at least 3 times every day for the last 2 years and so I pretty much know what is normal for him. I would say that is low. The lowest he ever got was 95 and he was borderline hypothermic. This was after a fever episode of 105 and his temp dropped 10 degrees in a matter of 2 hours! To say I was freaked out is an understatement. It is sort of like his internal thermostat is broken. The meds he takes daily sort of cause his body temperature to normalise.
Anyhow, I hope that you find out what is causing your fevers. It could be gluten or something else.
My son is 10. Since he was little he would run unexplained high fevers. One day I came home from work and discovered him ill. He was 2. Fever of 105 and climbing. Freaked me out. Put him a tub of warm water and shook all the time I waited for him to seizure! I have 4 children. He is the third, so I'm no stranger to sick kids at this point.
Doctor's can find nothing wrong. Told me that boys tend to run higher fevers and unexplained reasons. He was diagnosed with a malabsorption syndrome at the time however. They said "not to worry.! His fevers were always higher after that.
When he was 8 his fever was sustained over more than a week. No cause could be found. I kept a diary. He wouldn't eat.
Blood work at the time showed him to be neutorpenic (dangerously low white count) elevated esr, sed rate, elevated csr. All showed some kind of autoimmune response. They tested him extensively. This included testing for FMF. There is also a scotish one. We are not Mediteranean.
All negative, including celiac. No diagnosis.
Now he's 10. I don't remember why I put him on a celiac diet. It was a random occurence after speaking to some random person.
My husband has many health problems. i put him on it too.
The difference in them is amazing to say the least. no more fevers. To be brief no more health problems period for either of them.
Has your son ever had a low neutrophil count? Associated with the fevers.
One pediatrician was getting a history from me for my youngest girl and I mentioned Andrew and he said that there was a neutropenic component to some gut syndromes.
Does any of this sound familiar?
Posted 04 September 2007 - 11:07 AM
Posted 04 September 2007 - 12:04 PM
Posted 11 May 2009 - 05:26 AM
When I was gluten-free, I could tell I had been glutened by my fever: 99.1 to 101.1 F
In the past when Drs have checked me, my white blood cell count is high but my RA which runs in family is neg.
Never been checked for celiac even when I had chronic diarrhea.
Posted 14 May 2009 - 03:44 AM
It's been bothering my wife and kids so much that they have forced me to push the doctor for something to be done about it and now I've been refered to another gastric specialist at the hospital.
The doctor thinks it might be a related autoimune disease but that's all they can tell me at the moment.
The land is permanent, man disappears
Posted 24 May 2009 - 01:57 AM
Posted 22 March 2011 - 05:31 PM
Posted 23 March 2011 - 08:23 AM
I found an interesting site this evening that has to do with temp. It discusses low body temp. It says : http://www.mall-net....s/coldbody.html
I found it interesting because it says "allergies, skin and joint disorders, brain fog, lethargy" Which are just a few symptoms that align with Celiac.
I know I run a below normal temperature usually and when I get gluten I get a low grade fever.
I was just curious how many other folks out there run a below normal temp regularly.
Yup...my normal temps are usually 96-97 degrees. Hypo thyroid is a leading cause of low body temps. I have Hashi's but even after successfully treating the Hashi's, my body temp. is still low. I think that's why heat bothers me so much. I also have seasonal and environmental allergies to boot and when I was going for allergy shots (which worked really well for me), the doctors new assistant had a habit of yapping too much while drawing the syringe of serum. Three times I popped a fever and had chills after my shots so I stopped them altogether. I just think that those with autoimmune problems may run weird fevers from time to time because our immune systems are a bit overactive. Maybe it's overkill when exposed to certain bacteria or viruses...our bodies go into overdrive more so to kill it off. All I know is I never really get sick anymore...no colds....nothing. However, during allergy season, I can spike a little temp. now and again. I take no meds at all for allergies.
Some things I have given up on trying to solve. Overall, I feel really well and never get sick. That's good enough for me.
Posted 24 March 2011 - 01:06 AM
I had low grade fevers almost daily for about 2 years before I was diagnosed, but I had contracted a disease three years before then that can stay in the system and resurge quite easily. With no elevated platelets, we all thought it was this disease.
However, going gluten free had the fevers stop, and now the few times I've been glutened in the last month I've developed low grade fevers again, so I have a feeling that this is what has been getting me.
My daughter may also be developing this. The first few times she got the fever thing, we thought she was sick, but I finally started noticing that her getting sick was only happening at the same time she got gluten, so I'm tracking it now to see if that is always the case. Don't want to trust my memory and miss something, ya know?
Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease
23 years with undiagnosed sulfite sensitivity
25 years with undiagnosed mast cell activation disorder (MCAD)
Daughter: celiac and MCAD positive
Son: gluten intolerant
Father, brother: celiac positive
Posted 25 March 2011 - 09:55 AM
I have literally run a low grade fever for three years (not a typo either). It's getting better since I went gluten-free and have gotten my blood sugar under better control. If I get "glutened" or have a wild swing in my sugar, it's an immediate fever.
Hope that answers your question.
Same here but now I only get a fever if I get glutened. My "normal" temperature was 99.4 - 99.9 for YEARS - even after a complete Infectious Disease workup by TWO Infectious Disease doctors!
Posted 23 May 2011 - 06:24 PM
Posted 24 May 2011 - 05:00 AM
I havne't yet had the biopsy, but have had postive blood test for celiac.
I didnt know there was any link between low grade fevers and celiac disease, so this is very interesting for me. (pieces of a puzzle etc)
I have always thought my fever was part of my Chronic Fatigue flaring up. Or a candida infection in my small intestine.
Perhaps it is celiac related.
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