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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Here Come The Tests...
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9 posts in this topic

Hey folks, OK I met with my GI today (the clinic that actually links to this website from theirs). Actually I was a little disappointed, the Doc was 1 1/2 hours late and spent about 10 mins with me. Here's what we are going to do:

1. Edoscopy

2. Stool O+P, WBC

3. Blood CBC, CMP, UA, Antigliadin, antiendomesial, antibody, Iggi, IgA

4. Small bowel X-ray and Gall bladder Sono

Some of these codes I am unsure of, particularly the stool one. I hope this is comparable to what Enterolab lab offers although I have a suspicion that I'll be using them later. The Nurse was actually really rude when I asked her about YorkLab testing...she proceeded to tell me about her son whom she had test for allergies 23 years ago!!! I tried to mention that surely things had changed since then but I was talking to a brick wall. At any rate the Doc wants to see these results first and then proceed from there. Personally I'm still very keen to have these YorkLab tests done.

Well I'm back on Gluten for the time until I get through the tests. Comments, concerns, questions all welcome.

THANKS!

"Rejoice in the Lord always. Again I will say, rejoice!" PHILIPPIANS 4:4

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From your list of tests, I'd say your doc is looking for more than celiac disease. Test #4 indicates to me that he is also looking for gall stones. I don't know what the stool test will show him, unless he is checking for blood. If you can get through to your doc, ask him if he is running Enterolabs stool test. It would be interesting to find out if he is.

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The stool test for oand p is for ova and parasites, it is common to do these

especially if you are having diarrhea.

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No I don't believe he is using Enterolab, and I don't have diarrhea so I'm a bit buggered on this one, though I suppose it can

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Good luck with the tests. Definitely need to continue eating wheat for those, though the side effects suck.

I haven't experienced that particular side effect, but I thought I've read of others saying they have...

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My PCP just called after chatting with my GI and I am now scheduled for an EGD to look for, guess what, celiac disease and also Whipple Disease. My question then is this:

I will have been gluten-free for more than 3 months by then, will there still be damage to see? They will also be taking biopsies for further testing. They are not doing blood tests because I told my PCP that I was not going to eat gluten again and make myself sick. I can't even IMAGINE - I had some bread crumbs contaminate my lunch yesterday and I was SOOOO sick and it couldn't have been more than a few crumbs that got stuck to the plastic wrap - that is what I get for being in a hurry, never again!

Thanks...

-Kate

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Hard to say whether they will see damage. Depends on how much damage there is to start, how fast you heal, and possibly how many samples they take and how expert the person looking at the slides is. But if you get that sick from a few crumbs I would also forget about eating gluten. If they are going for reasons other than to look for celiac disease, I'd go ahead with it.

richard

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My PCP just called after chatting with my GI and I am now scheduled for an EGD to look for, guess what, celiac disease and also Whipple Disease. My question then is this:

I will have been gluten-free for more than 3 months by then, will there still be damage to see? They will also be taking biopsies for further testing. They are not doing blood tests because I told my PCP that I was not going to eat gluten again and make myself sick. I can't even IMAGINE - I had some bread crumbs contaminate my lunch yesterday and I was SOOOO sick and it couldn't have been more than a few crumbs that got stuck to the plastic wrap - that is what I get for being in a hurry, never again!

Thanks...

-Kate

<{POST_SNAPBACK}>

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I am new to this, just read your post. My father has Celiac or something. Has been gluten free for 3 months (very strict, no cross-contamination) still has bad anemia (7.9 Hemaglobin and it has continued to progrees downward rather than in an upward direction ie. 9.4 to 8.4 to 7.9 over the last several months rather than upward.) Never did the small intestinal biopsy for proof and GI's blood test (gliadin IgA AB was barely elevated) while still on regular diet. Huge gastric improvement with gluten-free diet. Most all gastric (IBS-like symptoms) have gone away.

I am very interested that your doctor tested you for Whipple Disease. I think that is very forward thinking since it is such a rare disease. I am especially interested because I think my Dad may have that. He is 84 and it seems difficult to get tests for him since doc's seem to think that it is just his age. Maybe for his doctors his age makes him not so hopeful to cure perhaps. But we are in the process of being referred to a GI doctor that is very familiar with Whipple Disease.

It sounds like you may have a very good doctor to go to the extent to 1.) consider you could have Whipple Disease and 2.) actually test you for it.

How did your tests go? Any sign of Whipple Disease? I hope that your condition has improved since your post.

Any information would be greatly appreciated.

Thank you,

Joyce

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    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
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      Let me tell you that based on what people post on this forum, it takes MUCH longer to heal.  In theory,  it should just take a few week on a gluten diet to promote villi healing.  Your body is constantly regenerating new cells in your gut on a daily basis.    Why the delay?   First,  it takes a long time to really master the gluten free diet.  So, in the beginning, dietary mistakes are often made which can delay the healing time.  Second,  celiac disease is an autoimmune disorder triggered by gluten causing a "flare-up" which can be measured by the level of antibodies in your system.  Antibodies can take weeks, months or years to come down.   Third,  there's the type of damage done to your body to consider (e.g. bone damage, depleted iron levels).  Usually anything neuro takes much longer to heal. Has your doctor checked you for nutritional deficiencies?  If not, ask.  You might be really low on a vitamin or mineral.   You could be low on digestive enzymes (actually they can not be released in a damaged gut).  So even when eating gluten free foods, your body is not digesting and absorbing the necessary nutrients.  You could help the healing process by taking gluten free supplements and enzymes.   But it is best to see what you are actually deficient in.   Most of these deficiencies resolve with time. Finally, my parting words of wisdom (as passed on by many of our members), is patience.  I know.  Hard to be patient when you want to feel well, but it will happen.   Hang in there!  
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      Now if everyone out there who probably has a gluten problem adopted your attitude, they would be having a much better life.  After over 10 years gluten-free myself, who really cares about gluten pizza? I go months without gluten free pizza, which is very good by the way, and I am not an emotional wreck.  Imagine!  Glad you feel better and yes, it was the wheat!
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