Posted 29 September 2004 - 02:14 PM
We went for another opininion with a ped. gastroenterologist. After completing just about the same tests, he said that my son was G.I. and just put him on iron supplements for low iron. My family doc strongly disagrees with this dx and wants him to have a biopsy. I'm wondering if the biopsy comes back negative, is the IgG level enough for a G.I. diagnosis and could it indicate any other disease that might be overlooked?
Posted 29 September 2004 - 02:30 PM
The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
Posted 29 September 2004 - 02:43 PM
Posted 29 September 2004 - 06:12 PM
The problem with these narrow minded GI docs is that they refuse to accept or see that gluten intolerance is what causes Celiac's disease! If somone develops a gluten intolerance they should not be eating gluten. If they do it will most surely lead to one or more auto immune disorders.
My son had the same experience and without a positive endoscopy the GI would not recommend a gluten-free diet.
The tremendously high IgG level indicates that his body is currently at war with gliadin. Continued consumption will only exaccerbate the problem. His response to a gluten free diet along with the blood results would be enough in my eyes to keep him gluten-free and label him gluten intolerant.
Posted 30 September 2004 - 06:21 AM
Posted 01 October 2004 - 01:59 AM
After the specialist pronounced my husband last Autumn as celiac, his primary care doctor expresed skepticism and said the blood tests were in his opinion inconclusive. Well, the gluten free diet proved the gastro correct.
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
Posted 01 October 2004 - 04:20 AM
When I was dx'd as having Microscopic Colitis last year from biopsies from the colon my GI said that I should avoid simple carbs. He said I could eat wheat! I began my venture on the internet and investigating this syndrome. I saw how it is connected to celiac/gluten sensitivity and began to question whether wheat derived foods had an influence. It most certainly does in my case.
I have the main gene that predisposes to gluten sensitivity and celiac sprue. That was found through Enterolab testing of mouth swab dna and stool samples. I was having upper leg pain, backaches, headaches, lower left sided abdominal pain, diarrhea/constipation; these have all been significantly reduced when I took wheat out of my diet. I also stopped taking advil/ibuprophen and just use tylenol when needed.Constipation is indicative to a gluten intolerance.
I wonder how many individuals who have been dx'd with IBS are really celiac or gluten sensitive?
That is rather scary isn't it.
I am so glad that we have the internet which opens us up to education, health and healing.
Keep your stress down too~ that contributes to gut problems as well
Posted 01 October 2004 - 07:04 AM
I think about the same thing- how many people who are diagnosed with IBS (Me, for ten years) have celiac. I saw an add for ddrugs on TV the other day to help with IBS, and I got really mad. Here is this ad, full of women running through feilds because they aren't boated anymore. How much damage can these drugs be doing to undiagnosed celiacs by masking symptoms and giving another false road to exlore before diagnosis.
After ten years of getting progressively sicker ( I am 24), Knowing what is truly going on in my body (versus the useless IBS) has changed my life. I have been gluten-free for 10 months nbow, and have started mountain bike racing! This from a girl who used to ihabit the couch!
Posted 01 October 2004 - 09:01 AM
I'm not 100% convinced of my daughter's diagnosis, though the docs have been great. We are retesting her celiac panel next week to see if the numbers have decreased now that she's on anti-inflammatory meds for her colitis. (By the way, her symptoms have improved significantly.) Anyway, I just wanted to pass this bit of info along...Hope this helps some people understand a little better!
Posted 06 November 2004 - 07:12 AM
Posted 08 November 2004 - 03:30 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
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