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Diverticulitis Of The Ascending Colon


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#1 angel_jd1

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Posted 03 May 2007 - 03:16 PM

I have been having alot of tests run here lately and they have just ruled out gallbladder. The thought stuck in the back of my head is that it is "just" my diverticulitis. However, like the usual trouble I have with it, the pain is on the right side. Still having fever, vomiting, pain, nausea, chills, not hungry, etc.

In researching this......the pain/diverticulitis would have to be in the ascending colon. Instead of where most folks usually get it (descending colon,left side).

Have any of you had diverticulitis in the ascending colon?

Thanks in advance for your help.

-Jessica :rolleyes:
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Jessica
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Kansas

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#2 Lisa

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Posted 03 May 2007 - 06:12 PM

Not me babe, but I hope you find some relief soon. Hopefully your test will indicate something that can be delt with.
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#3 angel_jd1

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Posted 03 May 2007 - 06:32 PM

Thanks.........Dr wants to send me to a Gastro...........I haven't been to one since my diagnosis :ph34r: The one I went to has since moved. I'm hoping my doctor will just go for trying a round of antibiotics to get my white count and fever down and see if the pain goes away. I've already had an ultrasound, bloodwork and a pipida scan.
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#4 ravenwoodglass

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Posted 04 May 2007 - 02:23 AM

I do, I have (had?) the little buggers all the way throughout my entire colon, they were found in a colonoscopy a couple years prediagnosis. The same scope that caused the I Be Stupid diagnosis at which I was told to just get more fiber. My GI said that was very unusual, usually they only see it on the left. Don't know if this helps but at least you know your not the only one. On a follow up colonoscopy I had a couple weeks ago GI said many of the diverticuli were gone. I have been gluten-free for almost 5 years and don't know if that is why they have lessened or not.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 angel_jd1

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Posted 04 May 2007 - 03:28 AM

I do, I have (had?) the little buggers all the way throughout my entire colon, they were found in a colonoscopy a couple years prediagnosis. The same scope that caused the I Be Stupid diagnosis at which I was told to just get more fiber. My GI said that was very unusual, usually they only see it on the left. Don't know if this helps but at least you know your not the only one. On a follow up colonoscopy I had a couple weeks ago GI said many of the diverticuli were gone. I have been gluten-free for almost 5 years and don't know if that is why they have lessened or not.

Glad to know there is someone out there who has it (so I know I'm not crazy) ha :) Now if I can only convince the dr that this "might" be what is wrong :blink:


-Jessica :rolleyes:
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Jessica
Gluten Free since 12-31-2002!!
Kansas

#6 angel_jd1

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Posted 04 May 2007 - 03:57 AM

I finally found the pictures from the scopes that I had in 2002. All of the pictures of my diverticulitis are from the ascending colon side!!!! Now to present the info to the doc ;) I hope he just goes for antibiotics and not a referral to a gastro.

-Jessica :rolleyes:
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Jessica
Gluten Free since 12-31-2002!!
Kansas

#7 ravenwoodglass

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Posted 04 May 2007 - 04:10 AM

I finally found the pictures from the scopes that I had in 2002. All of the pictures of my diverticulitis are from the ascending colon side!!!! Now to present the info to the doc ;) I hope he just goes for antibiotics and not a referral to a gastro.

-Jessica :rolleyes:



Jessica, I would ask for the referral. If this an an attack of diverticulitis, (when the diverticuli become inflamed and infected) it can be very serious. It is also usually an 'acute' problem that develops suddenly. There is a risk that the inflamed diverticuli can burst and release fecal toxins into the abdomen. That would result in peritonitis which can be rapidly fatal. If you doctor suspects diverticulitis it would be IMHO irresponsible of him to just give you a script for antibiotics.
If this problem has been a 'chronic' one that came on slowly and has been going on for a while and you are a celiac you need to find out if it is CC or nonfood related gluten that is causing it. Small amounts of CC through nonfood, toiletries, meds etc. can cause lingering problems.
I hope you get some relief soon.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#8 mandigirl1

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Posted 05 May 2007 - 08:53 AM

What exactly is Diverticulitis? and How do you know if you have it?
Ive been sick lately w/pain on right side of stomach. already had sonogram, CAT scan, blood work, etc. Results showed nothing to be wrong. They thought it was appendicitis, but it isnt. So, now Im thinking maybe I have this diverticulitis thing. (Ive been Dx w/celiac disease for 8 yrs.)
Thanks for any help!!!
e
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#9 ravenwoodglass

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Posted 06 May 2007 - 04:09 AM

Diverticulosis is weak spots that form little out pouches in the wall of the large intestine. I am sure it has more than one cause but for many of us the reason they form is from having severe constipation. Diverticuli that get food or seeds caught in them and then get infected cause diverticulitis. When you see 'otis' on the end of a word like diverticuli it means a condition when the end is 'itis' it means those diverticuli have become inflamed or infected.
Most folks have at least a few of the little outpouches and live with them with no problems. Problems arise when one of them become inflamed. When this happens it is generally sudden, very painful and the person will be extrememly ill with a high fever. There would be no doubt that the person needs a trip to the ER if that happens.
If you have a colonoscopy they are easily found and the doctor will tell you if you need to make any changes because of their presence. Even with all the ones I have, in part due to having a condition called Ehlers Danlos that weakens the connective tissues, my doc has said no treatment or changes were needed. That may be different for others.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#10 angel_jd1

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Posted 15 May 2007 - 05:53 PM

Well I am feeling considerably better than I was. I talked to the Dr. who agreed that I had diverticulitis of the ascending colon. He said it was pretty rare to see people with it in the ascending colon. I then reminded him that I was one rare chick :lol: .

He put me on Flagyl 500mg and Bactrim DS. Those had me feeling pretty darn good. However fever jumped back up again on Monday and some pain resurfaced...so I am on to round 2 of antibiotics. I start them Thursday. This time I will be taking cipro and Flagyl (I think).

The point of this story is.......with all these high powered/multiple doses of antibiotics I had probably better pick up some probiotics or something to keep the good bacteria going in there. Any suggestions?

I am eating some yogurt.....is that good enough? or should I do more...like with capsules of a probiotic....and please be brand specific if you say YES do the probiotic :) Thanks!!

-Jessica :rolleyes:
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Jessica
Gluten Free since 12-31-2002!!
Kansas

#11 ravenwoodglass

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Posted 16 May 2007 - 03:20 AM

Well I am feeling considerably better than I was. I talked to the Dr. who agreed that I had diverticulitis of the ascending colon. He said it was pretty rare to see people with it in the ascending colon. I then reminded him that I was one rare chick :lol: .

He put me on Flagyl 500mg and Bactrim DS. Those had me feeling pretty darn good. However fever jumped back up again on Monday and some pain resurfaced...so I am on to round 2 of antibiotics. I start them Thursday. This time I will be taking cipro and Flagyl (I think).

The point of this story is.......with all these high powered/multiple doses of antibiotics I had probably better pick up some probiotics or something to keep the good bacteria going in there. Any suggestions?

I am eating some yogurt.....is that good enough? or should I do more...like with capsules of a probiotic....and please be brand specific if you say YES do the probiotic :) Thanks!!

-Jessica :rolleyes:


Hi Jessica, If the yogurt worked for the first run just keep it up. I am also getting over a bout with diverticulitis, it hit a couple of weeks ago and lead to a lot of tests. Unfortunately my doc didn't recognize it as such until last week when I finally got a script for a couple of antibiotics. Make sure they check your scripts for gluten, the Flagyl can be hard to find unless generic and those in particular need to be absolutely verified. Notify your doctor right away if you notice any unusual symptoms. Some of the newer antibiotics can have some very intense side effects.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#12 ravenwoodglass

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Posted 16 May 2007 - 03:20 AM

Well I am feeling considerably better than I was. I talked to the Dr. who agreed that I had diverticulitis of the ascending colon. He said it was pretty rare to see people with it in the ascending colon. I then reminded him that I was one rare chick :lol: .

He put me on Flagyl 500mg and Bactrim DS. Those had me feeling pretty darn good. However fever jumped back up again on Monday and some pain resurfaced...so I am on to round 2 of antibiotics. I start them Thursday. This time I will be taking cipro and Flagyl (I think).

The point of this story is.......with all these high powered/multiple doses of antibiotics I had probably better pick up some probiotics or something to keep the good bacteria going in there. Any suggestions?

I am eating some yogurt.....is that good enough? or should I do more...like with capsules of a probiotic....and please be brand specific if you say YES do the probiotic :) Thanks!!

-Jessica :rolleyes:


Hi Jessica, If the yogurt worked for the first run just keep it up. I am also getting over a bout with diverticulitis, it hit a couple of weeks ago and lead to a lot of tests. Unfortunately my doc didn't recognize it as such until last week when I finally got a script for a couple of antibiotics. Make sure they check your scripts for gluten, the Flagyl can be hard to find unless generic and those in particular need to be absolutely verified. Notify your doctor right away if you notice any unusual symptoms. Some of the newer antibiotics can have some very intense side effects.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#13 angel_jd1

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Posted 16 May 2007 - 03:36 AM

Hi Jessica, If the yogurt worked for the first run just keep it up. I am also getting over a bout with diverticulitis, it hit a couple of weeks ago and lead to a lot of tests. Unfortunately my doc didn't recognize it as such until last week when I finally got a script for a couple of antibiotics. Make sure they check your scripts for gluten, the Flagyl can be hard to find unless generic and those in particular need to be absolutely verified. Notify your doctor right away if you notice any unusual symptoms. Some of the newer antibiotics can have some very intense side effects.

I always do my own calling on the meds. My 2nd job is a registered pharmacy technician. :) So I figure I may as well do it myself and hear what the people actually say instead of what is relayed to me. I prefer it that way.

-Jessica :rolleyes:
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Jessica
Gluten Free since 12-31-2002!!
Kansas

#14 whattodo

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Posted 25 May 2007 - 08:00 AM

Hi Jess, u made my blush. Thanks for your reply. On looking at your topics i came across this one. Believe it or not i too have diverticular disease. Although not diverticulitis, and hopefully never get to that stage. My diverticuar are in the transverse colon, The bit between the acending and decending. This was my first diagnosis for the problems im having now. I went back to them and told them that the pain i was having was not the same as i have read about. thats when the started doing tests for celiac disease.

Anyway, i have approx 30 pockets and the largest one approx 7mm dia. I was put on a hight fibre diet then but told to stop eating as much fibre when thought i had celiac. Am confused more than ever now.

Just wanted to let you know that u are not the only one.

All the best

Jay
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Hope i dont become a nuisance but there are so many questions i need to ask

#15 angel_jd1

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Posted 25 May 2007 - 08:06 AM

Hi Jess, u made my blush. Thanks for your reply. On looking at your topics i came across this one. Believe it or not i too have diverticular disease. Although not diverticulitis, and hopefully never get to that stage. My diverticuar are in the transverse colon, The bit between the acending and decending. This was my first diagnosis for the problems im having now. I went back to them and told them that the pain i was having was not the same as i have read about. thats when the started doing tests for celiac disease.

Anyway, i have approx 30 pockets and the largest one approx 7mm dia. I was put on a hight fibre diet then but told to stop eating as much fibre when thought i had celiac. Am confused more than ever now.

Just wanted to let you know that u are not the only one.

All the best

Jay

Jay-
WOW....7mm would be pretty large of a pocket!! You sure need to be careful. I don't think they counted my pockets when they did my scopes. However, I DO have pictures of them! ha Add THOSE to the photo album :lol: "and here is a picture of my colon" :lol: When I had my scopes they told me I have the intestines of an 80 year old!! :P
Right now I am not allowed much fiber until this bout with diverticulitis heals. I have two more days of the 2nd round of double antibiotics (ya, that's 20 days of 4 different kinds of meds). However, it seems to be doing much better. I am not in near as much pain as I was 20 days ago :)

It's good to know that I am not alone in my "old people's disease" (at our age!) ha

-Jessica :rolleyes:
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Jessica
Gluten Free since 12-31-2002!!
Kansas


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