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Going To The Gastro Dr
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4 posts in this topic

what is the consensus on going back on gluten before visiting a gastroenterologist for diagnosis? this will be a first-time visit, so probably no biopsy at this point. i was tested negative two years ago with the blood test, which was taken while i was gluten-free. just curious...thanks!

billy

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Billy,

In my opinion, I think it's great that you're going back to a doctor... I'm on my 4th and hopefully final on the celiac issue. (It's difficult to find one that really knows about celiac and gluten intolerance). When if your appointment? If you feel it's important that you have accurate testing, you'd have to be back on gluten for some time for accuracy.... that, unfortunately might make you ill and I'd be the last to recommend that. How knowledgable is your doctor about celiac? They might recommend you start eating gluten again, but then they'd be able to document the effects of your experience in doing so.... which can be proof in itself :D

Gretchen

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I'd vote for staying with things as they are. You'll need to be on gluten to be tested, but you'll want to find out your doc's approach first.

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thank you for your opinions! i'd say i'm about 50 percent gluten-free now (it's hard being a vegan with the intolerance). i'm not sure how knowledgeable this specialist is on the disease (i hope very, especially since i've had such bad luck with docs in the past). my appointment is in two weeks, so i'll continue with my current diet (and unfortunate consequences) until the next step. thanks again! :) billy

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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