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Biting Inside Of My Cheeks
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Does anyone kno wif there is a connection between Celiac disease and habitual biting of the inside of the mouth. I have done it since I was a kid and now my son who is only four does it. Does anyone else have this problem?

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sounds more like an obsessive-complulsive behavior-----and OCD can run in families.

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Wow. I have done this as long as I can remember. My dad used to say "Jenny stop it," all the time. I tend to do it when I am very nrevous or watching TV. I don't know if there is a connection but you are not alone.

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Wow. I have done this as long as I can remember. My dad used to say "Jenny stop it," all the time. I tend to do it when I am very nrevous or watching TV. I don't know if there is a connection but you are not alone.

Yep I am obsessive complusive and I do it all the time, even while sleeping. I am celiac too, but I never really questioned if they go together or not!

Kelly

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sounds more like an obsessive-complulsive behavior-----and OCD can run in families.

I don't have any other traits that are OCD. And I only really bite them when a am stressed. I just noticed when I got glutened that I did it much more, and thought there could be a connection.

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Wow. I have done this as long as I can remember. My dad used to say "Jenny stop it," all the time. I tend to do it when I am very nrevous or watching TV. I don't know if there is a connection but you are not alone.

Us too! Even if it's not related to celiac, seems like there's got to be something more to it. Thanks for your reply!

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I used to have similar sorts of stuff happen, but by accident. Usually it was my lip that got chomped :angry: Thankfully, this has subsided/disappeared, and I believe the key was a sublingual methylcobalamin (vitamin B12) supplement. Either that or it just took time, but I notice that my teeth are straighter too, and no longer have the aching that would come and go.

Still a bit of teeth clenching, but not as bad as it used to be.

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I actually trained myself to do this. On gluten or under great stress I am a teeth grinder. I have broken them in my sleep, those good old celiac teeth, and I do it to keep from grinding. Perhaps a mouth guard might help you and your son, your dentist can give you one with the best fit. Another thing that helps, at least for me, is a hot compress on my cheek before bed. When I get glutened it helps my muscles to relax and I don't do as much grinding and biting. Plus it feels very soothing.

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I used to accidentally bite the inside of my mouth and once I did it, it seemed like I did it several times, each time very painful. Hadn't thought much about it until reading these posts. That's a good thing cause that means it "ain't " happenin' anymore!!!!!!

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I used to do this all the time! I also used to bite my lip until it turned into a bump. I don't do it as much but I do know that if I get glutened I get a mouth sore.

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I do this all the time, although it could be not just an ocd but in some cases a tourettes thing.

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Hi.

I am a long time lurker, first time poster. ;)

My daughter bites the inside of her cheeks and lips. I have put it down to the mouth ulcers she used to have until the gluten intolerance diagnosis.

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You may be refering to TMJ. I was recently diagnosed with this by my dentist, around the same time as my Celiac Diagnosis.

I am unsure if the two are directly related, or if I just have been lucky finding medical professionals who arent qwacks lately.

"TemporoMandibular Joint and muscle disorders" The following article goes over the specifics:

http://www.cnn.com/HEALTH/library/DS/00355.html

Does anyone kno wif there is a connection between Celiac disease and habitual biting of the inside of the mouth. I have done it since I was a kid and now my son who is only four does it. Does anyone else have this problem?
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Does anyone kno wif there is a connection between Celiac disease and habitual biting of the inside of the mouth. I have done it since I was a kid and now my son who is only four does it. Does anyone else have this problem?

Interesting, I would have never connected the two. I do it alot (ugh the scars!), and my mom, who never knew she did it, went to a special dentist the other day and the lady goes "wow, you really bite your mouth alot, huh?" The dentist said she is probably doing it in her sleep without realizing it. I have Celiac, and she is suspected of having it.

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I am mildly OCD and I compulsively scratch my lips with my teeth. I'm assuming this is about the same as what you guys are talking about. Luckily, most of my OCD symptoms disappeared when I went gluten free. Unfortunately, this one hasn't gone away completely. It has gotten better though since going gluten free. I think there's definitely a connection with OCD and gluten.

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I have Tourette's syndrome and Asperger Syndrome, and I have always done that, too. It isn't possible to determine if in my case it is a tic, OCD (which I have mildly, but not enough for a separate diagnosis, as EVERYBODY with TS and AS has some compulsive behaviours) or a stim (self-stimulating behaviour, typical for people on the autistic spectrum).

But I do know that I don't do things like that as much as I used to when still eating gluten, and my tics have decreased as well.

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*reluctantly raises hand*

Gawd, I'm doing it right now.

I've habitually chewed/bit my inside cheeks and lips since I was a teen. I do it more when I'm not physically busy.

Never been diagnosed w/ OCD and I would say that if I have it, it is mild.

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Add one more person with celiac and bites their tongue...literally. I have wondered about OCD, never been diagnosed, but that doesn't mean much. Like others have mentioned I remember doing this as a child, my grandmother did it and so does my father. I have tried to stop numerous times, hence why I am on this site right now, seeing if anybody has ever been successful in kicking this nasty habit. I used to grind my teeth too and my dentist made me a mouth guard, (Wal Mart sells a mouth guard that you mold to your teeth at home, fairly easy to do and only $20). This stopped my grinding but I am having trouble with biting my tongue still. It is sooooo irritating, I do it in my sleep and sub consciously. I don't understand why I do this, I absolutely hate it, my tongue is sore all the time and looks repulsive I want to stop! Any suggestions or advice would be appreciated.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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