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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Swelling Of Arms, Legs And Face
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7 posts in this topic

I was diagnosed with celiac disease on December 5th, 2006. I have since been adhering to a strictly gluten free diet. Over the last month, I have been experiencing swelling in my legs. My legs are their normal size in the mornings, but throughout the day, they swell to be quite big. More often now, my arms will swell and when my arms swell, my face is generally puffy. Sometimes I feel as though my torso swells when the swelling is inordinate in my arms and legs.

Prior to my diagnosis, I had no real medical history. Even now, all my blood work is normal, including thyroid, glucose, ferratin and hemoglobin, kidney and so forth. I take no medications except for clonopon (sp?) which is for my restless leg syndrome and I am cutting back on that as that rarely causes me any problems either. My BP runs 90-ish over 60-ish all the time.

I am 47 years old, work out 90 minutes a day and eat healthy 6 days out of the 7 days a week. I splurge foodwise one day a week. My biggest vice is Diet Coke. I know I drink too much of it. I don't drink alcohol or smoke. I am 5 ft. 7 inches tall and weigh 140 lbs.

My doctor speculates that I have an increased salt sesitivity perhaps due to the celiac disease. She is stumped I believe. On days where my salt intake is fairly moderate, I have swelling. On days that I eat a more salt, I am that much more swollen. Having said that, one might say that yes, salt is the problem.

Last night was my splurge night so I had french fries and a few nuts. This morning, I was noticeably swollen all over to the point that I could not button a pair of pants that are normally loose. It is very unsettling to say the least, especially since salt has never been a problem for me prior to now.

Has anyone had similar experiences? Has anyone become more salt senstive as a result of celiac disease? Any other possibilities that I should consider?

I would appreciate any information.

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Has your doctor done a simple urine test for protein? I had something similar and it turned out to be a kidney disease, even though my kidney function was 100%. I'll spare you all the details, but it's a simple test for your doctor to do. I would at least want to rule this out if I were you. I had problems with salt too. (I'm fine now and can eat salt again.)

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Has your doctor done a simple urine test for protein? I had something similar and it turned out to be a kidney disease, even though my kidney function was 100%. I'll spare you all the details, but it's a simple test for your doctor to do. I would at least want to rule this out if I were you. I had problems with salt too. (I'm fine now and can eat salt again.)

I'm going to second this - I have the kidney thing too. Swelling too. If you haven't had your protein checked and you decide to, you may want to get your cholesterol checked also.

Could have nothing to do with this. One of the symptoms you will sometimes have with this is "foamy" urine.

Your BP looks low. High BP is usually associated with this problem, but mine is normal range usually. Hope you find your answer in any case.

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I have found a magnesium supplement to be very effective for increasing nutrient absorption. It seems to help with proteins, carbs, fats, and I think a few other things. It has helped to reduce or eliminate the swelling most of the time, unless I really over indulge.

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If you haven't had your protein checked and you decide to, you may want to get your cholesterol checked also.

On second thought, just the protein test would be a much easier way to rule it out. The cholesterol test will probably be unneccesary unless something shows up on the simpler (protein) test.

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I know french fries are high in sulfites. The reason being they would turn brown once peeled and exposed to the air. Some people will have a sensitivity to sulfites if you want to do a google search on it. I can't recall all the foods high in sulfites other then wine, greens in a salad bar (so they stay fresh looking, dried fruits, and I believe lunch meats.

Gail

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Thanks to all of you for your prompt responses. I have had that particular urine test and the results were fine.

I will research the sulfites angle as suggested by one of you, however, I've experienced excessive swelling without having eaten fries. I am open to all suggestions.

Thanks again.

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