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Here Come The Tests...
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Hey folks, OK I met with my GI today (the clinic that actually links to this website from theirs). Actually I was a little disappointed, the Doc was 1 1/2 hours late and spent about 10 mins with me. Here's what we are going to do:

1. Edoscopy

2. Stool O+P, WBC

3. Blood CBC, CMP, UA, Antigliadin, antiendomesial, antibody, Iggi, IgA

4. Small bowel X-ray and Gall bladder Sono

Some of these codes I am unsure of, particularly the stool one. I hope this is comparable to what Enterolab lab offers although I have a suspicion that I'll be using them later. The Nurse was actually really rude when I asked her about YorkLab testing...she proceeded to tell me about her son whom she had test for allergies 23 years ago!!! I tried to mention that surely things had changed since then but I was talking to a brick wall. At any rate the Doc wants to see these results first and then proceed from there. Personally I'm still very keen to have these YorkLab tests done.

Well I'm back on Gluten for the time until I get through the tests. Comments, concerns, questions all welcome.

THANKS!

"Rejoice in the Lord always. Again I will say, rejoice!" PHILIPPIANS 4:4

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From your list of tests, I'd say your doc is looking for more than celiac disease. Test #4 indicates to me that he is also looking for gall stones. I don't know what the stool test will show him, unless he is checking for blood. If you can get through to your doc, ask him if he is running Enterolabs stool test. It would be interesting to find out if he is.

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The stool test for oand p is for ova and parasites, it is common to do these

especially if you are having diarrhea.

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No I don't believe he is using Enterolab, and I don't have diarrhea so I'm a bit buggered on this one, though I suppose it can

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Good luck with the tests. Definitely need to continue eating wheat for those, though the side effects suck.

I haven't experienced that particular side effect, but I thought I've read of others saying they have...

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My PCP just called after chatting with my GI and I am now scheduled for an EGD to look for, guess what, celiac disease and also Whipple Disease. My question then is this:

I will have been gluten-free for more than 3 months by then, will there still be damage to see? They will also be taking biopsies for further testing. They are not doing blood tests because I told my PCP that I was not going to eat gluten again and make myself sick. I can't even IMAGINE - I had some bread crumbs contaminate my lunch yesterday and I was SOOOO sick and it couldn't have been more than a few crumbs that got stuck to the plastic wrap - that is what I get for being in a hurry, never again!

Thanks...

-Kate

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Hard to say whether they will see damage. Depends on how much damage there is to start, how fast you heal, and possibly how many samples they take and how expert the person looking at the slides is. But if you get that sick from a few crumbs I would also forget about eating gluten. If they are going for reasons other than to look for celiac disease, I'd go ahead with it.

richard

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My PCP just called after chatting with my GI and I am now scheduled for an EGD to look for, guess what, celiac disease and also Whipple Disease. My question then is this:

I will have been gluten-free for more than 3 months by then, will there still be damage to see? They will also be taking biopsies for further testing. They are not doing blood tests because I told my PCP that I was not going to eat gluten again and make myself sick. I can't even IMAGINE - I had some bread crumbs contaminate my lunch yesterday and I was SOOOO sick and it couldn't have been more than a few crumbs that got stuck to the plastic wrap - that is what I get for being in a hurry, never again!

Thanks...

-Kate

<{POST_SNAPBACK}>

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I am new to this, just read your post. My father has Celiac or something. Has been gluten free for 3 months (very strict, no cross-contamination) still has bad anemia (7.9 Hemaglobin and it has continued to progrees downward rather than in an upward direction ie. 9.4 to 8.4 to 7.9 over the last several months rather than upward.) Never did the small intestinal biopsy for proof and GI's blood test (gliadin IgA AB was barely elevated) while still on regular diet. Huge gastric improvement with gluten-free diet. Most all gastric (IBS-like symptoms) have gone away.

I am very interested that your doctor tested you for Whipple Disease. I think that is very forward thinking since it is such a rare disease. I am especially interested because I think my Dad may have that. He is 84 and it seems difficult to get tests for him since doc's seem to think that it is just his age. Maybe for his doctors his age makes him not so hopeful to cure perhaps. But we are in the process of being referred to a GI doctor that is very familiar with Whipple Disease.

It sounds like you may have a very good doctor to go to the extent to 1.) consider you could have Whipple Disease and 2.) actually test you for it.

How did your tests go? Any sign of Whipple Disease? I hope that your condition has improved since your post.

Any information would be greatly appreciated.

Thank you,

Joyce

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    • Hi strawberrymoon, If you are having a blood sugar problem, that can cause nerve damage and tingling.  Nerve damage is often associated with diabetes.  You can ask your doctor to check your A1C level to get an idea how it has been doing. It would probably help your glucose levels to stick with a paleo style diet, avoiding most carbs.  Carbs and meats have a different affect on blood glucose.  Carbs tend to spike blood glucose while meats even it out. There are a lot of negative changes that can happen with high blood glucose.  It is wise to try and get it under control ASAP.  My brother has lost most of his vision in one eye now from high blood glucose.  And he has the tingling symptoms you described.  The tingling can progress to pain in time.  My brother chose to ignore his diabetes and is paying the price for it.  He is doing better at it now but the damage is done. Yes, B-12 deficiency can cause those kind of nerve symptoms.  But if you have high blood sugar that is the more common cause.   Diabetes is not a rare condition.
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