Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

My First Post- About My Son
0

27 posts in this topic

My son always loved oyster crackers -- lived on them. The first months out of the hospital, I couldn't even be in the same aisle in the grocery store as those crackers. When I eventually did, I cried like a lunatic, right there in the store. And it felt good.

The school is legally obligated to accomodate your son. You will find, however, that is simply easier to send his food. But you aren't ready to be dealing with all this right now. I know it is so overwhelming, and depressing to think of all the stuff he's missing. To feel like you are going to "poison" him by accident, or someone else might. But believe me, you are blessed that he isn't suffering from an incurable, untreatable, degenerative illness, or one that requires dangerous medicine or therapy. I kept telling myself that over and over.

There are still lots of things he CAN eat. And what he eats is only a very small part of who he is. We try to tell our son "well, this sucks, but it's what we got, so we aren't going to let it ruin our lives". I learned to make gluten-free pizza. I learned to think creatively. I learned to never apologize for not letting him eat things, and I learned that we can do whatever we want as long as we figure out a new way to do it. (I do so miss spontaneous trips!) I learned to order MCd burgers without the bun (why do they call it a muffin?)!!! YOU WILL GET THERE!

Hang in there, you are doing fine so far. When you are ready, try Miss Roben's ---a multiple-allergy vendor on the web at www.missrobens.com . Some of our new favorite foods come from there.

Joanna

mom to a son with: celiac, egg allergy, and autoimmune enteropathy: rare disease where his body tries to reject his small intestine. Lost 25 pounds in 4 months; weighed 48 pounds at 10 yrs/hospital admission for 7 weeks, recovery for 4 months --- weighs 72 pounds and DOING GREAT!

0

Share this post


Link to post
Share on other sites


Ads by Google:

The gluten free pantry has a pretty good pizza crust I bought a seperate crust cutter for it. I use it as bread. Tastes pretty good crunchy from the oven.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,106
    • Total Posts
      920,397
  • Topics

  • Posts

    • Hello! My daughter was diagnosed with Celiac non-biopsied about 6 months ago. When I recently went for my physical, I mentioned to my PCP that my daughter was Celiac, she said that I need to be tested. I took a blood test that day and here are the results: Anti-Gliadin IgA                     Gliadin Ab(s) IgA - 18.23U/ml    -      Standard Range: 0-15 U/ml   - Result: Positive My PCP told me to start a gluten-free diet right away and she will re-test again in 6 months. I was expecting a full panel, like my daughter had, not sure if it is necessary or not. We elected not to put my daughter through a biopsy, as she was just recovering from a ruptured appendix and her GI Dr. agreed that he numbers were so high that she was fairly certain w/o biopsy that she was Celiac. My DD feels so much better. Do you think this test is enough for me to start the gluten-free diet? I actually have cut way back on gluten, as I somewhat eat what my daughter eats. So my test may have reflected that decrease. Should I ask for more testing? Is this test sufficient? Thanks for any assistance!!  
    • That's hard.  You can try the "I come to be social,"  "I have serious food allergies", "I only come to drink"...... whatever might feel comfortable.  I know celiac is not an allergy but more people understand if you say celiac is like a severe food allergy.  Do go, have fun.  Don't let food stop you.  Yes, people give looks but honestly they get to know that this is just you and hopefully they will come to accept it. 
    • I thought it had all died down too so I started buying them for my celiac daughter. 4 boxes were fine. The 5th made her very sick for over a week.  Beware!
    • Agree!  That is a difficult spot to be in.  I have a friend who insists she can cook for me.  I have tried the "I come for the company, not the food", "I am celiac.." etc.  I finally gave up and said "I love you but no!".  It's very hard.  Very hard!  But stay strong.
    • I never ate at the fair but always "rewarded" myself with a nice glass of wine at the wine and beer patio!   The corn on the cob might be ok but I have to agree with the poster who mentioned that stuff at the fair probably isn't terribly clean.  Stuff your purse with snacks and enjoy.  My partner would feel bad about eating in front of my and I would just - I don't feel bad so that's your problem, not mine! lol 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,144
    • Most Online
      1,763

    Newest Member
    GlutenFreeGreg
    Joined