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Face Numbness


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21 replies to this topic

#1 whattodo

 
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Posted 28 April 2007 - 03:11 AM

hi i was just wandering if anyone else gets face numbness. I get it on the left side of my face and it comes and goes. There is no drooping or loss of movement.
I was just wandering if this is a sign of nerve damage or vitamin deficiency?

Anyone?
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Hope i dont become a nuisance but there are so many questions i need to ask

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#2 Fiddle-Faddle

 
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Posted 28 April 2007 - 03:23 AM

YES!!!

I had this on one side of my face. Doctor said on the phone that it was probably Bell's Palsy, but I kept insisting that there was no paralysis or dropping. (Sound familiar?) My thyroid meds were too high, and when they were dropped down, the numbness went away, but then it came back later (more mildly, though), and my thyroid levels were fine.

But since going off gluten, I haven't noticed a problem. I did see a rheumatologist about 6 months after going off gluten, who tested me for lupus. The tests were negative, and he said to stay off gluten (like I was really going to start eating it again???? :blink: )

Right before going off gluten, I got a terrible rash on my arms that I now suspect was DH. I wonder if my immune system was attacking my skin, both in the numb cheek and the arm rash?

Anyway, welcome to the club!
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#3 jerseyangel

 
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Posted 28 April 2007 - 03:41 AM

I have facial numbness primarily on the left side. It's gotten much better since going gluten-free.

Before I was diagnosed, I also had numbness and an altered feeling in my arm, and both of these along with tingling in my legs. At that point, the facial numbness was constant and was accompanied by tingling and frequent feelings of intense heat.

I would say it took about 4 months on the gluten-free diet for most of these symptoms to begin to subside.

In my case, I'm sure it was caused by vitamin/mineral deficiencies. I was also severly anemic.
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#4 whattodo

 
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Posted 28 April 2007 - 04:41 AM

Thanks for the response, in a funny way its comforting to know that is could be due to gluten. I am waiting for my blood results to see if i am a celiac. Do you think if taking vitamins would slightly help? Is so which one?
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#5 TrillumHunter

 
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Posted 28 April 2007 - 04:48 AM

I had numbness in my face and soles of my feet. I also had the electric tingling in my arms. That was how a neurologist figured out I had super low b12. I started on shots and it got much better. I didn't realize how many numb places I had. :blink: Unfortunately she didnt figure out I had celiac disease. :angry: I had to wait five more years for that. I am hoping once my small intestines heal I can stop the shots.

Monica
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#6 Canadian Karen

 
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Posted 28 April 2007 - 05:17 AM

It also happened to me. I remember once in my early 20's, I was at work and all of a sudden the whole right side of my face went numb. Again, no drooping though. Again, I was told it was Bell's Palsy.......
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#7 Fiddle-Faddle

 
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Posted 28 April 2007 - 07:41 AM

Thanks for the response, in a funny way its comforting to know that is could be due to gluten. I am waiting for my blood results to see if i am a celiac. Do you think if taking vitamins would slightly help? Is so which one?


Well, there are a lot of variables.

If you ARE celiac or gluten-intolerant, then you need to be gluten-free so that your intestines can heal enough for you to actually be able to absorb the vitamins,and that could take weeks to months or longer, depending on whther or not you have damaged villi, and how extensive the damage, etc.


But are you relying on a blood test for your answer, on dietary response, or a combination of both?

Were you eating gluten (4-5 slice of bread or equivalent ) for several months prior to having blood drawn for the test? If not, your test will likely come up as a false negative, but don't count on your doctor to know that....BTW, what clued your doctor into checking you for celiac in the first place (maybe your doc is one of the good ones )??
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#8 whattodo

 
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Posted 28 April 2007 - 09:50 AM

Well, there are a lot of variables.

If you ARE celiac or gluten-intolerant, then you need to be gluten-free so that your intestines can heal enough for you to actually be able to absorb the vitamins,and that could take weeks to months or longer, depending on whther or not you have damaged villi, and how extensive the damage, etc.
But are you relying on a blood test for your answer, on dietary response, or a combination of both?

Were you eating gluten (4-5 slice of bread or equivalent ) for several months prior to having blood drawn for the test? If not, your test will likely come up as a false negative, but don't count on your doctor to know that....BTW, what clued your doctor into checking you for celiac in the first place (maybe your doc is one of the good ones )??


I was experiencing stomach pain in the upper left side of my stomach 7 months ago. After a CT Scan i was diagnosed with diverticular disease in the transverse colon. After researching diverticular i realised that was not the problem. I was experiencing a constant dull pain. I did however change my diet to chicken, fish and vegetables. Along with fruit. So yes I was reletavely gluten free but i did eat things like oats, brown bread etc. This could be why i still have the pain. I went to my doc and told him i wanted to see a specialist. On seeing the specialist this week he said it must be 1 of 2 things. either ibs or Celiac. Like i said i have given blood and waiting for that response. I think whatever the outcome i will still continue with this diet and i love the fresh food etc. I do however want to know if this pain will subside and i can live a happy life????????
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Hope i dont become a nuisance but there are so many questions i need to ask

#9 Fiddle-Faddle

 
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Posted 28 April 2007 - 10:05 AM

I wish I knew enough to give you an answer!

I do know, however, that IBS is a list of symptoms, not a disease. Those symptoms just happen to be identical to those of celiac. Many here (myself included) believe that IBS is a "trash bin" diagnosis, when the doctor has no idea what is CAUSING the symptoms, but gives you an official "diagnosis" of IBS and meds that may or may not mask those symptoms, but certainly won't address the cause.

At least, your doctor knows enough to consider celiac! (I am amazed how many don't)

Have you stopped eating gluten at this point, or are you waiting for the results of the blood work before you do so?

You don't need blood work or a doctor's permission to do so, as I'm sure you are aware; I was just trying to figure out if you still had the pain because you are still eating gluten, or if you still have the pain in spite of being off gluten, in which case, it might be a question of waiting long enough for your intestines to heal, or it might be caused by something other than gluten.

Sorry to be so long-winded!
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#10 whattodo

 
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Posted 28 April 2007 - 10:56 AM

I wish I knew enough to give you an answer!

I do know, however, that IBS is a list of symptoms, not a disease. Those symptoms just happen to be identical to those of celiac. Many here (myself included) believe that IBS is a "trash bin" diagnosis, when the doctor has no idea what is CAUSING the symptoms, but gives you an official "diagnosis" of IBS and meds that may or may not mask those symptoms, but certainly won't address the cause.

At least, your doctor knows enough to consider celiac! (I am amazed how many don't)

Have you stopped eating gluten at this point, or are you waiting for the results of the blood work before you do so?

You don't need blood work or a doctor's permission to do so, as I'm sure you are aware; I was just trying to figure out if you still had the pain because you are still eating gluten, or if you still have the pain in spite of being off gluten, in which case, it might be a question of waiting long enough for your intestines to heal, or it might be caused by something other than gluten.

Sorry to be so long-winded!


For the last 2 days i have now eaten a gluten free diet. I am not waiting for results as this diet is not far from one i need to follow to keep my diverticular in order. Its healthy anyway......
The pain is still there but going to persist. I have a appointment to see a dietician next week which will help me with foods i can eat. Does celiac mean that the whole intestine is affected, i am just wandering how long it will take to clear up?
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#11 Fiddle-Faddle

 
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Posted 28 April 2007 - 12:12 PM

I sure hope that the dieticians in the UK know more than most in the states! Most here don't seem to know that Corn Flakes and Rice Krispies are not gluten-free, or that barley malt and soy sauce are on the no-no list! And I do believe that in the UK, wheat starch is officially considered gluten-free, but here in the states it's a total No-No.

Two days doesn't seem long by the standards of most here. I DID feel much better (no more cramping or bloating!)starting about 2 days in, but I probably had far less damage than you. It did take 2 full weeks til I stopped craving bread (hadn't found the good recipes at that point, and the store-bought gluten-free bread tastes like styrofoam to me)!

Most here report that it takes weeks or months to feel better.

Hang in there!!!!

With celiac, your immune system can attack anything: the whole intestinal system, your skin, your brain, your thyroid, your pancreas. Nothing is safe...
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#12 AndreaB

 
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Posted 28 April 2007 - 02:27 PM

Definately make sure you have all your vitamin levels tested. B12 deficiency could cause tingling.....don't know if it does in the face though.

Another thing to consider if all your other tests come up with nothing and this hasn't resolved is to have testing done for lyme. I know Igenix in the US is the lab to use. Bells Palsy can be a sign of lyme but doesn't necessarily mean that is what you have. Just keep it in your mind if symptoms don't resolve, unless you want to run testing along with other tests. Most labs aren't reliable so if you go for lyme testing search out a lyme board in the UK to find out which lab is reliable.
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Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.


#13 whitball

 
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Posted 28 April 2007 - 06:47 PM

I used to have numbness of my chin, lips and the left side of my face. In addition, my tongue used to twitch. I have not had this since I went gluten-free in February 2006. What are the symptoms of low b12?
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#14 AndreaB

 
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Posted 28 April 2007 - 07:11 PM

The following site has b12 information.

http://www.nlm.nih.g...icle/000574.htm
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Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.


#15 whattodo

 
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Posted 29 April 2007 - 01:46 AM

The following site has b12 information.

http://www.nlm.nih.g...icle/000574.htm


May be a silly question but would this show up in a full blood count test? I have had this 7 months ago and was normal
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