Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Hi, Suspect Cd

4 posts in this topic

Hi. My name is Jennifer. I have a 2.5 year old son who I think might have this. Let me give you a little back ground info.

Brayden has always been a "sick" child. He has had ear infection on top of ear infection. Finally at 1 year of age, we had tubes placed. Which are still there today. Going on two years! Unusual to say the least. This cured the EI problems, for the most part, but not others. At 9 months of age he was yanked off formula totally and put on regualr soy milk. We saw a slight improvement with the "reflux." Since one year of age we have had three to four different EI's, Exzema, and numerous cases of conjunctivitis. I realized a deeper problem was the underlying cause of all this. I had him allergy tested at 2 years of age. He came back with a 0/1 or 1 on most of the seasonal and envior. allergens. However, his IgE score was way above a normal one. So, I had them run the foods. RAST Test. The Dr. called me back as soon as he got the reults. His advise get him off dairy..ASAP! He told me he was also allergic to wheat, egg white and coconut. But I did not need to difcontinue use of them. About 6 months ago, right after we got Brayden off the dairy, I noticed his stools were very loose and stinky. I chalked that up to the fact he was stricly on soy products now. Then, I noticed that he had watery, mucosy stools every 3-4 days. That has since progressed to him vomitting and now severe stomach cramping. I called the ENT/Allergist and he referred me to a pedi GI. At first he was reluctant to do it as he thoguht Bray had a bug. But, I have told him, D does not last for months and months. So, he told me to scale back on the wheat and Gluten, and he will make an appt. with the GI specialist.

So, last nite, I gave him some chicken tenders, they had wheat in them. With in 1 hour he was having cramps and the big D. He even paces and cries now. I am sure that he has this, or some form of a gluten protein allergy or disease. I just want my normal happy child back. Then one I lost when he was 9 weeks old. LOL!!!

I am not sure if I should take him compltetely off gluten, as we have not seen the specialist, or wait till after they do blood work to see. I hate the fact that I am putting him in pain when I have an idea, very good one, of what is causing it. He won't even go to the potty anymore b/c of this.

Also, his is awful. And not, it is not normal 2 year old behviour. He bites for no reason at all. I had thought that maybe he was Autistic b/c of the biting social interaction, etc. But, I am thinking he is biting b/c he is in pain and does not want to be messed with.

Thank you for "listening", and please, share experiences with me. Let me know if I am way off base, or have hit the nail on the head! Thanks! :)


Share this post

Link to post
Share on other sites

Ads by Google:

If you want the best shot at accurate tests for celiac do NOT take him off gluten. See if somebody will run the blood tests immediately. All they have to do is take blood and send it to a lab that does the celiac panel. Your regular doctor could do this.

It certainly sounds like he could have it.



Share this post

Link to post
Share on other sites

Yep, it sounds like it BIG TIME!! Poor baby! Tell your doctor you want the tests done immediately. There is no excuse for the testing process to be dragged out. Keep harping at your doctor, if you have to. Your son's health is at stake!


Share this post

Link to post
Share on other sites

Thank you. I will be calling the Dr. today. I gave him some toast this morning....before coming here. sitter just called. He was in the back ground screaming in pain saying his tummy hurt. She made a comment on how bloated his tummy is. She said he had a super stinky BM and was pacing. I told her he is gonna have anotehr one, and sure enough, while on the phone with me, he did. He poots, and bam, the smell hits you, and he had a loose, mucousy stool, that stink to hi heaven, and he is fine. However, he won't eat now cuz he says it make shim sick.

It i slike this has been building up, and now all of a sudden, I can't stop it. However, I got y'alls list....I was lurking through soem post's, and have it printed off. One for me, one for the istter, and one for his Step Mother. Yes, I am single! LOL!! :)



Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Ok, that was my understanding of it too after some reading, but the fact that the result was under "celiac reflex panel" is what confused me.    I do have some unspecified autoimmune activity going on in my body. My inflammation levels are very high, my complement testing has come back off, and nobody really knows why. A total high Iga isn't a surprise in this case if it doesn't actually hab anything to do with gluten. Going gluten free made my inflammation markers rise rather than go down, so I'm inclined to believe I'm mostly okay with gluten, aside from some digestive issues that I believe are simply from the wheat not being fermented. Sourdough causes me no issue,  but soft white bread destroys me for example. Anyways, It's all very confusing and I wish I knew what the heck was going on with my body. 
    • maybe check exactly which blood tests you had done as well if the dermatologist doesn't know much about celiac its possible they didn't run enough
    • i think chips would vary from place to place depending on the ingredients where you go
    • Hey Everyone! Been celiac for 6 years, and it's my first time on a forum.  I assume my story is the same as most of yours: I was really sick and skinny and bloated, got diagnosed with celiac, went gluten-free and felt amazing, then slowly, but surely, the symptoms and elevated antibodies returned, no matter how OCD I am about avoiding cc. Basically I have what they call Non-Responsive Celiac disease.  I'm wondering, is there something ELSE that I can do? Clearly the gluten-free diet isn't enough anymore. I know I'm not alone in this experience. And I know doctors don't have any advice besides the gluten-free diet (and the new celiac drug that is apparently in phase III)). But do you guys know of any other tricks?  I went on anti-anxiety SSRIs for a bit to help with my anxiety problems, and that really helped my celiac. But now that I've sort of developed a tolerance to my low dose, the symptoms have returned. Anyone else try this? Or low doses or steroids/anti-inflammatory drugs?  I'm really sick of feeling sick. I even tried the Fasano (Gluten Contamination Elimination Diet) for 3 months, but it didn't really work. Any suggestions or tips would be much appreciated! Or even the names of doctors who have helped you!  
    • 60% of celiacs with dh test negative on the celiac blood work. Fact. Many people with DH have no digestive symptoms and only about 40% of them have the positive blood tests (serology) for celiac disease.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member