Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Only Symmetrical Rash?


mayray

Recommended Posts

mayray Newbie

I have had what I refer to as a travelling and symmetrical rash for over 20 years. In the past, I visited many dermotologists who could not diagnose and who have only treated my symptoms wih creams, etc.

My question is, is it possible to have celiac and only have the symmetrical rash symptom? Also, benedryl helps my rash. Is this typical of a celiac rash? Stress and warm weather also aggrevate my rash.

I live in a remote part of the US with no dermatologists nearby nor do I have medical insurance. But if it is possible that I have celiac, I would like to try the gluten-free diet to see if it helps at all. Any advice helpful...thanks!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I had something similar, that I now assume was DH. It did respond to prednisone and Benadryl--but at the same time, I googled "thyroid rash photos" (since I have had autoimmune thyroid disease for 20 years, I assumed it had something to do with my thyroid), found photos that looked an awful lot like my amazingly symmetrical rash, and found the link with gluten, so I immediately stopped eating gluten.

By the time bloodwork was done,I had been gluten-free for a month, but my IgG was off the charts, so I'm assuming that that was a positive diagnosis and I have no wish to ever go back to gluten.

Hope that helps.

Link to comment
Share on other sites
mayray Newbie

Thanks Fiddle-Faddle. What's DH?

Link to comment
Share on other sites
Fiddle-Faddle Community Regular

I'm so sorry! I'm rushing so much, I'm short-handing too much.

DH is short for dermatitis herpetiformis, which is a symmetrical, blistering, terribly itchy-burny rash associated with celiac. Not all celiacs get DH, but ALL people with DH have celiac, even if they have no noticeable intestinal symptoms. Interestingly, many people with DH who do not notice intestinal symptoms DO have intestinal damage, as shown by boipsy.

The good news is, if you are gluten-free, the rash and ALL intestinal damage go away forever (or for as long as you are gluten-free, which ought to be forever). Also, you can order gluten-free flours (to make pancakes, cookies, cakes, biscuits, and yummy breads that taste way better than the prefab gluten-free breads)and pastas and everything you need off the Internet.

A lot of people here on this board have been diagnosed by sending poop samples (yeah, I know, ugh) to Enterolab, and just paying outright if their insurance doesn't cover it. I can't give you feedback on that one because the diet made such a difference for me, I just didn't bother with Enterolab, but a lot of people are interested in finding out whether they have the genes for celiac, or if they are showing definite signs of gluten intolerance or casein intolerance (casein is the protein in milk).

Anyway, google Dermatitis Herpetiformis photo, and see if you can find any pics that resemble your rash!

Lotsa Luck! And welcome, this board is a haven for all of us, no matter where we are!

Link to comment
Share on other sites
Canadian Karen Community Regular
I have had what I refer to as a travelling and symmetrical rash for over 20 years. In the past, I visited many dermotologists who could not diagnose and who have only treated my symptoms wih creams, etc.

My question is, is it possible to have celiac and only have the symmetrical rash symptom? Also, benedryl helps my rash. Is this typical of a celiac rash? Stress and warm weather also aggrevate my rash.

I live in a remote part of the US with no dermatologists nearby nor do I have medical insurance. But if it is possible that I have celiac, I would like to try the gluten-free diet to see if it helps at all. Any advice helpful...thanks!

Does it look like a bullseye?

Karen

Link to comment
Share on other sites
mayray Newbie
Does it look like a bullseye?

Karen

No. If you're thinking Lymes disease, there are very few deer ticks where I live. Also, I don't have any fatigue or intestinal symptoms. Just an annoying rash that seems to wax and wane.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,997
    • Most Online (within 30 mins)
      7,748

    gameboy68
    Newest Member
    gameboy68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Legumes can be a source of wheat contamination, but I assume that you use versions labelled "gluten-free."
    • Scott Adams
      You may want to look into Benfotiamine, which is the fat soluble version of B1.
    • Scott Adams
      Be sure all testing is completed before going gluten-free, that is, unless you are certain that gluten is the culprit and have decided not to eat it again. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Jujuconnor
    • GardeningForHealth
      As a side note, it seems that medical science has evolved in the past 5-6 years regarding Celiac Disease, and I am now catching up. It seems that anything that disrupts the microbiome sufficiently enough can--in genetically susceptible individuals--lead to Celiac Disease. I have been reading now that antibiotics, excessive simple carbohydrates such as refined sugars and starches, the manner of birth such as C-section vs vaginal delivery, the diversity of one's diet, the presence of certain bacteria or viruses, can all contribute to microbiome dysbiosis, which can lead to Celiac. This is fascinating research.
×
×
  • Create New...