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Screwy Test Results

3 posts in this topic

Hello, I'm hoping someone can help me. One year ago, I was diagnosed with Celiac Disease. I have been gluten free since then (about a year). I also have other food allergies: wheat, soy, dairy, yeast. I've been very sick again recently and they repeated my test results.

Here they are:

Reticulin IGA negative

Reticulin IGA T Does Not Register

Gliadin AB IgG 101 (it's suppose to be below 20)

Gliadin AB IgA 9 (it's supposed to be less than 20)

I'm sure that I haven't been eating any gluten. I'm very careful about labels. I even check, soap, shampoo, etc. My doctor says I have to be getting gluten from somewhere. When I was originally diagnosed, the test results were pretty much the same, except my IgG was 65, not 101. What is going on? Any words of wisdom?


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Are you sure that you haven't gotten a hold of gluten from something? I know that sounds silly but even certain sodas contain gluten. What about your medications or vitamins? I got sick about a month ago and was so upset because I had done everything to remain gluten-free. Turns out that I was taking a vitamin supplement and when I called the company to see if it contained gluten, they never gave me a straight answer and then never returned my call. I stopped taking the calcium plus D and within a week my stomach calmed down. I now take a different brand. Take a look in your medicine cabinet. There can be some real culprits in there. I know about the other food allergies too as most of the things you listed make me sick as well, especially one you didn't list, corn, (corn syrup, etc). They say that celiacs can really get sick from high fructose corn syrup, so I stay away from it. First off, take a look at any meds you are taking. I hope this helps and I want you to hang in there. It can get discouraging because you feel like you are working so hard to avoid what makes you sick and then you get results like that. You will find out what it is. Also, stay away from corn syrup, it can be bad news for people like us. Take care.


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I agree with your doctor and Natalie; it really looks like you're getting gluten from somewhere. You say that you got sick again recently, and I am assuming that you had been doing fairly well before then. So, what happened in your life right before you got sick? Did something change in your diet/medications/hygiene routine? If so, there's your prime suspect! I hope you succeed in tracking down the culprit soon, so you can return to healing your body! Good luck!


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    • Already had that looking on experience and in the end had to leave the room as it was unbearable just sitting there with people laughing at me not being able to eat, yup people are cruel and really show their colours at times like this. Tbh based on the reactions I've had from people my age so far the kissing thing will be irrelevant as no one will stick around to get that far. Since the diagnosis whenever the gluten stuff has come up I've been belittled and made the butt of jokes. Then even people who previously were OK with it started jumping on the bandwagon too. Seems like the alternative to the "bad ones" is no one, which is even worse @GFinDC it's the time thing that's really getting me down right now. Feel like I've lost out so much already and the thought of losing another year or two to this is driving me crazy, especially when I see others my age making the most of their lives and I know with this I can't do the same.  I'm exactly one of those people you described, never been interested in cooking and vegetarian too which rules out this paleo diet everyone seems to use as gut healing. Just adds to the feeling of being lost in all this and once I close the forum window I'm on my own. Still wondering if to do those Cyrex tests to find out early on which other foods may be problematic. Part of me isn't convinced they're scientifically proven enough to be useful but then others seem to have had useful result. Trouble is it's not cheap and already been drained money-wise by these private hospital visits so have to pick the treatments wisely...
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    • Yes, GFinDC you've got the gyst of what I am after. If I am reading your response correctly then, you think that inflammation in the gut caused by gluten ingestion is enough to trigger diarrhea, quite apart from the state of one's mucosa? That would be good news for me. More information on this inflammation reaction in the gut with gluten ingestion is precisely what I am after, but cannot seem to find. Because, as stated, as far as I know, D is mostly if not only, caused by flattened villi. OTOH, how interesting to hear from you, cycling lady, that you had flattened villi and no D! RMI, the link is quite depressing. Many appear not to have healed mucosas after a gluten-free diet. A repeat endoscopy is what is so clearly needed by many of us, but honestly I am a little wary of the risks.
    • No, they didn't test my ttg igg, which I was surprised about considering the low IgA and positive DGP Igg. (The tests they did were IgA serum, Ttg IgA, DGP Igg and IgA and gene testing) If he ever returns my call, I was going to ask him about that.  He initially wanted to set up a endoscopy, but I told him I had one last year (with my prior GI) and he said he'd take a look at it and we'd go from there, except that was two weeks ago and I haven't heard from him.  My prior GI did take biopsies, I believe to rule out H.Pylori and I was told biopsy results were normal, however, I didn't receive a pathology report or anything like that.
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