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Itchy Ears
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My husband has itchy weepy blister inside his ear canals. Before we figured out he had Celiac Disease (by self diagnosis) the itchy weepy blisters were also near his eyes around his tear ducts. (He was diagnosed with celiac disease as a child but his mom never kept him on a gluten-free diet.) For the last six months we've maintained a gluten-free lifestyle but occassionally are surprized to find gluten in shampoo or some other product. When we go out to eat we always stress that our food must be gluten-free but they can be careless......The first symptom he has is itchy ears, then the weepy blisters, then they crust over and block his hearing. We need a recomendation for a treatment and a doctor in the DFW area. Our whole family is gluten-free now but the DH is making my husband more miserable than giving up wheat.

Many Thanks,

Cathey

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Cathey

I have no suggestions as my husband is going thru almost the same thing. The skin errupts close to his ear canal (not in it thankfully). I'd sure like to know what to use that would help it (other than gluten-free diet and gluten-free skin lotions).

Deb

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Cathey and Deb, I have the same problems exactly with my ears, I also have these in my nose. I was diagnosed several years ago, but this is a recent problem. I also have the weepy, itchy blisters on my knees, elbows, shoulders and occasionally on my face. The only way they will go away is to eat gluton-free. Occasionally when they are severe, my Dr. will give me a scrip for Dapsone. He's very stingy with it. I guess it can ca use more problems. Good Luck Carlena

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If you break out with these blisters and dapsone takes care oif them, you have DH. And if you have DH, you also without question have celiac. According to celiac experts, you don't even need the celiac tests. You need to go gluten-free full time.

richard

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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