Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

100% For Non-violent Reactors?
0

18 posts in this topic

hello, brand new here, spent the last hour reading 5 pages on this forum and here i am posting.

it is my girlfriend who has gluten issues, she has a quite rare autoimmune desease that affects her lungs and has learned that gluten can trigger problems. she has thus attempted a gluten free diet for 2 years (i say "attempted" because after reading this forum, i see that "gluten free" is a clinical term here). her level of gluten free over these 2 years has given her a much better energy and that was the biggest symptom, tired and getting colds too often, those symptoms have diminished but one could say they still linger but also could be seen now as symptoms of opening a new business and not so healthy eating (non gluten related).

anyways, i got on here today to look into soy sauce and found it does contain gluten, but then wondered how much gluten can cause ill affects and found on here that a test showed .1 grams caused reactions, which is 1/48 the amount in a standard slice of bread, but then i wonder how much gluten is in a table spoon of soy sauce (i found no answer) and since my girl friend has no violent reactions, i wonder if an occassional chinese dinner would affect her. i'm guessing and fearing that most will respond with "don't do it, that is whats safest" but to state again, she does not have violent reactions and only seems to have ill affects after being glutened a few times over a week and her symptoms are; strange feelings in her lungs and intestines.

i know there are different levels of gluten sensitivity and i am wondering about how some people do eating 98% gluten free, maybe eating soy sauce once a week and not worrying about CC and other micro amounts of gluten.

i hope i am not too off base, as i would love some idealogical help

thanx

seth

0

Share this post


Link to post
Share on other sites


Ads by Google:

I am 100% gluten free. Except when I get a cross contamination issue, which is maybe 3 times a year. There is gluten free soy sauce. And if you go to PF Changs, they have a gluten free menu with gluten free soy sauce.

Congratulations to your girlfriend for having such a caring boyfriend.

Welcome to the forum and others will post with more details.

0

Share this post


Link to post
Share on other sites

If a person has celiac disease there is NO safe level of gluten. Ingesting tiny ammounts of gluten once or twice a month can keep a celiac from healing, and keep their cancer rick up, their vit levels off, increase the likelyhood of osteoperosis etc etc. Sounds like your girlfriend has not been diagnosed with celiac though. And just fyi, chinese foods are often battered in wheat flour and fried, and most of their noodles are wheat based. Alot of egg rolls use wheat wrappers.

0

Share this post


Link to post
Share on other sites

I feel like I say this a lot, but if you like Chinese food, try vietnamese food. I prefered it even before going gluten-free, but especially now, since it has many gluten-free choices.

Geoff

0

Share this post


Link to post
Share on other sites

thank you already for some quick replies already

i should not of generalized and said "chinese food" as we mostly eat vietnamese or korean but they all pose the same issue of using sauces that are soy sauce based which mostly have wheat as an ingredient.

i know of the pf changs option but that is far from our eating circle, aswell we have cleared far from wheat noodles and battered items, even though some rice noodle and rice papers can have wheat in them as well. we frequent an asian market and its quite surprising how much wheat/gluten is in many of the items at the store.

i believe she had one of the blood test come back showing signs of celiac. far from conclusive and far from my expertise on the illness.

0

Share this post


Link to post
Share on other sites




Sorry, but as the partner of a celiac, I'm saying 'don't do it.'

It takes less than a gram to cause a reaction. My wife gets a fever from much, much less than that. My wife got a fever from a smartie. Just. One. Smartie.

The risks are not worth it. Cancer, osteoperosis, continual malnourishment... my wife was bordering on scurvy before we were diagnosed! Don't take the risk.

0

Share this post


Link to post
Share on other sites
i should not of generalized and said "chinese food" as we mostly eat vietnamese or korean but they all pose the same issue of using sauces that are soy sauce based which mostly have wheat as an ingredient.

If it's authentic Vietnamese, it will use Fish Sauce, not Soy Sauce. You still need to be careful about the meats, but most are OK. fish Sauce does not contain wheat.

If there is a lot of Soy Sauce, then it's not proper Vietnamese food!

Geoff

0

Share this post


Link to post
Share on other sites
My wife got a fever from a smartie. Just. One. Smartie.

I just wanted to note that they are in the UK, in the US Smarties are a whole different candy and do not have gluten.

PF Changs has a gluten-free menu, so it's an easy place to eat. I can't tell from your response if you knew that. :)

0

Share this post


Link to post
Share on other sites
I just wanted to note that they are in the UK, in the US Smarties are a whole different candy and do not have gluten.

We were in canada at the time. The packet very clearly listed 'wheat flour' on the ingreedients. I was dumb enough not to look until after she'd had one. Minor fever, and I'm in more trouble with myself than I am with her, but its still a scary thing.

0

Share this post


Link to post
Share on other sites
We were in canada at the time. The packet very clearly listed 'wheat flour' on the ingreedients. I was dumb enough not to look until after she'd had one. Minor fever, and I'm in more trouble with myself than I am with her, but its still a scary thing.

They're a different candy in Canada than the US. :) In the US they're like a Sweet Tart ... a little fruity, sour candy.

I hear that in Canada they are some kind of chocolate candy?

0

Share this post


Link to post
Share on other sites
They're a different candy in Canada than the US. :) In the US they're like a Sweet Tart ... a little fruity, sour candy.

I hear that in Canada they are some kind of chocolate candy?

Aye- chocolate with a sugar shell. We just grabbed them at a subway station because we were hungry...

Luckily, the fever only lasted an hour. I was kicking myself.

0

Share this post


Link to post
Share on other sites
Aye- chocolate with a sugar shell. We just grabbed them at a subway station because we were hungry...

Luckily, the fever only lasted an hour. I was kicking myself.

They sound really good, actually! Too bad that's the candy you selected, I'd bet almost all the others available were gluten-free. :( And when you were travelling, no less.

0

Share this post


Link to post
Share on other sites
They sound really good, actually! Too bad that's the candy you selected, I'd bet almost all the others available were gluten-free. :( And when you were travelling, no less.

They are pretty good. I shipped a boxload of our UK version to a friend of mine when she got diagnosed with lukemia. Most of the other stuff we ate, like the peanut butter cups, we checked the label, but we have smarties here all the time...

Thats gonna be the biggest thing if/when we emigrate. Re-checking stuff we take for granted here.

0

Share this post


Link to post
Share on other sites

There are dining cards available which are hugely helpful. I believe they're Triumph Dining cards and you can buy them for many cuisines. I ordered mine on celiac.com

0

Share this post


Link to post
Share on other sites

Seth,

So what's the story with that user name?

best regards, lm

0

Share this post


Link to post
Share on other sites

Welcome Seth!

I hope you and girlfriend get a lot of good help from the website! I would strongly discourage eating resturant Chinese food. If you choose to (which I do too, the chicken fried rice becomes so tempting.) make sure to stress not to cook any of her food with soy sauce. A good alternative soy sauce is Tamari. Love the stuff, you can get Wild Oats I know for sure. Probably at all the other health food stores, too.

The smallest amount of gluten can do damage. I have extremely sereve reactions so I know if I even got just the tiny bit of gluten in me. I think it's a lot harder to figure out whether things have gluten if you really don't react. Just be careful. It never hurts to call ahead to the resturant or the company of the product to ask question.

-Ash

PS: To anyone, does PF Changs have a website? I never heard of one being in Tennessee and I'd like to see if I can find one here.

0

Share this post


Link to post
Share on other sites
They sound really good, actually! Too bad that's the candy you selected, I'd bet almost all the others available were gluten-free. :( And when you were travelling, no less.

They're like M&Ms only not as good. My husband and I agree to disagree on Smarties vs. M&Ms. I think M&Ms are the superior candy and he thinks Smarties are. He'll go for peanut M&Ms, though.

0

Share this post


Link to post
Share on other sites

Hi, Seth! Welcome aboard!

I just wanted to chime in and say that, first of all, I don't get violent reactions, either, but I am gluten-free because the risk of other autoimmune disorders increases exponentially with continued gluten consumption. It's not worth the risk.

And secondly, if ONE part of her blood test came back positive for gluten/celiac, then I'd say she has celiac, especially considering she's been gluten-lite for 2 years--that will practically guarantee her tests would all come back negative.

The more completely gluten-free she can be, the better she'll feel and the better her health will be in the long run.

If you must eat out, bring dining cards with you (they're little cards that explain celiac and what foods pose a risk, available in every language you can think of,so you can give it to the chef).

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,625
    • Total Posts
      918,379
  • Topics

  • Posts

    • glutened by lays potato chips?
      I ate some baked lays last night and felt very sick all night and haven't been feeling great all day today. Other than that I didn't eat anything different from what I normally eat and there was no risk of cross contamination with anything.. These were the only thing I had that was different. They're labeled gluten free so I figured it would be okay, but I started feeling sick pretty soon after eating them. I'm not sure if it's another ingredient in them or what (and i know it's not the soy).. Has anyone else had a reaction to lays potato chips?
    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
    • amalgam dental fillings - remove or not?
      Do you have celiac disease?  This is a celiac forum and that's what we are most knowledgeable about. http://www.cureceliacdisease.org/screening/ Amalgam fillings do not have lead that I know.  What you read was probably mercury.  You could have them removed, but only by a dentist who has the knowledge and skill.   I think you need to do some more research so that you can make an informed decision. I wish you well. 
    • Newly diagnosed and totally overwhelmed
      Welcome! Go ahead and rant!  Scream and holler!  Weep.  It is totally normal to go through a grieving process.  We have all been there!  You are NOT alone! When you pick yourself off the floor, start researching.  Learn about the gluten free diet.  Start with easy-to-digest foods that are naturally gluten free (meat, fish, veggies, fruit, etc.).  You may have to give up dairy for a short time until your villi heal (the villi tips release enzymes that help digest lactose (milk sugars).  Skip all the processed foods until you are improving.  That will give yourself time to forget what bread really tastes like.  Avoid eating out for a few months -- it's easy to get cross contamination.  Best to explain your gluten-free needs when you, yourself, "get it".  Read our Newbie 101 thread under "Coping" for valuable tips.   You can go out and drink with your friends.  You might have to avoid alcohol for a few months.  But when healed you can drink!  Just no beers, malted beverages.  Most distilled liquor (e.g. volka) is gluten free.   So, is wine.  Skip the gluten free beer for a long time.   Find other celiacs in your area.  In the meantime, visit with us.  It does get better.        
    • amalgam dental fillings - remove or not?
      Hi everyone, I'm going through some health issues right now and when searching for possible causes of my symptoms and blood test results, I see lead poissoning popping up quite a few times. Now, I have many amalgam fillings in my mouth since childhood, so naturally I'm thinking if that might play a role and if removing them would make a difference. But from what I read online removing the amalgam fillings is not recommended and does not bring any health benefits. I have mixed feelings about this issue and would really appreciate some advice. Thanks in advance for any comments. Greetings from Mexico. :-)
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,716
    • Most Online
      1,763

    Newest Member
    Acomys
    Joined