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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Weight Gain On Gluten Free Diet
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33 posts in this topic

I've been on a gluten free diet now for 7 months, initially I started to lose pants sizes because I lost all the bloating from eating gluten. Now though, it seems like I'm starting to put on weight even though I'm continuing on a gluten free diet. Is this possible and normal? I had my gallbladder out in December could that have something to do with it? I'm 20 years old 5'4" and at 120 since going gluten free, but now I'm at 125 in the last few weeks and people are starting to notice my weight gain. I'm really scared about this weight gain and possibly putting on more weight. Do you have any suggestions?

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Have you substituted all your favourite foods, like pasta, bread, cookies, doughnuts etc. with gluten-free items? That could be a big problem, because those things have a lot more sugar and refined carbs than the 'real' thing, and will definitely lead to weight gain, unless you cut back on them. Don't make them everyday staples, but rather treats.

But still, you're far from being overweight, and don't really need to worry yet. Just watch those carbs and sugars!

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I'm really curious...at such a young age, why did you already have your gall bladder out? What was going on with your health?

I've been on a gluten free diet now for 7 months, initially I started to lose pants sizes because I lost all the bloating from eating gluten. Now though, it seems like I'm starting to put on weight even though I'm continuing on a gluten free diet. Is this possible and normal? I had my gallbladder out in December could that have something to do with it? I'm 20 years old 5'4" and at 120 since going gluten free, but now I'm at 125 in the last few weeks and people are starting to notice my weight gain. I'm really scared about this weight gain and possibly putting on more weight. Do you have any suggestions?
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It's perfectly easy to gain weight going gluten free - not only are you now absorbing the food you're eating, but you may find that the substitutes your eating aren't any more calorically economical than anything you ate before. Often times, it's far worse!

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I'm really curious...at such a young age, why did you already have your gall bladder out? What was going on with your health?

Dear CMCM,

I had my gallbladder out at the same age! Just about 4 years ago, it was removed. I am going to commemorate it with some gluten free cookies on July 28th. ;) Gluten intolerance or Celiac can cause your gallbladder to go bad. No one could believe that mine went bad at that age as well. At my ten day post-op check-up, I found out it was very inflamed and irritated and almost ruptured! :o This was after my doctor told me since the tests showed nothing, that could not have been it. If I had listened to him, I would have ended up with pancreatitis.

Sincerely,

NoGluGirl

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I've been on a gluten free diet now for 7 months, initially I started to lose pants sizes because I lost all the bloating from eating gluten. Now though, it seems like I'm starting to put on weight even though I'm continuing on a gluten free diet. Is this possible and normal? I had my gallbladder out in December could that have something to do with it? I'm 20 years old 5'4" and at 120 since going gluten free, but now I'm at 125 in the last few weeks and people are starting to notice my weight gain. I'm really scared about this weight gain and possibly putting on more weight. Do you have any suggestions?

Dear sluct,

I had my gallbladder out at the same age! It turns out the Celiac is probably what made my gallbladder go bad in the first place. Who would have thought? I have had difficulty losing weight as well. I have had Thyroid Disease though. However, going gluten free and low-fat can be difficult. Many of the low-fat foods we used to eat (like cereal and Nutri-Grain bars) we cannot have anymore.

I am scared I am getting a stone in my bile duct, because I am getting pain there and have had difficulty eating a lot of low fat foods which are gluten free as well. Just the breads can have 6 or 9 grams of fat per slice! :huh: Some people gain weight, others lose weight while on the diet. I have had the same experience. I was losing weight for a while, and now I am having difficulty losing. I may have other issues though. I know I have a yeast overgrowth from having to take so many antibiotics as well as steroids for asthma, and birth control for cysts. That is the trifecta from Hell when it comes to yeast.

Sincerely,

NoGluGirl

P.S. I am contemplating doing the Zone again. It is easy to do gluten-free, and works well to keep blood sugar steady.

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Try to keep in mind that while eating gluten, the villi in your intestines were not absorbing all of the nutrients/food you were eating... That's why we could eat as much as we wanted, but still be really skinny!! I had lost a ton of weight before being diagnosed with Celiac. After I went gluten free, I gained about 15 pounds. After my guts healed, I was actually absorbing what I ate, so the calories were counting. I never had to exercise, but about a year after I "healed" and started to feel better and get my energy back, I bought a rowing machine and starting exercising. I have lost about 12 pounds and feel better and stronger than ever. Hope this helps you. Maureen :)

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The first 3 weeks of going gluten free i gained 9 pounds. I was getting so depressed. But now this week i am slowly going back down, my stomach is getting a little smaller. I think once i get the hang of of no casein, i will continue losing weight. I have also not made any gluten free snacks or breads this week, so that could be why i have lost weight. I have been trying to stay with the basic food groups and im not snacking at all. Cause i dont know what i can snack on, i use to have nachos everyday, but now that is out of question, so i just grab fruit and im happy(ok trying to be happy).

paula

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Before I was diagnosed with Celiac, I was told I was hypoglycemic. Therefore protein was what I ate. I continue to follow that diet and have added carbs now. I read that a person who eats protein (bacon and egg) for breakfast will eat 300 calories less a day than someone who eats cereal or carbs.

I've been gluten free for 2 months, have lost my poochie bellie and am slowly regaining muscles. I do walk with a friend 3 miles 2 to 3 times a week. Before gluten free I crashed everynight in my recliner as I was washed out. Now I'm up moving til 10:00 p.m.

I sleep better, 8 hours a night, and am able to jump out of bed and go go go!

I don't really care if I gain weight. I'm HEALTHY!

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I was going to post the exact same question...I mean..almost identical.

I am 7 months gluten free, initially lost weight, and now I am gaining. I don't think I am eating more, actually I think I eat less now than I did before. I was not a skinny person before, just normal.

I was also wondering if now I am absorbing more, and even though I am doing more physically now than I have in the past 4 years....

I make all our own food, from scratch...I think I might just have to exercise more.

(like running after 2 small children isn't enough exercise!!! :lol: )

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Ahhh, weight gain, weight loss. Here's what I've learned thru a lot of years of testing every frigging diet known to man. Several years ago, before I was realized my situation with celiac disease, my weight gain (about 30 lbs over my ideal 130 lbs which I weighed ALL my life with no problem) was bugging me. I did a strict Body for Life program for maybe 10 weeks, fairly true to the program. I ate what was suggested (including small amounts of bread) and exercised vigorously (weights and cardio) 6 days a week, an hour each day. I dropped about 20 lbs, although I didn't reach my goal. A couple of years later I decided to do Atkins, and was very strict with its induction program for a good 6 to 7 weeks. I lost a LOT of weight, got almost to my goal with no effort, and in the process, realized how wonderful I felt doing Atkins. Looking back, I now realize it was because I was eating NO GRAIN!!!! and virtually no dairy other than about an ounce of hard cheddar cheese a day. Also...no sugar, no fruit. Just meat, salads, moderate veggies, an ounce of cheese a day, lots of water. I was never a big meat eater, but was shocked at how fabulous I felt on this unfamiliar diet. When you keep carbs low like this, you do not have any sugar or junk cravings, either. I lost more weight more easily this way than anything else, period!

Well, a few years passed, I put back on about 15 of those lost pounds over time (thru sloppy eating and little to no exercise), and then started trying to lose weight again....various programs, nothing worked, and no matter how moderate my calorie level was and how much I exercised, I didn't lose a single pound and didn't lose all that much fat. Really frustrating.

So for myself, I've realized it MOSTLY comes down to your food intake, and I realized that I can't lose weight when eating a lot of sugar, carbs in general, dairy, even a lot of fruit. When I first went gluten free I started eating and "testing" all the gluten free goodies out there, which I soon noticed frequently had SUGAR as the first, main ingredient. These things are incredibly high carb, high sugar. While eating all this stuff, I continued to have a very upset digestive system. I think I didn't handle the various starchy flours or all the sugar. And I realized that I wasn't eating that way before celiac....I knew I couldn't eat all that sugar stuff without gaining weight....so why was I eating it now?

Well, this is rambling, but ultimately, I and I suspect many others as well, will not lose weight either eating gluten OR gluten free if I/we don't eat very carefully....good clean protein, good vegetables (but not much if any potatoes or rice or corn), very little in the baked goods category, and limited dairy. Little to no sugar. And finally, realistic PORTION CONTROL. And reasonable physical activity on a daily basis....could be as simple as walking. I don't think I have some weird unique body composition....I've always been pretty healthy aside from my digestive woes, and was slim my whole life until about 15 years ago when I put on this 20 to 30 lbs which I've been unable to completely lose. There's no magic pill, no magic program, just the right foods in the right amounts and reasonable physical activity every day.

Finally....you have to do these things and keep at it despite what we will always deem a "too slow rate of loss." The the turtle wins the race, and I've learned to accept that weight loss will be slow but steady when I do the right things. Every day you do the right things is a step towards your goal weight, simple as that. You are either moving towards your goal or away from it, depending on your choices for the day! ;)

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They could be right that its the high carb stuff that's added to you. For people like me its almost necessary. I'm a Celiac that could constantly drop weight so I eat a lot of breads and pastas and use extra margarine even. :blink: I guess in a way, be blessed you can stick where you are and not gain too much! Like someone here said, you're in healthy range for your height :)

~ Lisa ~

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Stay away from the gluten-free baked stuff like breads and baked goods. They are full of calories. I mean, there's 220 calories in HALF a gluten free bagel. :blink:

I am also 5'4" and presently weigh 125. I went up to 145 when I went gluten free. Now, I stay away form the carbs. I'll have pasta once every 2 weeks and rice once a week. I love the summer because all we eat is grilled meat and vegetables.

This is typical menu for me:

Breakfast: 1 apple and a meal bar (found Soy Joy bars, they are awesome!) or yogurt

Snack: either string cheese, raw veggies, almonds

Lunch: Big salad (I add either garbanzo beans, grilled chicken, or leftover steak for protein)

Snack: either apple with peanut butter, sometimes baked corn chips and salsa, hand full of dried fruit mix

Supper: Grilled meat (steak, chicken, tuna, salmon), and a vegetable

Snack: usually something very light like popcorn or just a piece of dark chocolate

I love eating now cause I don't gain weight. I do exercise a half hour a day.

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Try to incorporate alot of fiber into your diet.

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What do you think are the best sources of fiber on a gluten-free diet?

Thanks.

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Dear Slackermommy,

I have been gluten free for the same time as you. I was losing a little weight in the beginning, but now seem to not be able to lose any. It could be the yeast contributing to that. However, I am hungry all the time, and cannot go low-carb. My hypoglycemia does not respond well to it. I get dizzy and sweaty and all kinds of stuff. It was terrible. My lower abdomen is really bloated.

I am thinking other food intolerances are a possibility for me. I do not hardly eat dairy. I can only handle it in extremely small amounts on occaision.

Dear NWLAX36mommy,

I have always been athletic, too. I have a somewhat muscular frame. I used to eat a lot of cereal before my diagnosis. I think our bodies are all different to a point. I know certain foods make others bulkier. It depends on the exercise, too. I am pear-shaped, and found out rollerblading, ecliptical trainers, stairclimbing, and similar things will bulk me up, not slim me down. I had been doing those and could not figure out why I could not lose any in my trouble spots.

Sincerely,

NoGluGirl

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I have just started the Gluten free diet due to acid reflux and I am losing weight. In the past I have always had success with weight loss following a high Alkaline low acid diet. I have always hated counting calories and carbs so this diet is great. I eat as much as i want on it. It works and I always feel healthier on it. You can lose a pound a day. They say if your body has an alkaline level of 7 that not even cancer could survive. Here are some good links to a guide to go by. It tells you which foods are high acid and low acid. All household chemicals and medications are high acid. Check shampoos and soaps etc. I use kiss my face soap and natures gate shampoo I buy at vitacost.com. I also have a shower filter. The chlorine in the water lowers your alkaline ph levels. Your body hates high acid and builds fat cells around your organs to protect them. From experience the quickest way to raise your alakaline to 7 (healthy) is to take epsom salt baths(alkaline of 12) 3 days a week. I used to eat something acid and go up about 3 to 4 pounds right after eating it not realizing it was a high acid. Now I have a high alkaline food or drink after eating (low to moderate acids)and this does not happen.

Lemon, watermelon, sea salt

Rice flour, millet flour, tapioca starch and flour, buckwheat, potato, arrowroot(regular corn is man invented and a high acid sweet corn is natural and an alkaline)

chicken

turkey

lots of fruits and veggies

Ragu organic spaghetti sauce

Polaner all fruit jam and homemade tapioca pudding

homemade mayonaise and salad dressing or buy at health food store

Haagen Daz ice cream low acid for dessert

Splenda for sweetner lowest acid sweetner(stevia sweetner alkaline)

Coffee Put a cal/mag vitamin in coffee filter to neutralize acid

I switched to Borax, oxy clean and seventh generation dish soap everyone in my house lost 5 to 10 pounds without dieting.

Candida Diet Foods to Raise PH in The Body(scroll down the page to foods)

http://www.yeastinfectionadvisor.com/alkalinediet.html

Lose 20 lbs easily raising your alkaline ph levels

http://mysite.verizon.net/felipe2/id26.html

He says to put baking soda in all your beverages to alkaline them. I use lemon or lime. I heard baking soda is not safe to digest frequently.

CUREZONE.com

http://www.curezone.com

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I have just started the Gluten free diet due to acid reflux and I am losing weight. In the past I have always had success with weight loss following a high Alkaline low acid diet. I have always hated counting calories and carbs so this diet is great. I eat as much as i want on it. It works and I always feel healthier on it. You can lose a pound a day. They say if your body has an alkaline level of 7 that not even cancer could survive.

Here are some good links to a guide to go by. It tells you which foods are high acid and low acid. All household chemicals and medications are high acid. Check shampoos and soaps etc. I use kiss my face soap and natures gate shampoo I buy at vitacost.com. I also have a shower filter. The chlorine in the water lowers your alkaline ph levels.

Lemon, watermelon, sea salt

Rice flour

chicken

turkey

lots of fruits and veggies

Haagen Daz ice cream low acid for dessert

Splenda for sweetner lowest acid sweetner

Candida Diet Foods to Raise PH in The Body(scroll down the page to foods)

http://www.yeastinfectionadvisor.com/alkalinediet.html

Lose 20 lbs easily raising your alkaline ph levels

http://mysite.verizon.net/felipe2/id26.html

Dear princeoli,

I am so glad you posted this! I am suffering from Candida something awful! This could really help! I have had to drink tap water for days now due to our water filter breaking. Payday is not until tomorrow. :( I do not like how I feel drinking tap water. I know it is full of toxins and bad for me.

Alkalinization looks like it could really help me. Thank you for the info! I have those web addresses in my favorites now!

Sincerely,

NoGluGirl

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So for myself, I've realized it MOSTLY comes down to your food intake, and I realized that I can't lose weight when eating a lot of sugar, carbs in general, dairy, even a lot of fruit. When I first went gluten free I started eating and "testing" all the gluten free goodies out there, which I soon noticed frequently had SUGAR as the first, main ingredient. These things are incredibly high carb, high sugar. While eating all this stuff, I continued to have a very upset digestive system. I think I didn't handle the various starchy flours or all the sugar. And I realized that I wasn't eating that way before celiac....I knew I couldn't eat all that sugar stuff without gaining weight....so why was I eating it now?

This is me right now. I have been gluten-free since July. At first it was great and I lost weight which was good. I had been struggling with overweight issues all my life. Then I started to try out all these gluten-free foods and recipes I was finding. Now I find that my HypoGlycemia is back with a vengance, and I have GAINED 5kg in the last month !!!!!!!! Obviously I have to drastically change my diet and eat more meat and veges, but .... 'what' ? What are some good lunch ideas ? I am dairy free too at the moment. I am sooo hungry after meals now. Eating a gluten-free slice of cake makes me feel good ! I need someone to YELL at me and tell me to eat a boiled egg or nuts as a snack and not gluten-free cake :lol: I may even have Polyglandular Autoimmune Syndrome and be high risk for Diabetes. Help !!! :blink:

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I know that it's been a long time since anyone has said anything in this discussion, so I don't know if anyone will see it. But, why are you people having your gall bladder removed? Your gall bladder and liver have been working overtime to filter out the large food particles and toxic substances, that your leaky gut (all celiac patients have it) has put into your bloodstream. Once you are on gluten free diet, your gall bladder, liver, kidneys, pancreas and everything else, will start working better. It may take a few weeks. Don't remove your organs, people. How do you expect to make bile, in order to digest properly? This is the problem I have with mainstream medicine. Their answer is to remove something. That's garbage. Once you have gotten over the initial stage of your gluten free diet (3-6 weeks), you should notice that your stools should return to normal color (beige, fatty stools are caused by the lack of bile released into your system, because of toxic overload). The fatty part is caused by the fat not being digested properly. After your stools return to normal color and texture, you are healing. After a few more weeks, I suggest doing a colon cleanse, and then a gall bladder and liver cleanse. You can follow up with a kidney cleanse, if you have had any issues there. After this procedure, your gall bladder will probably be working just fine. I have a suggestion that I make to all people with a health challenge. It's YOUR body. Do some research, instead of just following the doctor's suggestions. Learn about your body. It can heal itself in MIRACULOUS ways.

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In the last 2 weeks i have been eating gluten-free homemade breads and cookies along with fruits, veggies and nuts- and I feel like I have gained a bit. Which is irritating. I know it is the 'breads and desserts,' but I didn't eat them for so long. It feels llike a sudden weight gain also.

I don't know what to do

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I've been on a gluten free diet now for 7 months, initially I started to lose pants sizes because I lost all the bloating from eating gluten. Now though, it seems like I'm starting to put on weight even though I'm continuing on a gluten free diet. Is this possible and normal? I had my gallbladder out in December could that have something to do with it? I'm 20 years old 5'4" and at 120 since going gluten free, but now I'm at 125 in the last few weeks and people are starting to notice my weight gain. I'm really scared about this weight gain and possibly putting on more weight. Do you have any suggestions?

Hey I'm 17 ..18 in a few days.. and to the above posters i'm the complete opposite i cant gain weight its a huge pain in the arse .. i was diagnosed with this when i was in grade 4 so 9 yrs ago roughly... yeah any ideas how i can gain weight i follow my diet rather well i occasionally stray from what i should eat when i go out with friends other than that im good with it ..

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I dont think it matters what type of diet you follow. It is simply calories in vs. calories out. Over the years, I have lost weight eating high carb foods, high fat, etc. as long as I kept my total under 1200 a day, I lost weight. Keeping a food diary helps me stay on track.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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