Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Different Reactions To Gluten?
0

5 posts in this topic

Hi,

Wondering if pre-gluten-free anyone noticed their reactions to a specific gluten food varied.

I'm back on gluten for 3 months to prepare for the biopsy and have to ingest gluten twice a day.

Some mornings I have a bagel and cr.cheese and it's only moderate pain (I'm lactose intolerant but take lactaid pills), sometimes (like right now) it's horrible. The other day I had bread at breakfast and it wasn't too bad, but was sick after my spinach and crouton salad at lunch - in fact I had to hit bed for the rest of the day.

I have positive anti-bodies, steatorrhea, alt constip and diar,psoraisis, low iron, low b-12 and definetly had all symptoms clear the 8 months I was gluten-free but I'm puzzled I don't get the same reaction consistently after the same food :huh:

Thoughts? anything to do with what is already digesting or has last digested or stress?? anyone else experience similar??

thanks!

jen

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello!

I'm pre-diet as well and I have the same thing occur... up's and down's of symptoms. I believe mine is totally stress-related, but I'm just not sure. When my system is upset, I also have a dramatic increase in lactose intolerance.

Gretchen

0

Share this post


Link to post
Share on other sites

Thanks Gretchen!

That's what I seem to get as well. It's a really bad week for me stress-wise and every little thing is causing more discomfort than usual for longer durations :blink: . Thanks for your info.

0

Share this post


Link to post
Share on other sites

Each time I slip, the reaction is different. One time it was severe sinus congestion, the next time my stomach hurt beyond belief, after that, I was very irritable and depressed. I don't know why they are always different, it is very confusing. I guess that's the thing about Celiac: it is never the same way twice! Before being gluten-free, my reactions were also different. I had such varied reactions, from constipation to migraines to muscle cramps and anemia.

0

Share this post


Link to post
Share on other sites

Yes, I have different reactions... sometimes to the same exact foods! One night, a Domino's pizza could give me horrible "D". Another night, just pain, bloating. Another night it could give me constipation. And another night it would cause nothing at all! No problems! That was why I let this go for a year because it was not consistent so I felt like I had nothing to go on. But I eventually went to the doctor and he did blood tests and I came up positive for antibodies. I always figured celiac disease presented the same symptoms. I never figured I would have it because I can eat gluten and many times nothing happens.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,655
    • Total Posts
      921,622
  • Topics

  • Posts

    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,656
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined