Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Developing Symptoms Post Diagnosis?
0

7 posts in this topic

My question is essentially whether or not you can develop symptoms even after being diagnosed with celiac disease while symptom-free.

When I was diagnosed with celiac disease 3 months ago, I had no symptoms. (I used to get symptoms 3 years ago but they went away and I quickly forgot about it) Since I was diagnosed, I've been pretty strict with my diet. I cheat very rarely, and only because I never got symptoms and it's been kind of tough adjusting immediately. But the past couple of days I've been getting these absolutely ridiculous stomach aches. Tonight I went out to dinner and had a burger with no bun, but I didn't ask them to clean off the grill. The same thing happened two days ago. Is it possible that I'm getting a little bit of gluten in my food and I've become more sensitive to it now that I haven't had any in my diet? (or is it probably just that I've gotten some stomach aches and am making too big of a deal out of it...)

0

Share this post


Link to post
Share on other sites


I notice that when I get gluten slips now it is so much more painful and worse than when I was sick all the time. You may just be having accidents. Maybe you need to limit your diet to foods you know are really really safe for the next few days to make sure your okay.

0

Share this post


Link to post
Share on other sites

It could be either but many people do report having much worse reactions as time goes on. This is not unusual.

richard

0

Share this post


Link to post
Share on other sites

Ok so my question is this..........I just was diagnosed last week......but i dont understand because i wasnt ever like SICK from this, all i got was a lot of the runs :P What do you all mean when u say you were sick. I never lost weight nothing like the symptoms.....now im wondering if i continue on my way eating gluten whats wrong with some diarhia? its not like i feel sick from it? i was diagnosed through blood tests and the more i hear the more i feel i dont have this....or maybe im in denial? i dunno....i just feel like I dont feel sick if I eat gluten so why should i stop and then if i ever eat it again actually feel sick? I dunno if this makes sence to anyone but just whats in my head. THanks!

~Liz~

0

Share this post


Link to post
Share on other sites

now, here are some Symptoms of a gluten allergy, and whatever has a star beside it is what I experience:

Head:

Feeling dizzy or faint*

headaches

migraines

heavy feeling*

--------

Eyes:

Watery*

itchy*

red*

swollen

tired*

sore*

blurred vision*

heavy feeling in eyelids

--------

Nose:

Runny nose*

sneezing*

itching*

burning*

excessive mucus*

blocked nose*

sinusitis

--------

EARS:

ringing in the ears*

soreness*

loss of hearing*

earrache

burning sensations

itching*

--------

THROAT AND MOUTH:

soreness*

sore gums*

swollen tongue

mouth ulcers

loss of taste*

hoarseness*

cough*

choking fits

itching of the roof of mouth*

bad breath*

--------

HEART AND LUNGS:

chest pains*

palpitations

rapid heartbeat

asthma*

ches congestion*

tightness across chest*

shallow breathing*

excessive sighing

breathlessness*

catarrh*

---------

GASTRO-INTESTINAL:

nausea*

vomiting

stomach cramps*

diahrrea*

constipation*

swollen stomach

bloated feeling after eating*

flatulence*

feeling 'full up'long after meals

stomach pains*

poor appetite*

cravings for foods*

dyspepsia*

-----------

SKIN:

rashes*

hives*

inexplicable bruises*

easily marked skin*

eczema

excessively pale colour*

dermatitis

itching*

soreness

redness

sores*

acne

-----------

OTHER PHYSICAL SYMPTOMS:

weakness*

cramp*

cold hands and feet*

flushing*

shivering fits

trembling*

aches and pains in the joints*

swelling of the limbs

aches and pains in the muscles*

swelling of the face, hands, feet, ankles

constant feeling of hunger*

gorging with food

oedema

obesity

---------

BEHAVIOURAL AND PSYCHOLOGICAL SYMPTOMS:

nervousness*

anxiety*

panic attacks

depression*

apathy*

irritability*

day-dreaming

confusion*

restlessness*

poor concentration*

mood swings*

agression

unreasonable giggling or weeping*

speech difficulties*

couldnt-care-less attitude*

general feeling of misery*

excessive sleeping*

hyperactivity

insomnia*

And I can tell you, I dont think I had ANY of these symptoms before getting celiac disease..

~lisa~

0

Share this post


Link to post
Share on other sites

Liz, you are in denial.

The blood tests simply do not give false positives. If the blood tests were positive and you have any symptoms (diarrhea), then you're talking nearly a 100 percent chance you have it. Some people are diagnosed with no symptoms at all.

I had almost no symptoms, not even diarrhea, or so I thought. I never realized that the mouth sores and constant headaches were due to celiac. I thought my lack of energy was because I was getting older and wasn't exercising like I should.

If you continue eating gluten it won't be just diarrhea. You'll start getting a cascade of symptoms and could end up like I did, in the hospital essentially dying of malnutrition (I didn't know I had celiac until I was diagnosed in the hospital). 11 days in the hospital and 10 weeks off work. It took 10 months to fully recover. It appears I was fortunate and didn't end up with other problems, like more autoimmune diseases or cancer, but those are also possible complications.

richard

0

Share this post


Link to post
Share on other sites

I wasn't very sick either. But if you're celiac, you're celiac. Getting "the runs" means that you're not going to be absorbing nutrients. It also indicates you are indeed reacting to gluten and damage is being done to the intestines. Over the long run, untreated celiacs - even those without significant symptoms - are at higher risk for intestinal cancers, additional autoimmune diseases, and dying early. It's not worth it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,691
    • Total Posts
      914,447
  • Topics

  • Posts

    • Second Panel has come back...advice?
      Update!  I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet.  Thanks! I've already replaced all kitchen equipment and pantry/fridge items. Early on I didn't realize the potential for cross contamination in restaurants. Now I do, so eating out has been put on halt for a bit. 
    • does your diet have to be like a perfection?
      Yes.  You have to be 100% gluten abstinent when you have Celiac Disorder.  It gets easier to be gluten abstinent, not because you get used to it but because of the negative effects that ingesting gluten causes when you accidentally eat something with gluten.  Nothing tastes good enough to go through a glutening.  As your system heals it will become less tolerant of your occasional lapses into gluten consumption--accidental or otherwise. You have to take this seriously.  You get used to it and there are some wonderful gluten-free options out there.  But you can't go back to gluten and stay healthy.  It just doesn't work that way. Good luck.
    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
      FlowerQueen is correct.  Once diagnosed with celiac disease, you should never consume gluten again without the risk of becoming very ill (osteoporosis, liver damage, lymphoma, etc.).   I think everyone has trouble in the beginning sticking to a gluten free diet.  That's because gluten is in so many processed foods.  It takes time to learn to read labels, make a safe kitchen, learn to eat out, get your family to support you.  I would advise reading out Newbie 101 section under "Coping" within this forum.  It contains valuable tips for becoming gluten free.  Also, check out the University of Chicago's celiac website to learn about celiac disease.  Knowledge is power!   Everyone has different degrees of damage, but I would say that learning the diet and healing can take months to a year or longer.  The good news is that this is an autoimmune disorder that is treatable -- avoid gluten at all costs!   Take care and welcome to the forum!   
    • does your diet have to be like a perfection?
      Not sure what you mean by perfecting your diet? Do you mean accidentally eating gluten?   As to re-introducing gluten again, if you have celiac disease, please DO NOT ever re-introduce gluten again. It's an auto-immune disease, not a food intolerance. It will damage your gut again if you do.  Hope this helps.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,730
    • Most Online
      1,763

    Newest Member
    Fragranista
    Joined