Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Happens If I Don't Stick To The Diet?
0

32 posts in this topic

under no circumstances should you eat wheat anymore, because, i have the same thing, 0 out of 1 million times i feel a thing when eating gluten. However, the doctor said my intestine was messed up and i went back last month and he said it was looking great. i don't know what can happen if your intestine gets messed up a lot but it's probably not good.

0

Share this post


Link to post
Share on other sites


Hi all, Im still very new at this but feel the need to write. Ive been gluten-free for about 7mo now and night b4 last I got up and slept walk to eat some bread. Ive always walked in my sleep but never to eat. I was told by my doctor once again that I tested negitive for C.D. and wasnt willing to eat the stuff again to be retested. It hurt too much. Well, after getting up and eating that wonderful gluteness food I have been SICK since. Cant even leave the house due to the stomach pain, constant trips to the bathroom, insomnia. Now, this really makes me mad cause I was just told once again I was crazy. Subconsciously tried it one more time and feel terrible. Does it sound crazy that blood tests could just be wrong? I had taught myself to stop eating all together before testing cause I believed everything made me sick. Now Im crazy cause I started this diet due to the pain I feel when I did eat glutens? Is there a win in this situation? I know Im not crazy... just proved it to myself again but how do I get this doctor to understand?

0

Share this post


Link to post
Share on other sites
;) maybe it's time to change doctors--sometimes you have to try a new avenue--i listened to the doctors and went over 20 yrs without help--an internal medicine man told me IBS or spastic colin, told me to reduce my stress (right, we can all do that) <_< and put me on xanex--they started me on .25mg 4x's a day--i could not even walk let alone function :blink: , so then they told me to just take them when i felt a panic attack coming on--well, my tummy problems were what was causing the panic attacks because i knew that if i planned anything or was taking someone somewhere, that of course my tummy would act up, so then i had anticipatory aniexty too--i know now that me being celiac and not absorbing my vitamins was causing me to have a chemical imbalence in my brain which caused the panic--when the xanex didnt work, they put me on paxil--by the time i tried going gluten free, i was taking 40mgs of paxil a day and barely getting by--as i was getting better from removing gluten from my system, i also weaned myself of paxil--they tell you paxil is not addicting :angry: , but that's a lie--you NEED it and there were days when my man would tell me to please take my meds--i would have crying days--cry all day long, it was difficult to be around me, i am sure--learn to listen to your body--it takes time and the truth is, i know i am a celiac, never been tested, but i know and even if i wasnt--gluten free will not hurt you, we can live very healthy lives without gluten :rolleyes: ----SOOOOOOO listen to your body--otay :D deb
0

Share this post


Link to post
Share on other sites

Lpellegr used the "report" button to try to reply to this thread. The member wanted to say:

I am recently diagnosed and also have no outward symptoms other than anemia, which I found through blood testing (I never felt anemic), so I have no way of knowing if I have accidentally eaten anything forbidden.  People keep asking if I feel better, but I felt fine before except for random GI symptoms that I thought were IBS.  So even though it makes no difference to how I feel, I am trying to stick really hard to a gluten-free diet because I have read about the long-term consequences of gluten exposure.  Cooking at home works out fine, although substitute food can be expensive, but eating out is a challenge (and I'm already planning what I will do when I have to travel for work - not easy).  But I am sticking to it to make sure it doesn't get worse.  Like some of the other posters said, focus on what you can have and try to include new things, rather than mourning for what you can't have.  I try to educate friends and family to the long-term consequences so they will help me, and most willingly do.  Now if I could only find a good substitute pizza crust....
0

Share this post


Link to post
Share on other sites
And if you're curious, McDonalds fries and burgers without buns are gluten free. : )

Please be careful here! I don't know if McDonald's serves onion rings, but other fastfood joints do, and they cook the rings in the same oil as the fries. At least, all of the ones I have been to do! Just remember to ask if the fries are done in a dedicated fryer!

0

Share this post


Link to post
Share on other sites
:D this one i can definitely help with--my son is the manager of a McDonalds and they never put anything else in the french fries oil--only fries go in it and i have had fries at McDonald's and been fine--i dont know if i would trust the burgers, only because you are only safe if the person with the turner isnt touching buns--it is so easy to not even realize you are cross contaminating--i was thinking about just that the other day when i was making coffee at work--we use the same filter holder, of course a different filter each time, but none the less, the same filter holder for all brands of coffee--it's so easy to make a mistake---but, i do know the fries are safe--eat hearty :P deb
0

Share this post


Link to post
Share on other sites

hey

i just wanted to add my two cents here. I also was a pizza/pasta/bread freak!! And i still am!! I am 2 & 1/2 months glutenfree :) and i still eat most of the same foods. I make lasagne,sphegetti & other pasta with tinkyada noodles!! they are the best. Alot of rice pasta gets soggy and falls apart but not tinkyada!! Another one i like is papadini bean pasta. It has a different taste and texture than real pasta but i still find it quite good. The sauce i use that is glutenfree is classico. (all flavors are gluten-free)

The only gluten-free pizza i have found is amy's brand. It's cheese only, but you can add your own toppings. And for bread, you are better off making your own. The packaged kind is gross. buy a bread mix and make it by hand. They taste like real bread but do crumble more than reg. bread.

It is sometimes a pain being glutenfree but its worth it in the long run.

good luck!!

lillie

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,720
    • Total Posts
      914,571
  • Topics

  • Posts

    • Help understanding test results??
      I forgot to add this...I only had one positive on the complete celiac panel.  I had a positive on the DGP IgA test, my visual endoscopy "looked fine" but my biopsies revealed a Marsh Stage IIIB (moderate to severe villi damage).  My symptom at the time was anemia.   Keep eating gluten daily until all testing is complete.  This is really important!   Hang in there!    
    • SO HUNGRY. All. The. Time.
      Over my 6 gluten-free years, I have endured this "Starving Syndrome" several times.  Actually, I have lost count.  I am 5'4" and frequently eat more than my 6'4" husband.  My weight has gone from a low of 93 lbs. to my current high of 105 lbs.  I eat as much as I possibly can.   I agree about the fats helping me to feel full.  I'm beginning to test out the "grain hypothesis" as mentioned above. It seems (feels) to me that when I go through a major healing spurt, my body just wants more food!  No idea if this is actually what is happening.  Still, I have come to look at it as a "good thing" when my body wants lots of food.  I just relax and try to give my SMART body what it wants.
    • I got WELL!!
      Update on my progress: 1.  By thorough and consistent evaluation of my food diary (every item ingested for 6 years); I've finally figured out that both dairy and nightshades cause me PAIN!  I had tried eliminating these previously; but it was no help.  I tried again anyway...and IT WORKED!!  Maybe because I'm healthier now?  Never was lactose intolerant; but BOTH these items cause me PAIN!  All over, wish-I-were-dead PAIN! 2.  Just completed 2 courses of Xifaxin.  One in November and one in February.  The first course helped some with the Buddha Belly.  This second course helped a lot!  Fingers crossed that things will only continue to improve.  (I actually think it may be helping reduce the fatigue!  But I won't mention it as I don't want to jinx it!) 3.  Added back rice.  Had been grain-free for 3 years.  Seems fine and maybe even beneficial.  I'm pursuing adding more variety to my diet.  Looking at amaranth and buckwheat.  Plan to discuss diet with nutritionist after my next GI appt.  to get tips on this.  (Had to postpone this appt. due to bad headcold--first in many years!) 4.  Plan to discuss changing levothyroxine brand at next internist appt. in a couple weeks.  Currently taking Tirosint--and love it.  But...investigating other options like Levoxyl since I may have felt better on that.  Sadly, Pfizer was NOT helpful the last 2 times I called them to discuss gluten content/contamination.  Mylan generic was VERY helpful!  Choice to be determined.  Goal is to reduce fatigue. 5.  Continuing with exercise, meditation, drawing, etc.  Paying attention to mindset and emotional calm.  Optimism is my friend. 6.  On a humorous note, my hairline continues to advance!  I always had the highest of foreheads.  Ha!  Now my hairline is moving, from all directions, closer to my eyes!  i actually have developed a widow's peak!  This is too funny.  Sixty-six years old and my hairline keeps getting thicker and more extensive!  Mother Nature toys with me! HAPPY VALENTINE'S DAY to everyone!!   Remember to love yourself!
    • I got WELL!!
      Posterboy, Many, many thanks for providing such complete information.  Your efforts won't go to waste.  I will look into each item you mentioned. Not sure the iodine is an issue as I no longer have a thyroid.  And too much iodine can aggravate my intermittent rashes.  (Never was tested for DH.  Didn't see the point as I was already diagnosed with Celiac.) Thanks again!
    • Celiac in 10 month old?
      Thanks all for the information! Still waiting to hear back on what sort of follow up the doctor wants to do, but this information has been very helpful in the meantime. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,769
    • Most Online
      1,763

    Newest Member
    thalben@hotmail.com
    Joined