Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Developing Symptoms Post Diagnosis?
0

7 posts in this topic

My question is essentially whether or not you can develop symptoms even after being diagnosed with celiac disease while symptom-free.

When I was diagnosed with celiac disease 3 months ago, I had no symptoms. (I used to get symptoms 3 years ago but they went away and I quickly forgot about it) Since I was diagnosed, I've been pretty strict with my diet. I cheat very rarely, and only because I never got symptoms and it's been kind of tough adjusting immediately. But the past couple of days I've been getting these absolutely ridiculous stomach aches. Tonight I went out to dinner and had a burger with no bun, but I didn't ask them to clean off the grill. The same thing happened two days ago. Is it possible that I'm getting a little bit of gluten in my food and I've become more sensitive to it now that I haven't had any in my diet? (or is it probably just that I've gotten some stomach aches and am making too big of a deal out of it...)

0

Share this post


Link to post
Share on other sites


Ads by Google:

I notice that when I get gluten slips now it is so much more painful and worse than when I was sick all the time. You may just be having accidents. Maybe you need to limit your diet to foods you know are really really safe for the next few days to make sure your okay.

0

Share this post


Link to post
Share on other sites

It could be either but many people do report having much worse reactions as time goes on. This is not unusual.

richard

0

Share this post


Link to post
Share on other sites

Ok so my question is this..........I just was diagnosed last week......but i dont understand because i wasnt ever like SICK from this, all i got was a lot of the runs :P What do you all mean when u say you were sick. I never lost weight nothing like the symptoms.....now im wondering if i continue on my way eating gluten whats wrong with some diarhia? its not like i feel sick from it? i was diagnosed through blood tests and the more i hear the more i feel i dont have this....or maybe im in denial? i dunno....i just feel like I dont feel sick if I eat gluten so why should i stop and then if i ever eat it again actually feel sick? I dunno if this makes sence to anyone but just whats in my head. THanks!

~Liz~

0

Share this post


Link to post
Share on other sites

now, here are some Symptoms of a gluten allergy, and whatever has a star beside it is what I experience:

Head:

Feeling dizzy or faint*

headaches

migraines

heavy feeling*

--------

Eyes:

Watery*

itchy*

red*

swollen

tired*

sore*

blurred vision*

heavy feeling in eyelids

--------

Nose:

Runny nose*

sneezing*

itching*

burning*

excessive mucus*

blocked nose*

sinusitis

--------

EARS:

ringing in the ears*

soreness*

loss of hearing*

earrache

burning sensations

itching*

--------

THROAT AND MOUTH:

soreness*

sore gums*

swollen tongue

mouth ulcers

loss of taste*

hoarseness*

cough*

choking fits

itching of the roof of mouth*

bad breath*

--------

HEART AND LUNGS:

chest pains*

palpitations

rapid heartbeat

asthma*

ches congestion*

tightness across chest*

shallow breathing*

excessive sighing

breathlessness*

catarrh*

---------

GASTRO-INTESTINAL:

nausea*

vomiting

stomach cramps*

diahrrea*

constipation*

swollen stomach

bloated feeling after eating*

flatulence*

feeling 'full up'long after meals

stomach pains*

poor appetite*

cravings for foods*

dyspepsia*

-----------

SKIN:

rashes*

hives*

inexplicable bruises*

easily marked skin*

eczema

excessively pale colour*

dermatitis

itching*

soreness

redness

sores*

acne

-----------

OTHER PHYSICAL SYMPTOMS:

weakness*

cramp*

cold hands and feet*

flushing*

shivering fits

trembling*

aches and pains in the joints*

swelling of the limbs

aches and pains in the muscles*

swelling of the face, hands, feet, ankles

constant feeling of hunger*

gorging with food

oedema

obesity

---------

BEHAVIOURAL AND PSYCHOLOGICAL SYMPTOMS:

nervousness*

anxiety*

panic attacks

depression*

apathy*

irritability*

day-dreaming

confusion*

restlessness*

poor concentration*

mood swings*

agression

unreasonable giggling or weeping*

speech difficulties*

couldnt-care-less attitude*

general feeling of misery*

excessive sleeping*

hyperactivity

insomnia*

And I can tell you, I dont think I had ANY of these symptoms before getting celiac disease..

~lisa~

0

Share this post


Link to post
Share on other sites




Liz, you are in denial.

The blood tests simply do not give false positives. If the blood tests were positive and you have any symptoms (diarrhea), then you're talking nearly a 100 percent chance you have it. Some people are diagnosed with no symptoms at all.

I had almost no symptoms, not even diarrhea, or so I thought. I never realized that the mouth sores and constant headaches were due to celiac. I thought my lack of energy was because I was getting older and wasn't exercising like I should.

If you continue eating gluten it won't be just diarrhea. You'll start getting a cascade of symptoms and could end up like I did, in the hospital essentially dying of malnutrition (I didn't know I had celiac until I was diagnosed in the hospital). 11 days in the hospital and 10 weeks off work. It took 10 months to fully recover. It appears I was fortunate and didn't end up with other problems, like more autoimmune diseases or cancer, but those are also possible complications.

richard

0

Share this post


Link to post
Share on other sites

I wasn't very sick either. But if you're celiac, you're celiac. Getting "the runs" means that you're not going to be absorbing nutrients. It also indicates you are indeed reacting to gluten and damage is being done to the intestines. Over the long run, untreated celiacs - even those without significant symptoms - are at higher risk for intestinal cancers, additional autoimmune diseases, and dying early. It's not worth it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,588
    • Total Posts
      918,276
  • Topics

  • Posts

    • Last posted 2013 - Improving health
      I am glad you are feeling so much better!  Your posting will encourage others.  Thank you!
    • Last posted 2013 - Improving health
      When I first started this journey, roughly 11 yrs ago with symptoms, I had no clue. Eventually, having no luck with doctors (hypochondriac or psychosomatic), I googled my symptoms over and over looking for something... ANYTHING... that would give me a clue. Among other issues, my insides would not move, I was turning gray, felt like death, and had a persistent cough. I can't remember who but someone had posted on the forum and I found some of my symptoms. Eureka, I immediately began a gluten-free diet to see if it made any difference. Of course that was a journey, not realizing what products contained gluten. Long story shorter – first I went gluten-free, symptoms began to reappear, then it was soy (first organic was okay, then not), symptoms reappeared, took out corn, symptoms reappeared, then it was all grains. So the last couple of years I have been grain-free plus no sulphates. Actually, truth be told, my Celiac pharmacist gave me the recipe for health. I asked her if she liked a certain product. She answered, “I don't know, I have never tried it.” I asked her what she did use. She replied, “Nothing out of a box, a bag, or a bottle.” And that has pretty much been my life for the last couple of years. There is the odd product I try but it always has an after effect and I have to way the consequences against the enjoyment of it. I am one of those who react to 1 crumb in the butter, flour dust in the air, sulphates in anything, sometimes things that don't even seem like they would be a problem, like avocados and blueberries when I am contaminated. January 2016 I began this recitation. It is now May 5th, 2016 - Here I am 4 months later and I feel like screaming to anyone who will listen, “Things are improving!! My gut is healing!!” So what happened?? Someone suggested digestive enzymes. My insides were so compromised that I couldn't eat much besides fruit, veggies, and meat; all plain, all without being touched by people other than me. I could barely stand salt at times when I was compromised. Haven't been to a restaurant in years since I am not in a city that would have one to cater or understand this much of a problem. I started digestive enzymes but I read the label wrong and started with 5 first thing in the morning. Whatever... I began to notice improvements in what I could eat. Not anything different but just that I could eat without feeling ill or having my gut shut down. I stayed on those for a month and a half.. then I picked up a parasite from someone living in a very unclean apartment and visiting there and helping to clean. Well, that was a huge battle. I had to eat to discourage parasites. But in the process my insides began to heal dramatically. I was eating blackberries, drinking garlic keefir (which I couldn't have done 5 mths ago and gave me the first clue my insides had improved substantially), drinking oil of oregano or peppermint oil drops in a glasses of water, eating cabbage and green roughage. Drinking water with apple cider vinegar in it and Aloe Vera juice. After a couple of weeks my insides were a whole different story. I had a feeling of wellness that I hadn't had for years! I FELT like trying to eat something different. So I decided to try Gluten-free Rice Chex. Haven't had them in years.... and I am so happy! I can eat them!! (Not to say they are healthy, cause they are processed crap) but I didn't get sick and that was the amazing part. So now I am beginning to try a few things that would have set me back previously, I have made my own crème brulee because I have always been able to eat eggs. But the sugar was causing problems, but now it's okay. The issue I have now is that I want to try things too fast so I am having to exercise restraint. So here is it – parasites are very common, everyone has them however whether they cause problems depends on your immune system. Does it not makes sense that they would cause leaky gut? An over abundance in the gut would destroy gut tissue and take nutrients from a person and possibly put holes in the gut leading to food reactions? Digestive enzymes help to destroy the protective coating around parasites. Foods that discourage them or kill them are blackberries, garlic, cabbage, oil of oregano, peppermint oil, aloe vera juice, Braggs apple cider vinegar and more (google to find). I found medication didn't do anything so I turned to all the other. So this is how it is today. I don't suggest it is the answer to anyone else's problems but when I found this site, hidden in the posts was the beginning of the answers for me.  I may still be gluten, soy, corn intolerant but I am feeling so good now and I just thought I would tell someone.  I just wanted to share. Thanks for reading.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      Not to mention my hips and knees are killing me and I have really bad calf pains and horrible bloating after just 3 days of glutening. I don't think I could live like this for a whole week.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      I saw my gi today and he said to not worry about eating gluten. I have abdominal pain in the small intestine area and referred pain in my back, indicating pretty bad damage. So I'll just go without the gluten and do the genetic testing if needed.
    • Vagus Nerve Attack
      Hello All: I came across this series of posts from as Google search on "Wheat Vagus Nerve". I find all of your replies very interesting and would like to add mine for those searching for information but with differing symptoms. I have struggled with the vagus nerve impact to breathing as Maria mentioned in the original post, but only an impact to breathing and nothing else.  But my symptoms were brought on not only by wheat, but also by other ingredients such as dark chocolate, probiotics, caprylic acid, mustard, fluoride in toothpaste/mouthwash just to name a few.  I found when I sat down my breathing would return to normal, but as soon I got up, the impact would return. The impact to breathing would come 4-6 hours after ingestion and last for about the same amount of time.  At times I could not even take ten steps without having to stop, not being able to breath even moderately.  The symptoms now are decreasing in severity but not in duration. My doctor checked my blood for celiac and results were negative. A number of chest x-rays to rule out COPD.  I am waiting on an appoint with an allergy specialist in a few weeks to see what they have to say.  Needless to say, it is difficult to maintain a healthy weight. Thanks for your posts, and I hope my contribution is of benefit to others also.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,683
    • Most Online
      1,763

    Newest Member
    Rainbow60
    Joined