How Do You Handle Bad Days?
Posted 08 October 2004 - 12:58 PM
Self-diagnosed after many tests and no results to feel better
Gluten Free since 8-6-2005
Lactose free for many years
Casein Free since 02/14/06
Posted 08 October 2004 - 01:35 PM
Posted 08 October 2004 - 02:54 PM
I know how fristrating those setbacks are. The things I do when I get sick are
1- retreat. go to bed, hop in the bath, cancel all social obligations possible that day
2- drink tea and chicken broth, and when I feel a lot better, some rice with butter and salt and pepper
3- call my sister- she is also celiac, and understands
4 try and be patient while my body sorts itself out
the last is the hardest for me!
Posted 08 October 2004 - 03:18 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 08 October 2004 - 05:10 PM
I tried my usual remedies for bloating, gas and cramps like drinking peppermint tea and doing some pilates or yoga which focussed on my stomach. Those seem to help my dairy/soy reactions, but didn't do much for my gluten reaction. (My gluten symptoms differ from my dairy/soy symptoms.) What did help that horrible pain was standing in the shower with a concentrated hot water spray on the spot that hurt and then taking a long walk. Laying in bed with my knees pulled up to my chest helped, too. When the pain subsided today, drinking lots of hot water or herbal tea also helped. I drank so much peppermint tea that I got acid reflux (relaxed my esophagus too much). So I switched to Lipton decaf today.
Beyond physical stuff, I emailed some friends that I was struggling and called my hubby for some sympathy. Knowing a couple friends were praying for me helped.
Posted 11 October 2004 - 06:29 AM
Worse than the bad reactions to foods, are the days when we go out shopping or just running around the mall and he smells all the foods cooking and realizes that he can't eat any of it. He has bad reactions to spices in Itallian, Mexican and oriental foods. It's so sad to see him in tears, because he really misses his favorite foods. I've tried to make pizza, speghetti, Mexican food but just haven't come up with something that he can tollerate because of the spices. He never thought he'd get tired of eating Steak and Baked potatoes. I did make my own version of scolloped potatoes last night. Came out great. gluten-free and Lactose free. Slowly I'm trying to convert some old recipes.
I finally got up the nerve to make my own bread yesterday. Didn't come out too bad. It sunk a little but at least it was edible. But I did notice that the texture was a little rubbery. May have put in to much water. Will have to try it again. We've been eating Millet Bread From a bakery in Deland, Fl and they've been known to have contamination problems in there gluten-free bread. If anyone has any suggestions on food it would be greatly appreciated.
Thanks for listening, Wife of a celiac disease
Guest_~wAvE WeT sAnD~_*
Posted 11 October 2004 - 07:57 AM
My day has been okay--I'm just annoyed at a cross-contamination episode that I experienced this morning.
I was talking to a freshman boy while he was making eggs on the egg griddle. I noticed that he had bread on his plate. I watched him like a hawk to make sure he didn't cross contaminate. He called to his friend, asking the other gentleman to bring him some more bread. Then, of course, he touches the bread with the spatula, then touches the spatula to the griddle. He scraped the excess egg off of the teflon and said, "Here you go." LOL! "Here you go, have some GLUTEN!!"
The cafeteria ladies were promptly alerted of this (I was miffed). One washed the spatula, which was fine, but instead of washing the egg griddle, they simply used a paper towel and SMEARED THE GLUTEN EVERYWHERE!!! <sigh> Rant over. I'm talking to the Food Services director today. Apparently I haven't made cross contamination issues clear to the staff.
I hope everyone feels better!!!
Posted 11 October 2004 - 09:01 AM
I also have problems with spices. If there's any pepper on my food, I can't taste anything after the first bite. I'm not sure how it affects my intestines, but I do experience much more gas and bloating after consuming any pepper. I focus on meals with meats, fresh vegies and starchy vegies (potatoes, yams, beans) or gluten-free pasta seasoned with herbs and olive oil. I can tolerate some cinnamon or cardamon, but no HOT spices, raw onions, or even acidic condiments like mustard, catsup, etc. I feel much better with simple salt and herbal seasonings. Nevertheless, varying the 'meats, fish, poultry, vegies and starches' meals with entree soups, entree salads, and stir fry dishes gives me lots of variety. I do Mexican tacos or tostadas WITHOUT all the spices, since I love refried beans, corn tortillas and avocados. (I omit tomatoes and cheese, since I can't eat dairy or acidic stuff.)
As for breads, if you're willing to order online there are MANY different varieties of gluten-free breads. Fortunately, I live near the Ener-G Foods bakery/factory in Seattle, so I can just pick up any of their many varieties of breads, pastries or pastas. Their gluten-free breads vary from some which resemble 'white Wonderbread' to heavier 'whole grain, dark' breads to sourdough tasting 'corn loaf' and lots of others. However, there are many other brands of gluten-free breads which you can order or perhaps find in local 'Whole Foods' or health food stores. I've sucessfully used gluten-free cooky and flour mixes to make quick breads and cookies, but prefer to buy other breads locally.
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