It's good to hear things are going better Chris. Six months is still fairly early in the gluten-free diet. Things should be improving over the next few months. It takes a while for the antibodies to decline and the gut to heal. Stopping dairy helps many people because the tips of the villi make the enzyme lactase which digests dairy sugar (lactose). Without the villi tips we don;t have lactase so can't digest dairy sugar. That causes plenty of symptoms all by itself. Many people regain the ability to digest dairy after a while healing but not all.
Hmm, we may be talking in circles a bit. My take on your words in red is that you think having D when glutened 1) means you your villi never healed even though you were gluten-free for years? Or do you mean, 2) your villi healed, and you ate gluten, and then the new damage from the recent glutening caused villi damage and D?
#2 gets my vote. Anytime we ingest gluten the immune system kicks in and starts "protecting" us. That protection includes attacking and damaging the gut llning where the nasty gluten is hiding. That can cause D. The D doesn't mean you never healed, but that you got new, recent damage. The celiac disease reaction is not forgotten by the immune system. The immune system always knows how to fight the gluten threat. But our bodies do know how to heal also. Our guts are continually rebuilding the gut lining even in non-celiacs. The gut takes a lot of damage from just plain digesting food. Add in the immune system attack and the healing process an get left behind in the dust.
are your new negative results with or without a gluten challenge?
i think its irresponsible for your doctors to dismiss positive bloodwork. i agree that positive blood results points towards at least potential celiac disease and there is a good chance that there either wasn't enough damage yet or they missed it. pretty sure high Gliadin IgG means you were having an immune response to gluten. ttg IgG is less specific/sensitive than Iga but nonetheless it is an antibody related to tissue damage in the small bowel.
seems common for GIs to deem celiac blood work as unreliable and then glaze over the fact that biopsy results can also be unreliable.
if you have/are doing a gluten challenge i would ask for an EMA bloodtest and DGP not just ttg. if not maybe get the genetic test?
I have the same symptoms. These symptoms have overlapped other issues that I have and have been left untreated for far too long. Now the pain has gotten worst. My GP believes it's my hiatal hernia. I have pain below my breastbone, pressure pushing up my chest/throat, dizziness and nausea.