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Going To The Gastro Dr
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what is the consensus on going back on gluten before visiting a gastroenterologist for diagnosis? this will be a first-time visit, so probably no biopsy at this point. i was tested negative two years ago with the blood test, which was taken while i was gluten-free. just curious...thanks!

billy

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Billy,

In my opinion, I think it's great that you're going back to a doctor... I'm on my 4th and hopefully final on the celiac issue. (It's difficult to find one that really knows about celiac and gluten intolerance). When if your appointment? If you feel it's important that you have accurate testing, you'd have to be back on gluten for some time for accuracy.... that, unfortunately might make you ill and I'd be the last to recommend that. How knowledgable is your doctor about celiac? They might recommend you start eating gluten again, but then they'd be able to document the effects of your experience in doing so.... which can be proof in itself :D

Gretchen

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I'd vote for staying with things as they are. You'll need to be on gluten to be tested, but you'll want to find out your doc's approach first.

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thank you for your opinions! i'd say i'm about 50 percent gluten-free now (it's hard being a vegan with the intolerance). i'm not sure how knowledgeable this specialist is on the disease (i hope very, especially since i've had such bad luck with docs in the past). my appointment is in two weeks, so i'll continue with my current diet (and unfortunate consequences) until the next step. thanks again! :) billy

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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