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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ibs And Bacteria Overgrowth
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26 posts in this topic

This article talks about how bacterial overgrowth may account for some cases of IBS (not "IBS" as in I'm basically stumped but in IBS that persists despite a gluten-free diet or treatment for another gastro disorder. Remember when ulcers were caused by stress? :rolleyes:

http://www.usc.edu/uscnews/stories/10460.html

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Bev,

I think alternative doctors have been aware of dysbiosis (too much bad bacteria...too little good bacteria) being the cause of gastro illness and other disease for quite some time now.

I think mainstream might finally be catching on. :o

I saw it on the news a couple weeks ago...they were talking about how they *think* that IBS may be caused by bacteria overgrowth. :huh:

I dont think alternative medicine uses the term "IBS" though...basically dysbiosis causes symptoms of disease.....whether its gastro related or otherwise.

I'm not too big a fan of mainstream medicine these days and I had to laugh at their lastest and greatest "discovery". :rolleyes:

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interested in this

getting the written report from hydrogen test tomorrow and let you know what it says

hope we get some more imput.

thanks..hi rachel

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Bev,

I think alternative doctors have been aware of dysbiosis (too much bad bacteria...too little good bacteria) being the cause of gastro illness and other disease for quite some time now.

I think mainstream might finally be catching on. :o

I saw it on the news a couple weeks ago...they were talking about how they *think* that IBS may be caused by bacteria overgrowth. :huh:

I dont think alternative medicine uses the term "IBS" though...basically dysbiosis causes symptoms of disease.....whether its gastro related or otherwise.

I'm not too big a fan of mainstream medicine these days and I had to laugh at their lastest and greatest "discovery". :rolleyes:

Rachel- I hear ya!!!!!!!!!!!!!!!!!!!!!!!! I don't blame you for laughing!

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Dr. Mark Pimentel in CA has done some work on this. I think he is def onto something, but his studies have been flawed. However, it is an overlooked reason for IBS symptoms.

I have the book on it, in case anyone wants it. :) I was tested for it last year .... of course, negative.

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Dr. Mark Pimentel in CA has done some work on this. I think he is def onto something, but his studies have been flawed. However, it is an overlooked reason for IBS symptoms.

I have the book on it, in case anyone wants it. :) I was tested for it last year .... of course, negative.

HI LAURA AND THANKS...

READ HIS PERSONAL PAPER SENT TO MY GI......READ IN GASTRO JOURNAL........READING OTHER RESPONCES TO HIS DATA..........SO GETTING INFO ON THIS.

THIS DR. IS THE PERSONAL FRIEND OF MY GI AND IS WHAT SHE WANTS ME TO FOLLOW 'EVEN THO' THE BREATH TEST ONLY SHOWED 1 POINT IN THE LOW RANGE OF POSITIVE.

NOT THE 200 MG DOSE..BUT 400 mgs 3X/x a day :ph34r::blink:

I'VE HAD NO 'D' SINCE GOING OFF DAIRY AND CASEIN. HER APT ON MARCH 14TH RESULTED IN MY OWN 'CLINICAL TRIAL' gluten-free HOT FUDGE SUNDAY WITH W/CREAM AND NUTS.

BOWEL MUST BE HEALING..AS FIND AFTER AND ALL NITE AND IN AM 2 NORNAL STOOLS..

17 'TRIPS' TO BATH ROOM AND WATER BY NOON..................IT'S PROOF TO ME....

IDEAS????

JUDY

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lAURA

DO YOU HAVE THE BOOK HE WROTE ON IBS?

IS THAT THE ONE YOU MEANT?

IF YOU WANT TO GET RID OF IT....I'LL GADLY ACCEPT IT......OR

DO YOU NOT WANT IT CAUSE IT ISN'T VALID YOU YOUR OPINION........THEN IN THAT CASE...WITH YOU BEING THE RESEARCHER YOU ARE................I'LL SKIP IT.

READ SO MUCH ON IT YEARS AGO BUT KNOW THE INFO IS CHANGING.

THANKS JUDY

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Dr. Mark Pimentel in CA has done some work on this. I think he is def onto something, but his studies have been flawed. However, it is an overlooked reason for IBS symptoms.

I have the book on it, in case anyone wants it. :) I was tested for it last year .... of course, negative.

laura- You tested negative? Ugh! have they figured anymore out about what's going on with you.

My test got moved up to this Tuesday and I'm hoping this is a piece of the puzzle.

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Bev, I have been tested for EVERYTHING. :). multiple endos, colonoscopies, barium swallows, ultrasounds, HIDA gallbladder scan, celiac blood panel, gene tested, bloodwork out the wazoo, more urine and stool samples than I care to count, bacterial overgrowth, ... etc. Remember? I had the "best"---NIH and Johns Hopkins, after much of the above testing done in VB. ;)

I requested to have it done in September, before I moved. Everything except my Lyme and co-infections tests have been negative...hence, thats what I've been dx'ed with and now treating.

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After my first visit with my new GI, he ordered blood, urine, & stool samples to find out what was wrong with me (and causing my chronic diarrhea). I then started taking XIFAXAN

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IM

Thanks so much for taking the time to post.

I have a bottle beside me..I am to take the double dose also....but....by the time I got in to the GI apt after waiting 3 1/2 months to get it.--the 'd' was gone!

The hydrogen breath test showed only a POINT above the norm for dx'ing it. I have no 'd' now since I went off diary and casein 7 weeks ago.

go figure. :blink:

did you have the test too?

judy

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IM

Thanks so much for taking the time to post.

I have a bottle beside me..I am to take the double dose also....but....by the time I got in to the GI apt after waiting 3 1/2 months to get it.--the 'd' was gone!

The hydrogen breath test showed only a POINT above the norm for dx'ing it. I have no 'd' now since I went off diary and casein 7 weeks ago.

go figure. :blink:

did you have the test too?

judy

No. There was never any mention of it. lm

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Bev, I have been tested for EVERYTHING. :). multiple endos, colonoscopies, barium swallows, ultrasounds, HIDA gallbladder scan, celiac blood panel, gene tested, bloodwork out the wazoo, more urine and stool samples than I care to count, bacterial overgrowth, ... etc. Remember? I had the "best"---NIH and Johns Hopkins, after much of the above testing done in VB. ;)

I requested to have it done in September, before I moved. Everything except my Lyme and co-infections tests have been negative...hence, thats what I've been dx'ed with and now treating.

Laura- I probably knew this but I amm so brain-dead right now! I'm sorry. I hope you weren't upset that I forgot! :(

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Bev...no, not at all! It was said more "tongue in cheek" about the best care ;).

You have enough on your plate, no worries!

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One of the first celiac experts I ever heard, Dr. Cynthia Rudert, said the top two reasons some people who have celiac don't get better is non-compliance with the diet and bacterial overgrowth.

richard

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I'm kind of cautiously excited--I'm going to see a new gastroenterologist in early April. She's younger, and over the phone said that she would talk to me about my additional food intolerances and continued, intermittant IBS-type symptoms.

My current gastro refuses to address this--saying I only need to stay away from gluten. <_< I was supposed to see him again in February, but I can't see going in and getting the same speil.

My allergist is more helpful, really, but with Bev and Judy as my inspiration :D , I'm going to go and see if there's anything else at play here.

Wish me luck.... :unsure:

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Patti,

That is so wonderful. At the very least, its worth ruling things out. No need to suffer if there is help!

Keep us updated!

L

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Patti,

It will be more answers for you. I second Laura....keep us posted. :)

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Thanks Laura and Andrea :D

The appt. is on the 3rd.--I'll keep you posted.

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hi Patti

I'm so happy for you

got your email today and will reply soon.

I'm praying that you get some answers and can share with us too.

was happy to see Richard's post today

if you want to read up on the hydrogen test..or the research..i can forward to you..

just let me know.

again...so so so happy your going to some one open to looking at intolerances.

ps..got more notes from Scott so all alerts are off again.

please keep me posted on new info incase I'm not on...would sure appreciate it.

hugs

Judy

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Laura- Oh good :rolleyes: I felt so dumb...but sometimes it's so hard to keep up with everyone.

richard- thank you for that info!

Patti- My appt. is on the 3rd too! I've decided that in the last two years, I've had no problem firing doctors! :rolleyes:

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I don't know if this will help any of you or not, but it's worth looking into....

When I was diagnosed with Celiac 1 1/2 yrs ago, my GI immediately handed me samples of a probiotic called Flora Q. He started me on 2 caps/day and then after a month reduced me to 1 (usual dose). He said that the "flora & fauna" of the intestinal tract gets unbalanced more often than most realize and results in a cycle of some very serious problems. He said that he recommends Flora Q to all of his Celiac patients and some others. (He said he's had better results from this than from other products.)

It works well for me! It's a little expensive. about $30 for 30 day supply, but it's so worth it to me! Truthfully, I don't remember to take it every day, but when I start to get that blegh "ibs" feeling, I start taking it again, and within 2-3 days I feel much better. I try to take it then at least for a couple of weeks straight.

Flora Q info:

Manufacturer - Kenwood Therapeutics

label information:

GLUTEN FREE

contains: lactobacillus, bifodobacterium, lactobacillus paracesei, streotococcus thermophilus

other ingredients: maltodextrin, hypromellose, microcrystalline cellulose, sodium alginate, silicon dioxide, magnesium stearate, titanium dioxide, FD&C blue 2

This product is free of the following allergens: milk, wheat gluten, egg, fish, crustacean shellfish, soybean, tree nuts, and peanuts

Flora Q is an OTC, but I've never found it on the shelf with the other priobiotics in any pharmacy. I have to ask a pharmacist because it's always behind the counter eventhough it's an over-the-counter.

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thanks so much for the post...sounds like a good product and a Dr. that knows what's UP!

CAN'T WAIT TO HEAR HOW BEV'S TEST WENT

JUDY

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Thanks jaten. My test came back negative but think I am going to restart probiotics. I still LOVE LOVE LOVE your dog and now I have one too!!!!!!!!!!!!!!!

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I'm kind of cautiously excited--I'm going to see a new gastroenterologist in early April. She's younger, and over the phone said that she would talk to me about my additional food intolerances and continued, intermittant IBS-type symptoms.

My current gastro refuses to address this--saying I only need to stay away from gluten. <_< I was supposed to see him again in February, but I can't see going in and getting the same speil.

My allergist is more helpful, really, but with Bev and Judy as my inspiration :D , I'm going to go and see if there's anything else at play here.

Wish me luck.... :unsure:

Wondering how it went today Patti! Hope you got some answers!

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