Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

How Much Is Gluten-free?


kurai

Recommended Posts

kurai Newbie

Hi,

I had been having GI problems for a while, even went to a GI specialist, where he diagnosed me with motility disorder and prescribed me maximum dosage of the medicine Dicetel. A month later, my problems just seemed to skyrocket. I was in the bathroom all the time and I could not get into contact with my GI specialist.

I went to a homeopath (to try detox) and she suggested to get off of gluten and dairy products. Once I started that, my problems got a lot better. However, since I was never tested, I now wonder what my problem really is.

I did a pinprick allergy test, and though I'm allergic to quite a few things (all the nature ones ie. pollens, ragweed, dust, tobacco smoke etc.. , yeast, eggs, melons, bananas, chocolate just to name a few) I did not test positive for wheat or dairy products. Although I know that the pinprick test only tests for immediate reactions and not delayed or long term ones, I wonder if I really am gluten intolerant or I'm reacting to some other ingredient in my food.

I'm thinking of doing the celiac panel test but I read somewhere that the test isn't accurate if you're on a gluten-free diet. I've been pretty gluten free except I eat Ezekiel 4:9

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Viola 1 Rookie

Basically, you need to be eating gluten (I believe the equivalent of 2 slices of gluten bread) for several weeks, ( I was told 6 weeks) before taking the test. If you have been gluten free the tests will likely be negative. It's tough ... if a "papered" diagnosis is not really important, I would just consider myself Celiac and stay gluten free.

It really is a personal decision and you need to really think about it.

Good Luck!

Link to comment
Share on other sites
kurai Newbie

Thanks for the info!

Hmm... Do you think the Ezekiel 4:9

Link to comment
Share on other sites
Guhlia Rising Star
Thanks for the info!

Hmm... Do you think the Ezekiel 4:9

Link to comment
Share on other sites
RiceGuy Collaborator

Well, though you might certainly be gluten intolerant, you did mention a yeast allergy. If I'm not mistaken, soy sauce is a fermented product, and if the bread or anything else you eat has yeast then it could be a contributing factor.

I found yeasts and sugars to be a problem quite awhile before I knew anything about gluten, but now I know it was related, with gluten being the cause of the other sensitivities. I stopped going to doctors before any of this though, as they had only made my problems worse, so I can't recommend anything with regard to "official" diagnosis.

Link to comment
Share on other sites
Nancym Enthusiast
Thanks for the info!

Hmm... Do you think the Ezekiel 4:9

Link to comment
Share on other sites
kurai Newbie
Well, though you might certainly be gluten intolerant, you did mention a yeast allergy. If I'm not mistaken, soy sauce is a fermented product, and if the bread or anything else you eat has yeast then it could be a contributing factor.

I found yeasts and sugars to be a problem quite awhile before I knew anything about gluten, but now I know it was related, with gluten being the cause of the other sensitivities. I stopped going to doctors before any of this though, as they had only made my problems worse, so I can't recommend anything with regard to "official" diagnosis.

Yes, you're right, soy sauce is fermented. I just wasn't too sure how strictly I should eliminate my allergy foods b/c 1) it's only a pinprick test and 2) when I asked, my allergy specialist said to just cut down, and not eliminate all the things I tested positive for completely from my diet.

lol, I agree with the doctors thing. Most haven't helped me at all, or made my symptoms worse. Oddly enough, I found my homeopath knew and helped me the most.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kurai Newbie
What are the sprouted grains? It depends on whether they're gluten free grains or not.

Well, the ingredients on the bag say "Organic sprouted whole grain wheat, filtered water, organic sprouted whole grain barley, organic sprouted whole grain millet, Organic malted barley, organic sprouted whole lentils, organic sprouted whole soybeans, organic sprouted whole grain spelt, fresh yeast, sea salt. This unique bread is made from freshly sprouted live grains and contains absolutely no flour. "

I've been eating this bread b/c I've been told and I've read that "gluten breaks down during germination and the bulk of the gluten naturally contained in wheat breads breaks

down in sprouted breads." And thus people with wheat or gluten allergies are able to eat sprouted grain breads.

Link to comment
Share on other sites
Lisa Mentor
Well, the ingredients on the bag say "Organic sprouted whole grain wheat, filtered water, organic sprouted whole grain barley, organic sprouted whole grain millet, Organic malted barley, organic sprouted whole lentils, organic sprouted whole soybeans, organic sprouted whole grain spelt, fresh yeast, sea salt. This unique bread is made from freshly sprouted live grains and contains absolutely no flour. "

I've been eating this bread b/c I've been told and I've read that "gluten breaks down during germination and the bulk of the gluten naturally contained in wheat breads breaks

down in sprouted breads." And thus people with wheat or gluten allergies are able to eat sprouted grain breads.

Not this chick. ;)

Link to comment
Share on other sites
Viola 1 Rookie
Not this chick. ;)

I agree, I'm not eating them either! :o

Link to comment
Share on other sites
Michi8 Contributor
Well, the ingredients on the bag say "Organic sprouted whole grain wheat, filtered water, organic sprouted whole grain barley, organic sprouted whole grain millet, Organic malted barley, organic sprouted whole lentils, organic sprouted whole soybeans, organic sprouted whole grain spelt, fresh yeast, sea salt. This unique bread is made from freshly sprouted live grains and contains absolutely no flour. "

I've been eating this bread b/c I've been told and I've read that "gluten breaks down during germination and the bulk of the gluten naturally contained in wheat breads breaks

down in sprouted breads." And thus people with wheat or gluten allergies are able to eat sprouted grain breads.

Ezekiel 4:9 bread is not gluten free. However, if you go to the company's website: Open Original Shared Link They do have a list of products that they make which are gluten free.

Michelle

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,225
    • Most Online (within 30 mins)
      7,748

    jhand
    Newest Member
    jhand
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...