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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can Your Blunted Villi Make Your A/d Not Work?
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6 posts in this topic

I have been suffering from major depression. In Feb., I went to a partial hospitalization program. Getting some therapy in a group and indivdual setting has been great. But, none of the meds seem to do anything except create side effects. I have tried many meds in the last 4 years. Ironically, I was dx with celiac at the same time symptoms started and did not go gluten-free until recently (several attempts but nothing too long).

I read the post that it could take up to 2 years to feel better. That is what it took my mom too (she and my sister both have celiac and my mom was very sick).

So, besides going strictly gluten-free, is there anything else that is recommended? What is your take on homepathic type things (fish oil, etc.). Just looking to speed up the process. I have been out of work because of the depression and treatment since the end of Feb and hope to go back on Tuesday.

Missy

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yes, damaged intestines can cause malabsorption of medication as well as food. celiac can cause depression all on its own as well, so that's a complicating factor.

besides pharmacological methods (even the homeophathic ones), a well balanced diet (not too high on the carbohydrates, but seriously balanced), exercise, plenty of sunlight, and a regular sleep schedule can help. oh, yes, I know that those things are next to impossible when you're dealing with depression (sigh... headshake... I wish it were easier...), but if you can get anyone to help you with it, or do anything to push you that way, it definitely can hellp.

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I think I read that 75% of your seratonin is produced in your GI tract so hopefully the longer you are gluten-free the more "access" you will have to your Seratonin and everything will improve. I was undiagnosed ADD I know and I have so much more focus even without ever having taken meds since I went gluten-free in Feb. It's absolutely amazing the difference. Hang in there.

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I have been suffering from major depression. In Feb., I went to a partial hospitalization program. Getting some therapy in a group and indivdual setting has been great. But, none of the meds seem to do anything except create side effects. I have tried many meds in the last 4 years. Ironically, I was dx with celiac at the same time symptoms started and did not go gluten-free until recently (several attempts but nothing too long).

I read the post that it could take up to 2 years to feel better. That is what it took my mom too (she and my sister both have celiac and my mom was very sick).

So, besides going strictly gluten-free, is there anything else that is recommended? What is your take on homepathic type things (fish oil, etc.). Just looking to speed up the process. I have been out of work because of the depression and treatment since the end of Feb and hope to go back on Tuesday.

Missy

Missy,

Realizing everyone is different, I can only say that for me there has really been no problem with prescription medicines that I can tell. Pre-celiac, post-celiac all the same medicine wise. And I was diagnosed with severely damaged villa via biopsy.

Don't quite understand, you were diagnosed celiac four years ago but only recently went gluten-free. What's up with that? Seems pretty simple to me. Your sick. You find out what's wrong with you. Celiac. You go gluten-free. You get better. I started feeling better immediately, like a miracle. Of course it took a little while to get back to normal. But I have no doubt I would still be sick if I hadn't gone gluten-free.

I wouldn't worry how long it took your Mom or others to get better. Every single person is different. Just like everyones symptoms are different. I wouldn't bother with homeopathics, they're just extremely watered down medicines, too weak to be effective. Take good vitamins. Read the posts on vitamins B12 (the methylcobalamin form), Magnesium (the chelated non-oxide forms, asparate, citrate etc.) Calcium, Vitamin D, Potassium etc. I've noticed a distinct improvement since I switched over. You speed up the process by being extremely careful not to ingest any gluten. That's really all you have to do. If you do that, and still don't get better, then you might have other issues. But I'm sorry, "not very long attempts" aren't going to cut it.

No more attempts, just make the decision to do it and then do it. I can always tell when people are just fooling themselves about quitting smoking. They say "I'm quitting when I turn 40", or "I'm quitting after the first of the year", or "I'm quitting next month". Either they put it off or it lasts a week. If they were really serious about quitting they would just do it - now! That's what I did when I quit, after smoking for 31 years. Haven't had a smoke in 10 years. Never missed it. Haven't had a bite of gluten in 4 months. Yes miss it very much, but don't want to be sick either.

best regards, lm

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Missy, gluten can really mess with your brain. It can cause severe depression, schizophrenia, bipolar, ADD, autism and other interesting things.

I would not bother with the antidepressants at this point, but just go 100% gluten-free, as that is all you may need.

Cod liver oil is a great idea, as it will provide you with Omega 3 fatty acids (very important for your whole body, but especially for the brain), vitamin D and vitamin A (which you are likely deficient in).

Fish oil has nothing to do with homeopathic medicines, as it is a supplement, not a medicine. But I disagree that homeopathic medicines don't work, they worked well for me whenever I needed them, without side effects like 'normal' medications.

You seriously need to have your levels of essential nutrients checked, as it is likely that you are deficient in a lot of them. Ask your doctor to test your levels of ferritin (iron), hemoglobin, vitamin D, vitamin B6 and B12, , calcium, magnesium, vitamin K and potassium. Then you know which ones need supplementation, and which ones you are seriously deficient in.

Also, have a bone density scan done, to make sure you don't have osteoporosis already (even children with celiac disease can have it).

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Great advice so far, and I only have one thing to add: you may want to start taking digestive enzymes, or probiotics. Easily googled! :)

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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