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Glutenease
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About a week ago I went and got my hair done. I took two Glutenease right before I went in. I got my hair colored, cut and styled. No limitations on products, just whatever she normally used (plenty of wheat and oats in the ingredients, of course).

To make it especially interesting, I ended up with my hair in my mouth while she was blow-drying it, with about three different products on it. Pfftht... It was my fault. I had to open my big mouth to say something while she was blow-drying. :rolleyes:

By the time I got home I could tell I was having a bad reaction. You know how you get a worse reaction from actually getting a good amount of gluten rather than cross-contamination? Well, this was a pretty bad reaction. I've only gotten a bad reaction 3 or 4 times since being gluten-free, and this was up there with the worst.

When I get my hair done, I've only gotten cross-contamination before. I'll usually get a mild to moderate reaction.

I waited until I was home for about an hour so I could make sure it wasn't my imagination and it really was a reaction. Then I took another Glutenease, not expecting much because it hadn't helped stop it from happening in the first place. But it actually worked. A half hour later I was feeling much better.

- My hands had already been breaking out and just got a little red for a couple days.

- I was about ready to just crawl in bed and go to sleep, and I wasn't tired anymore.

- When I got back I was really pissed because my haircut was nothing like what the picture looked like. After the glutenease I ratcheted down to irritated. :P

- The insides of my ears got swollen and irritated feeling, that went away completely.

- I didn't have any GI symptoms. I don't have a ton of GI symptoms usually, but was having a stomachache and nausea that slowly went away. No D, but I usually just get a touch of that the next day.

- Didn't get any hair loss, which usually happens the next day. Even when I've had mild CC and I'm not exactly sure if I'm glutened or just in a bad mood, I'll get sudden increased hair loss that lasts for a day or two.

- I usually get really bad mobility and pain problems and that didn't happen at all.

Basically, it seems to have stopped the glutening reaction that had already started. I wasn't sure if it would come back or not, so I wanted to wait until a few days had passed before I gave a review.

I didn't take any further glutenease other than the two before that apparently didn't do anything, and the one after. My reactions usually last a day or two for the main symptoms and then I don't feel like myself for about a week while I'm slowly feeling better. My skin reaction doesn't go away for about three weeks.

With the one post-glutening Glutenease, it seems to have stopped the reaction completely.

I'm SOOOO not encouraging people to take this in order to try and eat gluten. We have no idea if this product causes other health problems (like any of us need that in our lives...). We also have no idea if this just keeps the symptoms from occurring and the villi or neuro damage is still accummulating, or if there is a true cessation of damage.

Nancy

Genetics: Two copies of DQ1, subtype 6. Not the two identified celiac genes. Technically, I'm gluten intolerant, not celiac.

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About a week ago I went and got my hair done. I took two Glutenease right before I went in. I got my hair colored, cut and styled. No limitations on products, just whatever she normally used (plenty of wheat and oats in the ingredients, of course).

To make it especially interesting, I ended up with my hair in my mouth while she was blow-drying it, with about three different products on it. Pfftht... It was my fault. I had to open my big mouth to say something while she was blow-drying. :rolleyes:

By the time I got home I could tell I was having a bad reaction. You know how you get a worse reaction from actually getting a good amount of gluten rather than cross-contamination? Well, this was a pretty bad reaction. I've only gotten a bad reaction 3 or 4 times since being gluten-free, and this was up there with the worst.

When I get my hair done, I've only gotten cross-contamination before. I'll usually get a mild to moderate reaction.

I waited until I was home for about an hour so I could make sure it wasn't my imagination and it really was a reaction. Then I took another Glutenease, not expecting much because it hadn't helped stop it from happening in the first place. But it actually worked. A half hour later I was feeling much better.

- My hands had already been breaking out and just got a little red for a couple days.

- I was about ready to just crawl in bed and go to sleep, and I wasn't tired anymore.

- When I got back I was really pissed because my haircut was nothing like what the picture looked like. After the glutenease I ratcheted down to irritated. :P

- The insides of my ears got swollen and irritated feeling, that went away completely.

- I didn't have any GI symptoms. I don't have a ton of GI symptoms usually, but was having a stomachache and nausea that slowly went away. No D, but I usually just get a touch of that the next day.

- Didn't get any hair loss, which usually happens the next day. Even when I've had mild CC and I'm not exactly sure if I'm glutened or just in a bad mood, I'll get sudden increased hair loss that lasts for a day or two.

- I usually get really bad mobility and pain problems and that didn't happen at all.

Basically, it seems to have stopped the glutening reaction that had already started. I wasn't sure if it would come back or not, so I wanted to wait until a few days had passed before I gave a review.

I didn't take any further glutenease other than the two before that apparently didn't do anything, and the one after. My reactions usually last a day or two for the main symptoms and then I don't feel like myself for about a week while I'm slowly feeling better. My skin reaction doesn't go away for about three weeks.

With the one post-glutening Glutenease, it seems to have stopped the reaction completely.

I'm SOOOO not encouraging people to take this in order to try and eat gluten. We have no idea if this product causes other health problems (like any of us need that in our lives...). We also have no idea if this just keeps the symptoms from occurring and the villi or neuro damage is still accummulating, or if there is a true cessation of damage.

Nancy

Genetics: Two copies of DQ1, subtype 6. Not the two identified celiac genes. Technically, I'm gluten intolerant, not celiac.

Hi Nancy,

When I use this product I often find that I have to take more than two. Since the way you got the gluten was transdermal and thus going right into your bloodstream it would make some amount of sense that you may need more. When I travel and there is NOTHING for me to eat and I have to have some gluten I take 4. Of course this is the exception and only when I can't avoid it. I also noticed it has worked better over time- this could be the gut healing work I've been doing.

Many parents with Autistic kids use Glutenease and there are not side effects reported. It usually helps to heal the villi along with other gut healing enzymes and nutrients. Karen Defelice has done lots of work with this.

Here is a published article on DPP-IV:

http://ajpgi.physiology.org/cgi/content/abstract/283/4/G996

There is another article in JAMA as well.

Be Well

Hoolie

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I can't believe i've never heard of this product before. I work in a restaurant and when i'm pms'ing, the only thing in the world that i want is a big plate of french fries. I know ours are pure potato, but they are not cooked in a dedicated fryer, but around that time of the month I usually snag a couple and hope for the best, which is usually just a minor reaction but worth it at the time. well last night i was starving and so busy and no time for food, and ate a giant plate of fries without even thinking about it first. well i'm sure it didn't help that i woke up a bit hungover this morning also, but what i felt was a whole lot more than a hangover. i feel like i want to leave work and crawl in a hole and die!!! if this stuff works, even to have on hand for gluten accidents (it happens) or makes the symptoms a little better after a mistake, then i will run, not walk, to the nearest health food store and buy a case full of the stuff. i'm sure my boyfriend would appreciate it too if my cranky miserable self that i am when i feel this way could do something about the symptoms other than just wait them out. has anyone else had any success with this? I wouldn't think of buying it to try to eat gluten, but for days like this when i've gotten glutened somehow or another and just want to feel better so i can get back to work and resume my life again

:blink:

Hi Nancy,

When I use this product I often find that I have to take more than two. Since the way you got the gluten was transdermal and thus going right into your bloodstream it would make some amount of sense that you may need mor e. When I travel and there is NOTHING for me to eat and I have to have some gluten I take 4. Of course this is the exception and only when I can't avoid it. I also noticed it has worked better over time- this could be the gut healing work I've been doing.

Many parents with Autistic kids use Glutenease and there are not side effects reported. It usually helps to heal the villi along with other gut healing enzymes and nutrients. Karen Defelice has done lots of work with this.

Here is a published article on DPP-IV:

http://ajpgi.physiology.org/cgi/content/abstract/283/4/G996

There is another article in JAMA as well.

Be Well

Hoolie

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    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
    • I think that we have to remember that celiacs often develop intolerances due to our  damaged guts.  Our guts do not ncessarily heal either (usually adults) for  a variety of reasons even if their symptoms improve (see links below).   Nuts are just plain hard to digest.   I can not tolerate almonds, but can handle walnuts and cashews in small amounts.  I can eat peanuts too, but resort to Peanutbutter after a Glutening as it is easier to digest (maybe I have to learn to chew better!  😀)  My nut symptoms have  nothing to do with gluten as I have purchased certified gluten-free nuts and suffered with the same symptoms.  .   https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341 http://www.cureceliacdisease.org/treatment/ http://www.ncbi.nlm.nih.gov/pubmed/23936873 i call the manufacturer when I suspect the manufacturer is sharing the line or if I just want to know.  I bought some Black English walnuts and called the company.  Those are the only nuts they process and they do not have any flavored nuts.   if you really want to test your theory out, buy some nuts from Nuts.com (certified gluten-free).   See if you get a reaction or ask your GI to retest your antibodies (which should be done annually anyway).   I just hate to have Planters get a bum rap when you do not really know for sure.......😥    
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