Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Developing Symptoms Post Diagnosis?
0

7 posts in this topic

My question is essentially whether or not you can develop symptoms even after being diagnosed with celiac disease while symptom-free.

When I was diagnosed with celiac disease 3 months ago, I had no symptoms. (I used to get symptoms 3 years ago but they went away and I quickly forgot about it) Since I was diagnosed, I've been pretty strict with my diet. I cheat very rarely, and only because I never got symptoms and it's been kind of tough adjusting immediately. But the past couple of days I've been getting these absolutely ridiculous stomach aches. Tonight I went out to dinner and had a burger with no bun, but I didn't ask them to clean off the grill. The same thing happened two days ago. Is it possible that I'm getting a little bit of gluten in my food and I've become more sensitive to it now that I haven't had any in my diet? (or is it probably just that I've gotten some stomach aches and am making too big of a deal out of it...)

0

Share this post


Link to post
Share on other sites


Ads by Google:

I notice that when I get gluten slips now it is so much more painful and worse than when I was sick all the time. You may just be having accidents. Maybe you need to limit your diet to foods you know are really really safe for the next few days to make sure your okay.

0

Share this post


Link to post
Share on other sites

It could be either but many people do report having much worse reactions as time goes on. This is not unusual.

richard

0

Share this post


Link to post
Share on other sites

Ok so my question is this..........I just was diagnosed last week......but i dont understand because i wasnt ever like SICK from this, all i got was a lot of the runs :P What do you all mean when u say you were sick. I never lost weight nothing like the symptoms.....now im wondering if i continue on my way eating gluten whats wrong with some diarhia? its not like i feel sick from it? i was diagnosed through blood tests and the more i hear the more i feel i dont have this....or maybe im in denial? i dunno....i just feel like I dont feel sick if I eat gluten so why should i stop and then if i ever eat it again actually feel sick? I dunno if this makes sence to anyone but just whats in my head. THanks!

~Liz~

0

Share this post


Link to post
Share on other sites

now, here are some Symptoms of a gluten allergy, and whatever has a star beside it is what I experience:

Head:

Feeling dizzy or faint*

headaches

migraines

heavy feeling*

--------

Eyes:

Watery*

itchy*

red*

swollen

tired*

sore*

blurred vision*

heavy feeling in eyelids

--------

Nose:

Runny nose*

sneezing*

itching*

burning*

excessive mucus*

blocked nose*

sinusitis

--------

EARS:

ringing in the ears*

soreness*

loss of hearing*

earrache

burning sensations

itching*

--------

THROAT AND MOUTH:

soreness*

sore gums*

swollen tongue

mouth ulcers

loss of taste*

hoarseness*

cough*

choking fits

itching of the roof of mouth*

bad breath*

--------

HEART AND LUNGS:

chest pains*

palpitations

rapid heartbeat

asthma*

ches congestion*

tightness across chest*

shallow breathing*

excessive sighing

breathlessness*

catarrh*

---------

GASTRO-INTESTINAL:

nausea*

vomiting

stomach cramps*

diahrrea*

constipation*

swollen stomach

bloated feeling after eating*

flatulence*

feeling 'full up'long after meals

stomach pains*

poor appetite*

cravings for foods*

dyspepsia*

-----------

SKIN:

rashes*

hives*

inexplicable bruises*

easily marked skin*

eczema

excessively pale colour*

dermatitis

itching*

soreness

redness

sores*

acne

-----------

OTHER PHYSICAL SYMPTOMS:

weakness*

cramp*

cold hands and feet*

flushing*

shivering fits

trembling*

aches and pains in the joints*

swelling of the limbs

aches and pains in the muscles*

swelling of the face, hands, feet, ankles

constant feeling of hunger*

gorging with food

oedema

obesity

---------

BEHAVIOURAL AND PSYCHOLOGICAL SYMPTOMS:

nervousness*

anxiety*

panic attacks

depression*

apathy*

irritability*

day-dreaming

confusion*

restlessness*

poor concentration*

mood swings*

agression

unreasonable giggling or weeping*

speech difficulties*

couldnt-care-less attitude*

general feeling of misery*

excessive sleeping*

hyperactivity

insomnia*

And I can tell you, I dont think I had ANY of these symptoms before getting celiac disease..

~lisa~

0

Share this post


Link to post
Share on other sites




Liz, you are in denial.

The blood tests simply do not give false positives. If the blood tests were positive and you have any symptoms (diarrhea), then you're talking nearly a 100 percent chance you have it. Some people are diagnosed with no symptoms at all.

I had almost no symptoms, not even diarrhea, or so I thought. I never realized that the mouth sores and constant headaches were due to celiac. I thought my lack of energy was because I was getting older and wasn't exercising like I should.

If you continue eating gluten it won't be just diarrhea. You'll start getting a cascade of symptoms and could end up like I did, in the hospital essentially dying of malnutrition (I didn't know I had celiac until I was diagnosed in the hospital). 11 days in the hospital and 10 weeks off work. It took 10 months to fully recover. It appears I was fortunate and didn't end up with other problems, like more autoimmune diseases or cancer, but those are also possible complications.

richard

0

Share this post


Link to post
Share on other sites

I wasn't very sick either. But if you're celiac, you're celiac. Getting "the runs" means that you're not going to be absorbing nutrients. It also indicates you are indeed reacting to gluten and damage is being done to the intestines. Over the long run, untreated celiacs - even those without significant symptoms - are at higher risk for intestinal cancers, additional autoimmune diseases, and dying early. It's not worth it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,115
    • Total Posts
      919,446
  • Topics

  • Posts

    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • Finally, proof that non-celiac gluten sensitivity is real. ... for the 30 percent of consumers who choose to buy gluten-free products and the 41 percent of ... View the full article
    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined