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Tiredofdoctors - Lynne


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105 replies to this topic

#1 mouse

 
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    **armetta**

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Posted 09 May 2007 - 02:08 PM

Lynne just phoned me to tell me the latest. She had an MRI of the brain yesterday and one of her doctors phoned to tell her that she is going to have a angiogram CT of the brain tomorrow. She has an aneurysm deep in the internal carotid artery.

We both knew from the first appt. that she would probably have to have brain surgery, but not to this extent. I had told her originally that after they shaved a small part of her head, she could do a comb over like Donald Trump. She laughed so hard over that. With this surgery, she will probably have half of her head shaved and she told me that she thought that afterwards she could dye that half black, wear blue lipstick and black nail polish LOL. Go with the punk look.

Lynne and I both believe that she will come through this with flying colors. She had one neuro doctor blow off her symptoms. Her cardiologist insisted that she see her other neuro immediately and made Lynne promise. Otherwise Lynne would have waited until her scheduled August appt. She kept her promise and everything has happened fast since then. So, we feel that this was meant to be caught, before it was too late.

She sees the neuro-surgeon next Tuesday with ALL X-rays in hand.

Please send good thoughts and prayers her way. If Lynne does not post, I will keep everyone up to date.
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"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004
Allergies - corn, soy, casein, egg whites and wheat
Morphia Scleroderma
Osteoarthritis
Hypothyroid and Hperthyroid
Essential Tremors
Asthma
Migraines
Fibromyalgia - diag. in 1978 when they called it Fibrositis
PAD Peripheral Artery Disease
Angina and Atrial Fibrillation
Gluten Ataxia
Vitiligo
Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.
Ocular Myastenia Gravis

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#2 CarlaB

 
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Posted 09 May 2007 - 02:24 PM

I'll definately say a prayer for Lynne! If anyone can carry off having half her head shaved, it's her! :lol: Good thing she won't be able to talk during the surgery or the doctors wouldn't be able to concentrate ... her sense of humor through difficult situations is unbelievable.
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gluten-free 12/05

diagnosed with Lyme Disease 12/06

#3 Lisa

 
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Posted 09 May 2007 - 02:36 PM

Metta:

If anyone could pull this off with some humor, it's Lynne. For those of you who don't know Lynne (she has not posted in a long time due to other health issues), she is one too funny chick. She is a giving and tenderhearted soul.

It's been a tough month for Lynne. Her beloved grandmother died last week at 101. I have been thinking about her every day. My thoughts and prayers are always with Lynne, Dave and her children.

Some of the neatest, coolest, loving friends I have, I have met here. Let's continue to do what we do here. Collective prayers, thoughts and support can carry Lynne a long way.
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#4 AndreaB

 
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Posted 09 May 2007 - 03:23 PM

Thanks for the heads up Armetta. We'll keep her in our thoughts and prayers.
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Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.


#5 dlp252

 
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Posted 09 May 2007 - 03:34 PM

Prayer said! I'll keep praying.
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#6 happygirl

 
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Posted 09 May 2007 - 04:01 PM

Armetta,
Thanks so much for the update. We really appreciate it.

Lynne, Hope you sign on and get to read these warm wishes for you. We all hope and pray for the absolute BEST for you. Please let us know what we can to to help....and know that we care deeply for you!

xoxo,
Laura
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#7 aikiducky

 
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Posted 09 May 2007 - 04:10 PM

I'll be thinking of her, too.

Pauliina
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#8 Nantzie

 
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Posted 09 May 2007 - 04:27 PM

I'm praying for her. Let her know she's missed on the board.

I'm sure she'll be able to pull off the hairstyle. I vote for blue with black ends. Very current.

Nancy
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The person who says it cannot be done should not interrupt the person who is doing it.
~Chinese Proverb

#9 pedro

 
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Posted 09 May 2007 - 04:34 PM

I am also here. Please keep us inform of the progress.

I am honor to have friends like all of you.
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Have not I commanded you? Be strong and of a good courage; be not afraid, neither be thou dismayed: for the LORD thy God is with you every where you go.
Jos 1:9

I can do all things thru Christ which strengtheneth me.
Phi 4:13


Blood Test: Negative 03/2006
Biopsy Negative 04/2006
Stopped gluten-free diet 04/2006


EnteroLabs: Positive 04/2007
Fecal Antigliadin IgA "Positive"
Fecal Antitissue Transglutaminase IgA "Positive"
Quantitative Microscopic Fecal Fat Score "Positive"
Fecal anti-casein (cow’s milk) IgA antibody "Positive"
HLA-DQB1 Molecular analysis, Allele 1 0301
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 7,9)


Started gluten-free diet 03/25/2007 (This time is permanently).


One of my daugthers (Elizabeth) also have the gluten and dairy allergy. We started her in the diet, and doing excellent.

#10 Canadian Karen

 
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Posted 09 May 2007 - 06:09 PM

I will be calling her tomorrow so I will try to post an update also.....

If anyone can get through this, it's Lynne. She is one of the strongest people I know!

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#11 Ursa Major

 
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Posted 09 May 2007 - 06:47 PM

I will be praying, too.
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#12 mamabear

 
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Posted 09 May 2007 - 07:01 PM

Thanks, Metta for the post. I have had her on my mind lately and will keep her in my thoughts and prayers.
Lynne.......hang in there !! I am looking forward to your speedy recovery and brilliant , funny posts!

Ann
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Iron deficiency without anemia, unexplained weight loss 2/2003
Positive celiac biopsy 4/2003
Autoimmune thyroiditis 8/2005

Gluten Free Since 2003

#13 Fiddle-Faddle

 
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Posted 09 May 2007 - 07:02 PM

Lynne, we're all sending you prayers, good thoughts, good vibes, positive energy, laughter, and love!

Here's to a speedy recovery and a punk hairdo!
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#14 Canadian Karen

 
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Posted 09 May 2007 - 07:18 PM

Lynne,

Can I call you Britney? ;)
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#15 2kids4me

 
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Posted 09 May 2007 - 10:05 PM

Adding my thoughts and prayers along with everyone. Keeping fingers corssed that everything goes well - and good thing for a second opinion!

Can I call you Britney?


:D :lol: :lol: :lol:

Good one Karen!

sandy
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