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It's Celiac!

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4 replies to this topic

#1 Guest_cd&dhspruehead_*

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Posted 24 September 2004 - 01:17 PM

Exsplaining celiac to others is like talking to a wall.If doctors don't get it ,why would the general public.Wheat is only one of the things we are allergic to.It comes in so many forms.''Wheat allergy''makes it all seem tame.No one can grow out fo Celiac.its there for life.Look at foodallergybuddy.com for example.Thay have down lodeable food allergy cards.Whats there to ceck off under the wheat calum.Every thing but barley,rye,oats,ext.
There has got to be a way to shake up everyones way of thinking.Tv,radio comercels,newspaper ads,something.T-shirts are ok,bumper stickers yah,but do you pay any attention when your busy doing other things.Coeliac uk is five years ahead of us here in the US.YOU CAN'T BREATH WHEAT IN TO YOU BODY,BE AROUND A WHEAT MILL,OR USE IT.All will couse a reatsion.
It hi time people get the message that this is CELIAC not ''wheat allergy''.
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Posted 24 September 2004 - 01:49 PM

While I get your point, some people still aren't up to speed on allergy. And some people treat allergy with more respect than intolerance. (Celiacs, even a bad case, is not at all likely to have you dead 30 minutes after a small exposure. Anaphylactic allergies are. So, people assume if it won't kill you right away, it's not awful if you get a bit.) Definitely more education is needed, and for those of us willing to answer the questions and take the odd looks, starting by saying "I'm gluten intolerant; eating wheat, barley, rye, or oats will make me very sick." is a good start.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA



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Posted 26 September 2004 - 04:35 PM

Although you all may not agree wth my way of getting the seriousness across I like it: I let my food servers, cooks, etc know that I have Celiac Disease and that it is a SEVERE intollerance to wheat, gluten, barley, and oats, and that even cross contamination can harm me. Then I ask them if they know what Celiac Disease is and if they understand it, if they do I leave it at that. However, if they don't I simply let them know that even the smallest amount of the ingredients I listed can kill me or make me violently ill very quickly, and that I would prefer my meals w/o garnish and everything served seperately and to please cross reference any "iffy" ingredients with my Celiac card. As far as the general public goes, all my friends, family and doctors are knowledgeable about it, and I'm always informing people about it when I can find a discussion starter.
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#4 Guest_cd&dhspruehead_*

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Posted 05 October 2004 - 12:43 PM

Doctors are not up to speed on CDd or DH.Its a food allergy to them.Meds have ''W''.Liqued & or pill.Its up to us to get the phormest to look it up if thay ever have the time.
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#5 Guest_PastorDave_*

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Posted 06 October 2004 - 06:55 AM

Hi! I'm PastorDave's wife. I love the way he tells people about his wheat "intolerence." He says, "well, it won't kill me at once, it will just kill me very slowly and painfully!" They get the idea!!!
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