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Am I Going Nuts !


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4 replies to this topic

#1 bigscott

 
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Posted 28 September 2004 - 09:32 AM

Hi folks, new on the forum but have been diagnosed with celiac disease, biopsy & blood tests. I have been gluten-free for about a week now and feel a very slight improvement although my consultant told me I have quite severe damage to stomach lining and surrounding areas...since going gluten free I have been experiencing some quite weird symptoms, forgetfulness, shaking right hand, cramp, sore neck & with helping my 10 yr old to do his school homework an inability to even do simple arithmetic....this was the worst feeling as I am very good at Maths.

Has anyone came across this before.

Thanks,


bigscott


Aye Yours.

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#2 lovegrov

 
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Posted 28 September 2004 - 11:26 AM

I'm just guessing here but if you had severe damage to the villi in your small bowel, then your physical condition is possibly still deteriorating because one week is not enough time to heal significantly and start restoring all the nutrients your body is missing. I had the brain fog and muscle and joint aches and pains for week and weeks and weeks.

If these conditions continue to get worse, though, I'd see your doctor.

richard
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#3 bigscott

 
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Posted 28 September 2004 - 12:00 PM

Thanks Richard.



bs
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#4 darlindeb25

 
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Posted 28 September 2004 - 01:51 PM

:D hi big scott and welcome-----i too now realize i had symtoms such as yours--at the time i didnt relate it to celiacs--i read things in here and i think--wow, that was me---after going gluten-free, for months i had terrbile hip pain at night--it would even become a part of my dreams--whatever i was dreaming about, i would be in tears from the hip pain and i would wake up in tears hurting so bad--from what i read in here, it sounds normal for recovering celiacs to go through these little quirks---now whenever i forget something i tell my man its the celiacs fault ;) there has to be some pluses to having this disease ;) i promise, in time you will start feeling better :rolleyes:
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#5 bigscott

 
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Posted 29 September 2004 - 04:42 AM

Thanks Deb,

I'm still trying to take all of this in...up until 2 years ago I was the fittest guy on the planet and a soccer coach, although I coach twice weekly it takes an awful lot out of me and at times trying to explain to others what it feels like also takes it out of me...It just got to the stage I kept it to myself for fear of sounding like a whinge who was always complaining.

I am glad now that I can focus and look forward to improve things and it has helped reading other peoples experiences.


Thanks a lot,

Aye Yours


BS ;)
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