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Vomiting, Unable To Process Foods

6 posts in this topic

Hello :) I've been sick since November 2002. Up to that point, I was a somewhat healthy 18 year old girl, active in school and work and whatnot. Anyway, I have always had an intolerance to wheat gluten, and was ok avoiding it until then. In November 2002, however, one of my younger brothers died and since that day, nothing has been staying in me, really. It started out with cereal and milk. I would end up throwing them up. After that, it was basically everything else, but especially processed foods, sugars (except for honey & pure maple syrup) and anything with animal fats in them. I have been to many doctors hundreds of times in the past year plus, with no help. I lost about 20 lbs. in the two weeks following his death. Most doctors brushed it off as grief and told me to see a counselor. I do, and as much as my brother's death saddens me, I've moved on. I've lost a sister, many friends and I've gotten used to death. Other doctors checked for so many other things: lupus (which was the diagnosis based on the ANA levels and some symptoms for quite a while, until my ANA levels were normal again), pancreatitis, gosh I don't even remember most of it!!!

Anyway, my doctor called me a couple days ago after she read an article in some magazine about Celiac and she wanted me to come in to test me again. I really am sick of the tests and my arm looks like a junkie's arm from so many needle pokes. Before I waste the time (and money!!) to go in and be tested, I wanted to come here and see if my symptoms were like anyone else's or if this is just another hope-its-finally-a-diagnosis.

My main symptoms are:

- Vomiting and diarrhea after eating almost anything but fruits, vegetables and unprocessed foods

- Extreme bloating

- My belly looks fat after I eat some things... I go from a size 3 to a size 10 in a matter of minutes, just with my belly, nothing else.

- I don't gain weight no matter what I do

- I'm always tired, to the point where I sleep 12-18 hours a day (and still sleepy after that!)

- Headaches and trouble concentrating

- Feeling stupid because I can never think straight (and I used to be a straight A+ college student). I feel as if I'm in a different world sometimes.

- Trouble driving because I can't always focus correctly

And during the past year, my blood tests have shown (mostly at different times; I've not had a blood test show the same results twice this whole time):

- Extremely low levels of white cells

- Low hemacrit

- Low red cells

- High RDW (whatever that is)

- Low platelet count

- Extremely low Neutrophils and Lymphocytes (whatever they are too)

- High & low ANA levels

- Anemia

Sorry for the long post, but if any of you have the same symptoms or know that these are symptoms for Celiac, please let me know. I don't want more tests, but I don't want to be sick anymore either!

- Bella. :wub:


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Bella, Are you eating any foods with gluten in them? If so, your symptoms do sound like Celiac. The blood tests are not difficult so, if there is a possibility of your getting better why not try the blood tests. You also may have developed a problem with dairy products, because of damage to your intestine. So if you test positive for Celiac, you should also eliminate dairy from your diet for at least a couple of months. Your symptoms sound a lot like many of us Celiac's, but don't despair. We all get used to the diet and compensate with other foods that we can eat, which are much healthier anyway.


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Bella, You said you have always had an intolerance to wheat gluten. Were you diagnosed with Celiac before? And have you also been avoiding rye and barley glutens? There are many forms of hidden gluten out there, so maybe you have been having gluten all along and did not know it. The stress of losing your brother could have triggered the disease to go into a more active form. It often take a very stressful event to trigger the disease and from that point on the symptoms are much worse until you can get 100% gluten free. I would highly recommend that you get the blood tests done. Your symptoms are consistent with Celiac Disease.

God bless.



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I don't know all what foods have gluten in them... I eat mostly a vegan diet now because I can't have animal products but I was never diagnosed when I was little with Celiac. My mom just noticed that whenever she fed me bread or cereal with wheat gluten in it, I would cry and not be able to digest it right, sometimes it would come back up, sometimes it would hurt my stomach. She figured it was that because my nanny had the same problem with one of her kids. So I haven't been eating wheat gluten, but I wasn't even aware that there was other types of gluten! And does everything that has gluten in it have to be mentioned on the label? Because I have problems with other foods that don't say anything about gluten on the label. :\

Can it be diagnosed with just a blood test? My doctor said she wanted to do some test on my intestine as well as the blood work. If it's just blood work though I guess it's not that bad. :)

Thanks a lot and God Bless :)

- Bella :wub:


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Mine was diagnosed by a blood test, and then the doctor said that they wanted to biopsy my small intestine to absolutely confirm things and assess the damage done.

It sounds like it quite possibly could be Celiac from what you've described. I also read somewhere that a traumatic emotional experience could spark it as well, which could explain why it showed up immediately following your brothers death. Mine showed up immediately after a surgery, to the day almost.

I'd let the doc run the tests, esp since you've been so sick and miserable for so long. If they come back positive, I'd also opt for a biopsy to see whats going on and confirm things.

I hope you find some answers soon, it sounds like its difficult to function and you shouldn't have to live your life like that.



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They start with the blood test, and then do a small intestinal biopsy. It is not as bad as it sounds. You are asleep for it, and they put a small tube down your throat, into your stomach and look at the upper part of your small intestine. They take a few small tissue samples. It usually doesn't hurt at all, some people have a little bit of a sore throat afterwards. I've had this done twice, and not had any problems with it. the hardest part for me is not being able to eat or drink for the morning of the test. I always end up with a headache.

As for the foods that do contain gluten, no most do not say gluten on the labels. You have to learn what to avoid. There are some nice lists of what to avoid and what is safe, but if you are not completely off gluten right now, then please do not start yet. You need to be on gluten for the testing. Get your doctor to schedule the testing as soon as possible and get it done. Then you can go completely gluten free.

God bless,



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    • Going private no problem with getting the tests now, adds financial pain to the physical pain but better than 6 month waiting list on the national health service. Just feels like a lot of pain and aggravation to tell me what I already know deep down. Feels like my whole future has been taken away with this and I have a feeling I haven't even seen the half of it yet. Doctor seems to be very relaxed on the concept of needing to worry about cross reactivity, gluten paranoia when eating out etc. yet it seems to be the case for most on there that that's exactly how it is for so many people. Someone tell me I'm wrong... or is that really what life becomes in the cold harsh reality of things?
    • It took me years to be diagnosed.  I've been misdiagnosed with several different things and knew that there was more to it.  I requested to have an egd to test for Celiac's two years ago, my doctor never called me back so I went low gluten from then on.  I still felt like hell because I didn't realize that "everything" has gluten in it....  My daughter became ill back in March.  I went to several different doctors trying to figure out what was causing her to be ill.  Our family doctor said she had gallstones, wanted to immediately do surgery on her.  I refused since she didn't fit the typical signs of a child with gallstones.  I requested a pediatric surgeon and then a pediatric gi dr.  The surgeon was smart enough to say maybe ask the gi dr to test for celiac disease....  Then it clicked.  I was so angry and mad at myself and my dr for not listening to my body for the past several years. Her blood test was negative, but the biopsy was positive.  She went on the gluten free diet.  I then said I wanted to be formally tested.  Blood test was negative, biopsy was positive and they ran the genetic screening.  I am a DQ2 homozygous, cat 8.  My doctor apologized to me over and over.   I have two sons that were tested for their genes, one is a cat 4 and one is a cat 2.  If they start showing signs of the disease they will be tested by way of egd.  Their pediatric gi said that I probably would've died by 40 if I was left undiagnosed.   So in saying all of that, fight for your test.  Listen to your body, but don't stop living.  Use this as a teaching tool.  Help others that don't understand the disease.  It'll be tough but you can do it...
    • Hi, thanks... Yes, I was diagnosed with glucose intolerance by an endocrinologist. That's when I started cutting back on sugar. Other than some deficits (chromium, testosterone, D + B-12) they found nothing. Except that I also have mild ostopenia, and I often get kidney stones which is strange but they told me not to worry about it and to get more exercise etc. Which is exactly what I've been doing. I can tell you, banning gluten and sugar from my diet is the best thing I've ever done in terms of diet. The pounds came right off. But don't worry, I'm not a walking skeleton yet, lol. Fortunately the weight loss is a result of my diet, I had problems losing weight before the diet and even when exercising. But it all makes sense now. I easily store carbs as fat and have a hard time losing them. I still have the intolerances though... I had a high white blood cell count but they thought nothing of it. It all points to inflammation in my gut somewhere. But hey they're the doctors if they tell me not to worry about it I'll just have to try and figure it out on my own I guess. Meanwhile I'm really happy to see the belly blubber disappear.  Cheers
    • Also, I know that the DQ2 is the most common one representing celiac disease.   I have low IgA-35 and my DGP Igg - 34.8 (medium to strong positive is greater than 30) All the IgA labs were within range. I have Hashimoto's as well. My vitamin D level is 23. I guess I'm wondering how likely it is that I have celiac disease.  The genes I have are not the worst ones to have, I believe, and while my DGP Igg is high it's not crazy high.  I'm still awaiting a call back from the GI as the PA told me to go gluten free for two weeks and then reintroduce it (this was last week while the GI was out of the office).  I guess I'm wondering what the point of that really is... Thanks again everyone for your help and advice as I navigate this...
    • Do you have any diagnosis from a doctor?  Weight loss like you are describing could signal a serious issue that you shouldn't be messing around with.
      You shouldn't be cutting out all of those foods without going to a doctor to figure out what is going on.
      A doctor would be doing testing to make sure nothing serious is going on.
      I'm the first person to say I haven't found a good doctor and I'm suffering with serious pain and issues because of that so I am altering my diet, but I'm following up with the doctor.  So if you haven't schedule an appointment with a GI doctor or some doctor.
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